CML Support Groups: Members of the CML Advocates Network
The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)
If your group is not listed here, please register. If details have changed, please contact us.
CML Patient Organisations
Nigeria: Maxcare Foundation Nigeria
Contact address:
Department of Haematology and Immunology, Obafemi Awolowo University Teaching Hospital
Ile- Ife
Osun State 220001
NIGERIA
Telephone: +2348037880111
Email: maxcarenigeria@yahoo.com
Facebook: Maxcare Nigeria
Twitter: @maxcareng
Instagram: maxcarenig
Key contacts:
Eunice Orekha - President
Email: maxcarenigeria@yahoo.com
Phone: +2348037880111
Chidi Akunnakwe - Lawyer
Email: chidijay@yahoo.com
Phone: +2348033154416
Brief description of organization:
MaxCare Nigeria is a CML support and advocacy group formed by patients who have CML and GIST in Nigeria. Our main goal is to provide support (emotional and health advice) for patients living with CML. Our group was formed in March 2011 and obtained legal registration in June 2014. Currently, we access Glivec and other 2nd/3rd generation Tyrosine Kinase Inhibitors (TKIs) FREE from the generous donations of Pharma companies led by Novartis through the Max Access Solutions (MAS) of The Max Foundation. All patients access these drugs from the coordinating facility located at the GIPAP center in the Department of Haematology and Immunology, Obafemi Awolowo University Teaching Hospitals Complex (OAUTHC), Ile-Ife, Osun State.
Audience/Constituency
The target audience is CML and GIST patients and their caregivers.
Ways of communication with constituency
Bi-annual meetings in March and September every year.
Also engage through social media chat groups (WhatsApp & Telegram), Twitter, Facebook, and Instagram.
Organizational objectives and key programs:
Our organizational objectives are:
- Provide useful information on the disease to reduce anxiety, shame, stigma, and fear of isolation;
- Provide peer support to newly diagnosed and existing patients;
- Advocate for the rights and welfare of members by linking patients to the best treatment available;
- Solicit support from Government to the challenges faced by CML patients in accessing therapy.
Our key programs are:
- Organize patient-centric initiatives aimed at empowering patients and caregivers about the disease.
- Development of a patient information booklet to keep patients informed and this is regularly updated.
- Participate in capacity-building training and initiatives eg. CML Horizons, Awareness campaigns eg World CML Day, etc.
Board of Directors:
6
Year of establishment:
2011
Year of becoming a CML Member:
2011
Members:
250
