CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

UK: CML UK - Facebook Group

Contact address:

1 Waters Drive, Four Oaks
Sutton Coldfield
West Midlands B84 4TQ
United Kingdom

Telephone: +447974000000

Email: ndeekes@gmai.com

Facebook: https://www.facebook.com/groups/cmluk/member-requests/?joined_fb_recently=false&previously_removed_members=false&suggested=false

Key contacts:

Nigel Deekes - Principle
Email: ndeekes@gmail.com
Phone: +447973509480
Mobile: +7973509480

Audience/Constituency:

Facebook 3500 members + CML worldwide 4600 members.

Ways of communication with constituency:

Facebook predominantly

Organizational objectives and key programs:

Our organizational objectives are:

  • To provide better knowledge and understanding to CML patients.
  • To provide a friendly safe helpful community to CML patients.
  • To provide better access to treatment.
  • Better access to PCR testing.
  • Better TFR information.

Our key programs are:

  • Improvement of knowledge.
  • Covid understanding.
  • Understanding of a CML diagnosis and test results etc.
  • TFR .
  • Meetings both virtual and when able physical.

Board of Directors:

3

Year of establishment:

2011

Year of becoming a CML Member:

2012


 
   
 

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