CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Colombia: Fundación Esperanza Viva (Hope Alive Foundation)

Contact address:

Calle 48 # 26-26
Bucaramanga
Santander 680001
Colombia

Telephone: +573102825020

Website: www.fundacionesperanzaviva.blogspot.com
Email: funesperanzaviva@yahoo.es

Facebook: @fundacion.viva Fundación Esperanza Viva
Twitter: @fuesperanzaviva
Instagram: @fuesperanzaviva

Key contacts:

NURY ESPERANZA VILLALBA SUAREZ -CEO
Email: funesperanzaviva@yahoo.es
Phone:+576960769
Mobile: +573102825020

LINA MARGARITA CONDE - PSYCHOLOGY
Email: funesperanzaviva@yahoo.es
Mobile: +576960769
Mobile: +573165793142

Brief description of organization:

Our foundation is a not-for-profit organization legally established in march 2007, whose objectives are to advise patients and relatives with haematological and oncological patologies.

Organizational objectives and key programs

We work in four main areas: scientific advisory, legal advocacy, emotional support, and recreational activities.

  • Scientific advisory - We provide information through talks and printed materials about the disease in a simple language.
  • Legal advocacy - To help the patient to demand their rights to the insurance companies and the state health system.
  • Emotional Support - Through hearing, understanding, and advicing we help patients to cope with their disease.
  • Recreational Activities - We offer leisure activities to help build strong bonds between patients and caregivers.
  • "Knowing my rights and my health system"
  • "Emotional self-control"
  • "Information and Educational activities directed to schools to which sick children attend"
  • "Cancer survivors" helping patients and caregivers

Board of Directors:

5

Year of establishment:

2007

Members

78 (as of 2007-10-08)

Additional information

The whole range of our services is entirely free.






 
   
 

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