CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Spain: Pacientes LMC

Contact address:

Rambla del Celler, 55 1o 3a
Sant Cugat del Vallès
Barcelona / Catalunya 8172
Spain

Telephone: +34669004790

Email: pacienteslmc@gmail.com

Facebook: https://www.facebook.com/groups/LMCES
Twitter: https://twitter.com/LMC_PACIENTES

Key contacts:

Toni Montserrat - Cofounder - Coordinator
Email: pacienteslmc@gmail.com
Mobile: +34669004790

Brief description of organization:

We are a small and still "young" group of patients, created in mid-2016 and officially registered in January 2017. Our main objectives are:

- Participate in initiatives of public recognition of the needs of CML patients.

- Defend the rights of patients (due to side effects of the disease itself or the medication in front of the Medical Courts, or by an adequate pharmaceutical prescription and not conditioned by economic issues).

- Participate in the definition of the Quality of Life policies of chronic patients (mainly Cancer)

- To collaborate with the Health Administrations in the elaboration of policies of social and medical support.

We have already developed an international survey of patients to patients:

Https://goo.gl/O78gg6 (also available in English: https://goo.gl/YuFYVi) and we want to continue collaborating and learning.

And with a very clear code of conduct:

- Always be guided by ethics and objective criteria marked by CML patients and never by industry or other people's estates.

To seek positive and useful results for the CML patient community, without seeking profit in any case.

Organizational objectives and key programs:

Our organizational objectives are:

  • Participate in initiatives of public recognition of the needs of CML patients.
  • Defend the rights of patients (due to side effects of the disease itself or the medication in front of the Medical Courts, or by an adequate pharmaceutical prescription and not conditioned by economic issues).
  • Participate in the definition of the Quality of Life policies of chronic patients (mainly Cancer).
  • To collaborate with the Health Administrations in the elaboration of policies of social and medical support. We have already developed an international survey of patients to patients: Https://goo.gl/O78gg6 (also available in English: https://goo.gl/YuFYVi) and we want to continue collaborating and learning.
  • And with a very clear code of conduct: - Always be guided by ethics and objective criteria marked by CML patients and never by industry or other people's estates. To seek positive and useful results for the CML patient community, without seeking profit in any case.

Our key programs are:

  • Objectives.

Board of Directors:

2

Year of establishment:

2017

Year of becoming a CML Member:

2017

Members:

64


 
   
 

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