CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

CML Patient Organisations

Uruguay: Asociación Uruguaya de Leucemia ASUL

CONTACT INFORMATION:

ASUL

Bulevar España, 968 Código Postal 11300

Tel.: +59894520118
Fax: +59894520118

E-Mail: 
Web: 

 

KEY CONTACT:

Gabriel Tirelli, Secretary

BRIEF DESCRIPTION OF ORGANIZATION:

Founded in 2006 by CML patients ( Chronic Myeloid Leukemia ) and their families, achieving legal entity in 2007.

KEY OBJECTIVES AND INITIATIVES OF YOUR ORGANISATION

The key goals of our organization are:

-      To be there at the moment a patient is diagnosed

-      To facilitate the creation of the bond physician-patient

-      To keep the patients informed about their duties and rights

-      To create a relationship between the physicians and the members of the organization

-      To become known by new physicians

-      To participate in training

-      To advocate for patients, in tandem with health authorities and proposing different changes

-      To organize activities with physicians and patients

-      To create networks in all Latin America

-      We created the network of oncologic groups in Uruguay, Gabriel being the vice-president of this organization. We now have 12 departments.

-      We are plenary members of Alianza Latina.

-      We participate in training by The Max Foundation.

-      We are founders of the Latin-American Coalition of Blood Diseases

-      We participate in GAPFA | Global Alliance for Patient Access

NUMBER OF MEMBERS:

114 registered


 
   
 

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