CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
Argentina: ALMA - Asociación Leucemia Mieloide Argentina
Contact address:
Avenida de Mayo 1161 4° piso,
dpto. 8 Ciudad Autónoma de Buenos Aires C.P. 1085
República Argentina.
Website address: http://asociacionalma.wordpress.com/
E-Mail:
Key contacts:
Fernando Piotrowski - President
Viviana Olivarez - Secretary
Brief description of organisation:
ALMA (Asociación de Leucemia Mieloide Argentina) is a non-profit organization that was approved by Argentina's General Inspection of Justice with the number 000465.
Those of us who are a part of ALMA's core are mostly CML patients who met during patient meetings organized by The Max Foundation's MaxStation in Argentina, and in the hallways of different hospitals and clinics.
Key objectives and key initiatives:
Our key objectives are:
- To give and receive emotional and practical support to CML patients and caregivers.
- To exchange and receive information about the different treatment options available to CML patients.
- To organize educational presentations by professionals from different specialties.
- To advocate for the right of CML patients to receive the best treatment for their condition.
- To ensure patient's access to reimbursements and coverage established by the law.
- To facilitate access to local and global resources.
- To promote patients' rights.
- To provide information and counseling to any person who needs it.
Members
165 (June 2011)
Retweeted Thursday, 24 May 2018
Retweeted Saturday, 19 May 2018