CML Advocates Network

Contact address:

Corrientes Av 5479, 4th floor.
Ciudad Autónoma de Buenos Aires
Buenos Aires 1414
Argentina

Phone +5491132077023

Website address: http://asociacionalma.org.ar/
E-Mail: info@asociacionalma.org.ar

Facebook: https://www.facebook.com/asociacion.mieloideargentina
Twitter: https://twitter.com/asociacionalma
Linkedin: https://www.linkedin.com/in/asociaci%C3%B3n-alma-b1702541/
Instagram: https://www.instagram.com/asociacion_alma/

Key contacts:

Fernando Nicolás Piotrowski - Executive Director
E-mail: direccion@asociacionalma.org.ar
Phone: +5491132077023

Brief description of organization:

ALMA is a patient organization whose mission is to "provide emotional and practical support to leukemia patients" to fulfill our mission we develop different programs of which the main ones are: Comprehensive Patient Education (different professionals provide workshops on diagnosis, types of treatments, monitoring studies, adverse effects management looking for an expert patient); Spreading Life: (we hold patient meetings in different cities of the country, forming ALMA patient groups; Emotional containment coordinated by our psycho-oncologists we give the professional support that patients require; Advocacy defends patients' right in relation to their treatments and studies.

Audience/Constituency

Patients with the 4 main types of leukemia, relatives, and caregivers. Our reach is national.

Ways of communication with constituency

Direct telephone contact, WhatsApp, mailing, social networks, website, press releases, and face-to-face meetings.

Organizational objectives and key programs:

Our organizational objectives are:

• Give and receive emotional and practical support to patients with leukemia.
• Provide education programs with professionals from various areas.
• Defend the right of patients to receive the best treatments.
• Exchange and receive information about the different treatment options.

Our key programs are:

• With you.
• Empowering patients.
• Spreading Life.
• Emotional Containment.

Board of Directors:

6

Year of establishment: 

2006

Year of becoming a CML Member:

2011

Members

165