CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
Germany: Elternverein für Kinder mit CML e.V.
CONTACT INFORMATION:
Mailing/Postal Address:
Elternverein für Kinder mit CML e.V.
Kopernikusstr. 16
58239 Schwerte
GERMANY
Telephone: +49 1578 569 3494
Facsimile: none
Website: http://www.cml-bei-kindern.de
Email:
KEY CONTACTS:
Name: Mr. Ullrich Duckstein & Mrs. Claudia Duckstein
Position: President & Vice-president
Email:
ORGANIZATIONAL OBJECTIVES:
Information and support
BRIEF DESCRIPTION OF ORGANIZATION:
Patient organization for families with a child (under the age of 18) suffering from CML
NUMBER OF MEMBERS:
40 (Januar 2015)
COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:
Germany
Why drugs aren't enough: People living with CML tell it like it is
youtube.com/watch?v=PBx5nE…
@cmlnet @UHN… twitter.com/i/web/status/1…
Retweeted Monday, 18 June 2018
#EHA23 is over now, but some more real work is starting for the patient representatives. The first ever #HEMCAB i.e… twitter.com/i/web/status/1…
Retweeted Sunday, 17 June 2018
The European Hematology Association annual congress #EHA23 has finished today. More information will be available v… twitter.com/i/web/status/1…