CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Indonesia: Indonesian CML & GIST Community (ELGEKA Indonesia)

Contact address:

SARINAH BUILDING 9TH FLOOR.
M. H THAMRIN NO. 11 STREET
JAKARTA
DKI Jakarta 10350
INDONESIA

Telephone: +6282218007591

Website: www.elgeka.or.id
Email: indonesia.elgeka@gmail.com

Twitter: @elgeka08
Instagram: @elgekajabar

Key contacts:

Andrian Rakhmatsyah - Secretary General
Email: andrian.rakhmatsyah@gmail.com
Phone: +6282218007591

Brief description of organization:

The place for all patients with Chronic Myeloid Leukemia (CML) & Gastrointestinal Strumor Tumor (GIST) and caregiver both to the patient or the diseases

Unique cancer support groups in Indonesia

Established on June 15, 2006, in Jakarta

Founded by GIPAP Patients

Initiated by Prof. Dr. Arry Harryanto Reksodiputro, dr., Sp.PD, KHOM as chairman of The Indonesian Society of Hematology Medical Oncology (ISHMO) which has a very high awareness of patients, and

Fully supported by The Governor of Jakarta, Indonesian Cancer Foundation branch of Jakarta Province, and Novartis Indonesia

Currently, have branches such as Medan, Palembang, Padang, Jakarta, Bandung, Semarang, Purwokerto, Solo, Yogyakarta, Surabaya, Malang, Denpasar, Banjarmasin, Makassar, Palu, Manado, Papua.

Audience/Constituency:

CML and GIST Patients, Caregiver.

Ways of communication with constituency:

Social Media (WhatsApp, Offline/Online Meeting.

Organizational objectives and key programs:

Our organizational objectives are:

  • Helping patients with ease to access to treatments.
  • Improve awareness and knowledge of CML and GIST and the importance of health to all Patients and disseminate to the general public on matters related to the disease and the treatment of CML and GIST.
  • Develop and Enhance the harmonious relationships between healthcare professionals, fellow Patients, families and relatives, Governments, and similar patient support groups both Nationally and internationally.

Our key programs are:

  • Education;
  • Awareness;
  • Social Gathering (Arisan).

Board of Directors:

3

Year of establishment:

2006

Year of becoming a CML Member:

2015

Members:

250+


 
   
 

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