CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Germany: German Leukemia and Lymhoma Aid (DLH, Deutsche Leukämie- und Lymphom-Hilfe e.V.)

Contact address:

Thomas-Mann-Str.40 D-53111 Bonn
Germany

Telephone: +4922833889200

Website: https://leukaemie-hilfe.de
Email: info@leukaemie-hilfe.de

Facebook: www.facebook.com/dlhbonn 

Key contacts:

Dr. Ulrike Holtkamp - CEO
Email: r.goebel@leukaemie-hilfe.de
Phone: +22833889200

Rainer Göbel - Chairman
Email: gail.sperling@cmlbf.org

Brief description of organization:

Federal Association of self-help groups for adults with hematological diseases, mainly hematological malignancies.

Audience/Constituency:

Adults with hematological diseases, mainly hematological malignancies

Ways of communication with constituency:

Telephone, E-Mail, Website, Social Media.

Organizational objectives and key programs:

Our organizational objectives are:

  • Help
  • Information
  • Advocacy
  • Support of self-help groups

Our key programs are:

  • Brochures
  • Fact sheets
  • Magazine
  • Patient Education Seminars and Congresses
  • Committee Work

Board of Directors:

6

Year of establishment:

1995

Members:

267


 
   
 

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