CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
New Zealand: Leukaemia & Blood Foundation
CONTACT INFORMATION:
P O Box 99182Newmarket Auckland 1149
New Zealand
Telephone of organisation: +64 9 638 3556
Fax of organisation: +64 9 638 3557
E-Mail:
KEY CONTACT:
Pru EtcheverryExecutive Director
BRIEF DESCRIPTION OF ORGANIZATION:
The Leukaemia & Blood Foundation (LBF) is in its 32nd year in New Zealand and is this only organisation in the country dedicated solely to the cure and care of patients and families living with leukaemia, lymphoma, myeloma and related blood conditions. We have four Patient Support Coordinators who are all haematology specialised registered nurses. With a vision to cure and a mission to care, our aim is to improve the quality of life for people living with this diseases.KEY INITIATIVES:
- PATIENT SUPPORT - based on individual need
- RESEARCH
- INFORMATION/EDUCATION
- AWARENESS PROGRAMMES
- ADVOCACY
Check our global database run by patients for #patients with 51 current #CML #clinicaltrials which have been initia… twitter.com/i/web/status/9…
“When looking at statistics, it is important to remember that we are not talking about decimal points on a graph, b… twitter.com/i/web/status/9…
Retweeted Thursday, 24 May 2018
From 26 April “Sprycel is indicated for the treatment of paediatric patients with: newly diagnosed Ph+ CML in chron… twitter.com/i/web/status/9…
Retweeted Saturday, 19 May 2018