CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Netherlands: Stichting Hematon

Contact address:

Postbus 8152
Utrecht
Utrecht 3503 RD
Nederland

Telephone: +307603460

Website: https://www.hematon.nl/
Email: secretariaat@hematon.nl

Facebook: https://www.facebook.com/hematon.nl
Twitter: https://twitter.com/HematonNL
LinkedIn: https://linkedin.com/company/stichtinghematon
Youtube: https://www.youtube.com/channel/UCey34nrF9MphbcQfyf6V5NQ

Key contacts:

Monique Wienen - Hematon
Email: monique.wienen@hematon.nl
Mobile: +648267539

Jan Mol - Member of the board and chairman commission advocacy
Email: jan.mol@hematon.nl
Mobile: +310307603460

Brief description of organization:

Hematon is the patient organization for patients with blood or lymph node cancer and for those who have undergone a stem cell transplant for this purpose. Hematon stands for more healing and a better quality of life. We believe it is important that patients are able to participate in society again. In addition, we draw attention to prevention and palliative care.

Audience/Constituency:

Adult patients with haemato-oncological disorders.

Ways of communication with constituency:

Lectures in hospital and community center;
Hematon magazine;
National and regional meetings;
Telephone and mail contacts, FB and other social media;
Website, webinars, and surveys.

Organizational objectives and key programs:

Our organizational objectives are:

  • Knowledge.
  • Sharing information.
  • Advocacy.
  • Meet fellow sufferers.

Our key programs are:

  • The "specialist and patient, deciding together" project.
  • Development project the "best care". This means that diagnostics, treatment, aftercare, and palliative care are performed according to the latest insights by an experienced and specialized team of care providers.
  • The "specialist and patient, deciding together" project.
  • Cancer and Work Development of the guideline on cancer and work with the aim of preventing people who are or have been treated for cancer from participating in work to the extent that they are able. This means that people with cancer must be helped to find suitable work.
  • The Development of tools that support communication with low-literacy patients. It concerns so-called talking cards. These cards help nurses to explain different types of Cancer to people who do not (yet) have a good command of the Dutch language. They have an adapted language level and are provided with clear illustrations.

Board of Directors:

8

Year of establishment:

2000

Year of becoming a CML Member:

2001

Members:

250+


 
   
 

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