CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Argentina: ALMA - Asociación Leucemia Mieloide Argentina

Contact address:

Corrientes Av 5479, 4th floor.
Ciudad Autónoma de Buenos Aires
Buenos Aires 1414
Argentina

Phone +5491132077023

Website address: http://asociacionalma.org.ar/
E-Mail: info@asociacionalma.org.ar

Facebook: https://www.facebook.com/asociacion.mieloideargentina
Twitter: https://twitter.com/asociacionalma
Linkedin: https://www.linkedin.com/in/asociaci%C3%B3n-alma-b1702541/
Instagram: https://www.instagram.com/asociacion_alma/

Key contacts:

Fernando Nicolás Piotrowski - Executive Director
E-mail: direccion@asociacionalma.org.ar
Phone: +5491132077023

Brief description of organization:

ALMA is a patient organization whose mission is to "provide emotional and practical support to leukemia patients" to fulfill our mission we develop different programs of which the main ones are: Comprehensive Patient Education (different professionals provide workshops on diagnosis, types of treatments, monitoring studies, adverse effects management looking for an expert patient); Spreading Life: (we hold patient meetings in different cities of the country, forming ALMA patient groups; Emotional containment coordinated by our psycho-oncologists we give the professional support that patients require; Advocacy defends patients' right in relation to their treatments and studies.

Audience/Constituency

Patients with the 4 main types of leukemia, relatives, and caregivers. Our reach is national.

Ways of communication with constituency

Direct telephone contact, WhatsApp, mailing, social networks, website, press releases, and face-to-face meetings.

Organizational objectives and key programs:

Our organizational objectives are:

  • Give and receive emotional and practical support to patients with leukemia.
  • Provide education programs with professionals from various areas.
  • Defend the right of patients to receive the best treatments.
  • Exchange and receive information about the different treatment options.

Our key programs are:

  • With you.
  • Empowering patients.
  • Spreading Life.
  • Emotional Containment.

Board of Directors:

6

Year of establishment: 

2006

Year of becoming a CML Member:

2011

Members

165


 
   
 

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