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CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

Canada: CML ZERO CLUB

CONTACT INFORMATION:

67 Shoreham Avenue Ottawa, Ontario
Canada

Telephone of organisation: +1-613-726-1117
Fax of organisation: +1-613-282-4801
E-Mail:

KEY CONTACT:

Zavie Miller Creator of the Zavie's Zero Club.

BRIEF DESCRIPTION OF ORGANIZATION:

A Zero Club number is assigned to each patient that reaches CCR in their CML treatment. I started assigning Zero Club numbers the day I took my first dose of STI571 (Gleevec) on March 29, 2001 as part of the expanded access trial at OHSU in Portland, Oregon. Six months later I became # 102 in my own Zero Club. I consider myself truly blessed.

KEY OBJECTIVES:

To assist CML patients with their journey on their CML trip. This includes locating a CML specialist in their area, pointing the patient to organizations that provide free medication for their CML, moderating an on-line chat on a weekly basis, reporting new discoveries to the on-line support groups, organizing patient meetings in Ottawa, Florida and other parts of the world that I travel to.

NUMBER OF PATIENTS IN THE ZERO CLUB:

1340 (July 2010)

 
   
 

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