CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Switzerland: SFK – Stiftung zur Förderung der Knochenmarktransplantation = Foundation for Advancement of Bone Marrow Transplantation

Contact address:

Witikonerstrasse 37
CH-8032 Zürich
Switzerland

Telephone: +41443830400

Website: www.knochenmark.ch
Email: info@knochenmark.ch

Key contacts:

PD Dr. med. Jeroen S. Goede - President of the Foundation Board
Email: info@knochenmark.ch
Phone: +41443830400

Annette Goede - Secretary, office manager
Email: info@knochenmark.ch
Phone: +41765673669

Brief description of organization:

In 1994 Candy Heberlein founded the SFK-Foundation after having experienced losses in her family. More and more patients approached her to seek advice. It became evident that we have to move closer to the patients, unite them in their region. Thus she formed patient groups in seven cities/regions of Switzerland. Each group assembles monthly. Over the past years, she was able to shape a stable network for leukaemia- and myeloma patients. After the death of Candy Heberlein in 2021 the board of the Foundation will continue her life’s work.

Audience/Constituency:

Patients with blood stem cell diseases and their relatives.

Organizational objectives and key programs:

Our organizational objectives are:

  • Providing patients afflicted with cancer in bone marrow (as CML) with information.
  • Monthly meeting of self-help groups (due to COVID at the moment only “online”.) Annual gatherings of all patient groups in summer and others around Christmas (400 patients and their partners) if the COVID-19 situation allows it.
  • Publication of information brochures. In the future also available online Every two years: promotion of research projects by an awarding prize

Our key programs are:

  • Monthly personal meeting of patient groups (at the moment only “online”
  • Medical News on Website

Board of Directors:

7

Year of establishment:

1994

Year of becoming a CML Member:

2012

Members:

400


Heberlein, Candy Community Builder Avatar   10.02.2011 (17:30:44)
development Yes No The number of patients in my SOS-patient groups has more than doubled.
At the annual fairytale theatre on 9th of January 2011 I welcomed 431 little and grown guests, living with cancer.
As every year, on 25th of June the successfuly transplanted Ex-patients will be united. July 2nd, I shall receive the patients with cancer in the bone marrow, as every year. The patient groups in seven cities, which I take care of, had losses to mourn but firmly stand by each other, in the conviction that empathy is our strength to deal with the disease.Love to all from Candy in Switzerland
 
Candy Heberlein Community Builder Avatar   04.09.2011 (17:18:53)
Awareness Day Yes No Awareness about patients living with CML takes place time and again in articles in the newspapers. As my seven patient groups will now celebrate their tenth birthday, we will find attention in the media.
Not only ONE DAY but ALL THE TIME!
 
 
   
 

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