CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

USA: The National CML Society

Contact address:

130 Inverness Plaza #307
Birmingham
Alabama 35242
United States

Phone: +18774312573

Website address: Http://www.nationalcmlsocociety.org
E-Mail: info@nationalcmlsociety.org

Facebook: facebook.com/thenationalcmlsociety
Twitter: @NCMLS or twitter.com/ncmls

Key contacts:

Greg Stephens - Founder/Executive Director
E-mail: gstephens@nationalcmlsociety.org

Jen Schwarz - Community Development Director
E-mail: jschwarz@nationalcmlsociety.org

Brief description of organization:

The National CML Society was created by and for patients and their families in order to provide a centralized hub of information for this rare form of leukemia.

Founded in 2007 as Carolyn's Hope, this organization quickly spread beyond the confines of a local work to address the real concerns faced by the CML community nationwide. In December 2009, the organization became The National CML Society (NCMLS), serving the needs of the CML community in the United States and its Territories.

The National CML Society is governed by a Board of Directors, a Medical Advisory Board, and a Patient/Caregiver Advisory Board. Together, these groups work to ensure the ongoing activities of the organization and that it adheres to its goals and objectives.

Audience/Constituency:

CML Patients, Carers & Family Members, Medical Professionals and other stakeholders.

Ways of communication with constituency:

Website, social media, phone, teleconference, video conferencing, Zoom, email, virtual and ground-based support groups, one-to-one support, events, conferences, and more.

Organizational objectives and key programs:

Our organizational objectives are:

  • One on one support and guidance for the newly diagnosed
  • Regional educational opportunities
  • CML Specialist Directory
  • Nationwide network of ground based support groups

Our key programs are:

  • CML Connection
  • One-to-One Support
  • Assistance for Newly Diagnosed

Board of Directors:

5

Year of establishment:

2007

Year of becoming a CML Member:

2010

Members

250+


ted cannon Community Builder Avatar   11.10.2011 (17:56:27)
cml support groups Yes No looking for support groups on or near cape cod MA
 
Dee Zaleta Community Builder Avatar   05.12.2011 (17:16:01)
Daughter with CMD Yes No My daughter who is 35 was just recently diagnosed with CML. I have many questions, but dealing with it one day at a time.

THank you,

Dee
 
Alana Valencia Community Builder Avatar   15.12.2011 (02:08:09)
Location of a support group Yes No I am 2wks into my diganosis and treatment with the drug Gleevec, Looking for a support group here in Dallas Texas
 
Jan Geissler Community Builder Avatar   15.12.2011 (11:03:44)
CML Connection in the USA Yes No Dear friends

you can find identify groups in the USA using the "CML Connection" resource of the National CML Socity, see http://www.nationalcmlsociety.org/what-we-do/cml-connection

Best regards
Jan
 
 
   
 

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