CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Bolivia: Celebrando la Vida. Asociación de Lucha Contra La Leucemia

Contact address:

Avenida Mutualista, Calle 23, No 3025
Santa Cruz de la Sierra, SCZ, Bolivia

Phone +591 70029100

Website address: www.facebook.com/celebrandolavidaScz/
E-Mail:

Key contacts:

Brenda Hurtado Wills (President)
Hilda Paz Ribera (Secretary of Conseil)

Brief description of organisation:

Non-for Profit Organization (NGO) representing patients of the CML (LMC) and families of patients affected, mainly in Santa Cruz Department, but including affected patients in the whole country of Bolivia - South America.
Mostly managed in Spanish also cover indigenous communities in the Highlands and Lowlands of Bolivia.

Key objectives and key initiatives:

Our key objectives are:

  • Support and companion to new and existing patients affected by the CML since the initial diagnostic of the disease.
  • Psychological and emotional support to the affected both patients and relatives.
  • Public Awareness and public campaigns about the CML and another kind of similar diseases.
  • Work in coordination and support with the Max Foundation at Bolivia.
  • Works in Public Health policies in support of the CML affected communities and their relatives.
  • Social control of the CML support health institutions, mainly governmental and the availability of medicines for the CML community; works with the Customs and Health authorities and also the medical, health community in support of all patients affected.
  • All others activities related to the CML and the people that live with this health condition.

Members

82 (February 2018)


 
   
 

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