CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
CML Patient Organisations
Colombia: Fundación Colombiana de Leucemia y Linfoma (FCL)
Contact address:
Carrera 49A 93 - 06 piso 2 La Castellana
Bogotá
Bogotá, D.C 111121
Colombia
Telephone: +5717032394
Website: https://www.funleucemialinfoma.org/
Email: presidencia@funleucemialinfoma.org
Facebook: https://www.facebook.com/funcolombiana
Twitter: @LeucemiaLinfoma
Instagram: @ffuncolombiana
Key contacts:
Yolima Méndez - President
Email: presidencia@funleucemialinfoma.org
Phone: +5717032394
Mobile: +5713108675115
Brief description of organization:
We are a none profit organization founded in 2007, staffed by professionals committed to providing psychosocial support, information, advocacy and advisory to children, youngsters with cancer and adults with leukemia, lymphoma, myeloma and other hemato-oncological diseases, as well as to their caregivers and families, in all related to their diagnosis, self-care and health system.
To achieve our aims we carry out awareness campaigns, congresses, educational days, support groups, research studies, and advocacy, among other activities. We work in collaboration with several health care centers in the cities of Bogotá, Cartagena, and other cities in the country.
Each year we impact the lives of nearly 400 children with cancer and their families, as well as 1,500 adults with leukemia, lymphoma, or myeloma.
Funcolombiana promotes a philosophy of love for life and re significance of the cancer experience. We are Life Inspirers.
Organizational objectives and key programs:
Our organizational objectives are:
- Provide information and education to patients and caregivers in relation to their diagnosis, self-care, and health system.
- Give emotional support to the patient and their caregiver, through individual strategies and support groups.
- Identify access barriers to the health system and mobilize actions to achieve greater opportunity in health care.
- Promote awareness campaigns on the importance of timely diagnosis.
- Develop research studies to provide knowledge about the patient's experience.
Our key programs are:
- Patient and caregiver education program.
- Psychosocial support program.
- Line of research.
- The annual awareness campaign "What runs through my veins".
- Childhood and youth cancer program.
Board of Directors:
8
Year of establishment:
2007
Year of becoming a CML Member:
2009
Members:
More than 1.200 nationwide
Muchas gracias
Anyela Benavides
Ante todo disculpa las demoras.
En Colombia desafortunadame nte no poseemos ni registro de donantes ni bancos de médula osea. Luego de descartar que tengas familiares compatibles para trasplante, al médico tratante le corresponde hacer la búsqueda en bancos internacionales .
Me gustaría ponerme en contacto contigo. No dudes en contactarte con nosotros a los números de contacto que aparecen aquí o escribirnos al correo de la fundación.
Para nosotros es un palcer poderte orientar y apoyar en el proceso de enfermedad y tratamiento.