CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
CML Patient Organisations
Kenya: HENZO
Contact information
HENZO KENYA
Postal address
BOX 2621 – 00202 NAIROBI
Web: http://www.henzogipapkenya.or.ke
EMail: info@henzogipapkenya.or.ke
Key contact
Lucy MwangiSecretary
Brief description of organization
Henzo is a support group formed by patients diagnosed with CML and GIST who are on Glivec International Patients Assistance Program (GIPAP) in Kenya, caregivers and partners.
Key objectives and initiatives
To support and empower each other in order to improve the quality of life for cancer patients, survivors and families. Our strategic plan is organized into four goals derived from the WHO global strategies on cancer control, namely: to Prevent, Cure, Care and Manage. Goal I: Support: To establish support systems such as counselling and support groups for leukaemia & GIST patients, survivors and their families. Goal II: Information: To establish a coalition to mobilize resources for leukaemia & GIST as well as advocating for health concerns to be mainstreamed in relevant government and non-governmental agencies. Goal III: Research: To research the availability of resources for people diagnosed with leukaemia & GIST and identify existing information gaps and needs. Goal IV: Awareness: To design and implement awareness and training workshops and seminars based on information derived from the research.
Number of members or patients the organisation represents
202 (February 2011)
17.06.2015 (06:30:47)
Henzo Kenya has been my support group for the last 5 years. The group has been an advocate for CML and GIST patients medication. Through the tireless and determination of Henzo, the effort through the leadership of our Chairman, Mr. Ferdinand Mwangura, patients have been able to receive their medication in good time and any assistant they need. The support group has been making a following up on the patients and also creating awareness through seminars and cycling activities now and then. I believe Henzo is going far in making sure that the patients are well taken care of.
