CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Canada: CML Society of Canada

Contact address:

103 Sussex Drive, Unit 13,
Beaconsfield, Quebec, H9W 6C7
Canada

Telephone: +5142395488

Website: Www.cmlsociety.org
Email: info@cmlsociety.org

Facebook: http://www.facebook.com/pages/The-CML-Society-of-Canada/374794626872
Twitter: @cmlsociety
LinkedIn: https://www.linkedin.com/company/the-cml-society-of-canada/?viewAsMember=true

Key contacts:

Cheryl-Anne Simoneau - President/Founder         
Email: Cheryl.simoneau@cmlsociety.org
Mobile: +48600221275

Brief description of organization:

Established in 2006, the CML (chronic myelogenous leukemia) Society of Canada provides support, education and information on CML, current and emerging treatments and research initiatives for people living with CML and their families. The mission of the CML Society is to help reduce suffering and improve care and the quality of life of CML patients.

  • Treatment of CML has drastically extended survival with the advent of targeted tyrosine kinase inhibitors (TKI). The CML Society of Canada, acts as the eyes, ears and voice of its CML community, working to change the treatment paradigm as well as the course of this disease while supporting its constituents.
  • The CML Society of Canada also supports organizations in their effort into finding a cure for CML.

Audience/Constituency:

CML Patients and their families.

Ways of communication with constituency:

Emails, Zoom, in-person events (in non-pandemic times)

Organizational objectives and key programs:

Our organizational objectives are:

  • Canada has universal healthcare, but it does not include pharmaceuticals. Our main objective is to ensure that Canadians get access to the National Pharmacare program.
  • Educate patients and non-patients about CMLs.

Our key programs are:

  • Teaching patients how to advocate for themselves
  • Teaching patients how to communicate with provincial and federal policymakers.

Board of Directors:

3

Year of establishment:

2006

Year of becoming a CML Member:

2017

Members:

3500

 

 


 
   
 

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