CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Portugal: Associação Portuguesa contra a Leucemia

Contact address:

Rua Nunes claro n8c
Lisbon
Lisbon 1000-209
Portugal

Telephone: +351213422205

Website: www.apcl.pt
Email: geral@apcl.pt

Facebook: https://m.facebook.com/AssociacaoPortuguesaContraLeucemia/?locale2=pt_PT
Instagram: apcleucemia

Key contacts:

Carlos Horta Costa - Vice-President
Email: chc@apcl.pt
Phone: +351213422205
Mobile:+351913461547

Lara Baptista Cunha - Executive Assistant
Email: laracunha@apcl.pt
Phone: +351213422205
Mobile: +351913461547

Brief description of organization:

It is therefore APCL’s mission to contribute, at a national level, to increase the effectiveness of the treatment of Leukaemia and other related haematological neoplasms.

Our first major goal was to contribute to the promotion of the "bone marrow donor register", very important for searching for compatible donors who need transplants. We have invested about one million euros, and together with the Portuguese Institute of Blood and Transplantation, today the register of Portuguese bone marrow donors is, in relative terms, the second largest in Europe and the third-largest in the World.

We have also invested in Scientific Research, in partnership with the Pharmaceutical Industry, and in supporting financially deprived hemato-oncological patients and relatives.

Our main goal for this year is to build the first support home for less-well-off hemato-oncological patients and family members.

Audience/Constituency:

Patients, caregivers, doctors, nurses, and other health care professionals.

Ways of communication with constituency:

Website
Instagram
Facebook
Communication agency

Organizational objectives and key programs:

Our organizational objectives are:

  • Social and financial support for patients and families;
  • Scientific Research;
  • Increase patients literacy;
  • Support groups for patients and caregivers;
  • Be an active agent next to the authorities, defending the patient's interests.

Our key programs are:

  • APCL CARES;
  • Scientific Research - 2;
  • Grants for 2021 Webinars ;
  • House “ Porto Seguro”;
  • Support Groups.

Board of Directors:

5

Year of establishment:

2002

Year of becoming a CML Member:

2012

Members:

5


 
   
 

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