CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
Germany: Elternverein für Kinder mit CML e.V.
CONTACT INFORMATION:
Mailing/Postal Address:
Elternverein für Kinder mit CML e.V.
Kopernikusstr. 16
58239 Schwerte
GERMANY
Telephone: +49 1578 569 3494
Facsimile: none
Website: http://www.cml-bei-kindern.de
Email:
KEY CONTACTS:
Name: Mr. Ullrich Duckstein & Mrs. Claudia Duckstein
Position: President & Vice-president
Email:
ORGANIZATIONAL OBJECTIVES:
Information and support
BRIEF DESCRIPTION OF ORGANIZATION:
Patient organization for families with a child (under the age of 18) suffering from CML
NUMBER OF MEMBERS:
40 (Januar 2015)
COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:
Germany
Have you been diagnosed with chronic myeloid leukaemia (#CML)?
@cmlnet are still looking for CML patients who are… twitter.com/i/web/status/1…
Retweeted Sunday, 15 July 2018
MPE has edited two toolkits in order to help patient organisation to build capacity in several areas of interest of… twitter.com/i/web/status/1…
Retweeted Friday, 13 July 2018
Retweeted CML AdvocatesNetwork (@cmlnet):
1,000 ! 1,000 ! This is our target for the #TFR4CML study and we are cl… twitter.com/i/web/status/1…
Retweeted Friday, 13 July 2018