CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

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CML Patient Organisations

Panama: Asociación Panameña de Pacientes y Parientes con Enfermedades Hematológicas APPPEH

CONTACT INFORMATION:

Telephone: +50760139675

Email: apppeh@hotmail.com

Facebook: https://www.facebook.com/asociacionpacientes.hematologia/

Twitter: twitter.com/apppeh

 

KEY CONTACT:

Name: Faustina Díaz
Position: President and Legal Representative

Email: fdiazq@hotmail.com

ORGANIZATIONAL OBJECTIVES:

  • Influencing in the different public and private settings (hospital, media, health team,) nationwide to defend the rights of people with hematological diseases and to achieve better care and quality of life.
  • Expanding the team of collaborators: volunteers, patients, family members, doctors, nurses, health teams in general to advocate for the best comprehensive management and timely treatment of these diseases.
  • Generating funds that allow us to meet the expenses of the association and have the necessary equipment and thus provide better support to patients and relatives in their struggle.

BRIEF DESCRIPTION OF ORGANIZATION:

We are a non-profit association set up in 2005, due to the concern of a group of patients and family members worried about the growth of the population of patients with hematological diseases, the lack of medications and physical space of the hematology room of the Social Security Fund.

NUMBER OF MEMBERS:

305 (February 2020)

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

Panama


 
   
 

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