The CML Horizons 2025 Hybrid Conference was a much-anticipated and successful gathering, bringing together a diverse community of participants. Over 100 attendees from 55 countries joined in person, while approximately 40 more participated virtually, broadening the event’s global reach and accessibility.
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DAY 1
During the morning sessions Regional meetings with vibrant discussions were held, where advocates shared updates, regional challenges, and priorities for the year ahead.
Followed by, parallel educational tracks helped ensure both new and experienced advocates got the most relevant information
- CML 101 – CML basics and understanding PCR results with Lisa Machado – PDF, Video
- CML 102 – TFR Education & Support and ELN Guidelines 2020 and NCCN Guidelines 2025 with Prof. Dragana Milojković – PDF, Video
In the afternoon we started with the official opening of CML Horizons 2024 that featured:
- Welcome from Adriana Covaciu – PDF, Video
- Opening by Rod Padua – PDF, Video
- CMLAN Update by Denis Costello – PDF, Video
- Minute of Silence with Giora Sharf – Video
After the official opening, we kicked off with the first Advocacy Session – workshop series focused on patient-centred care and shared decision-making. Participants divided in 3 groups dived into engaging breakout sessions:
- Patient Involvement in the Healthcare System with Cheryl-Anne Simoneau & Catherine Moura – Video
- Shared Decision-Making: How to Make It Work with Lisa Machado & Jeff Lipton – PDF, Video
- Peer Mentoring Programs with Nikki Yuill – Video
We continued with Advocacy Session 2: Enhancing Leadership, Collaboration, and Peer Support in Patient Organisations – a second round of workshops which tackled key topics such as:
- Building and Sustaining Patient Advocacy Organisations with Jan Geißler – PDF, Video
- Passing on the Torch of Leadership: Succession Planning and Avoiding Burnout with Catherine Moura – Video
- Expanding Disease Scope: When and how? with Jana Pelouchová & Elo Mapelu – PDF, Video
The day concluded with a powerful session on:
- A Journey to Hope: 25 Years of Doctors – Patients Perspectives on the Evolution of CML Treatment Moderated by Lisa Machado with Jeff Lipton & Brian Druker – Video
DAY 2
Day 2 of the CML Horizons 2025 conference was filled with insightful sessions, opportunities for advocacy and collaboration.
We began with Kathy Redmond presenting the CML AN Strategy, sharing progress to date and what lies ahead to strengthen our global impact. – PDF, Video
We continued with Medical Session 1: “Innovations in CML Treatment,” which offered cutting-edge insights from world leaders:
- New Drugs and Emerging Therapies for CML with Dragana Milojković – PDF, Video
- Combo Therapies with Franck Nicolini – PDF, Video
- Barriers to Cure with Brian Druker – PDF, Video
- Questions & Discussion: Dragana Milojković, Franck Nicolini, Brian Druker and Jeff Lipton – Video
We continued the morning with Advocacy Session 3 covering a range of Best practices in CML advocacy:
- Value Based Healthcare Becoming a Law – The CML Society of Canada, Cheryl Anne Simonea – PDF, Video
- CMy Guidelines Project – Hematon, Jenny Borst – PDF, Video
- Patient Representation in HTA process in Brazil – ABRALE, Luana Lima – PDF, Video
- Patient Support and Helpdesk – CML Tunisia, Nabil Belhassen – PDF, Video
- Patient Coaching Program – Associazione Italiana Pazienti LMC, Nicoletta Re & Michela Serramoglia – PDF, Video
- Cancer Education at Schools in Ibaraki Prefecture – Team CML @Japan, Chitose Akiyama – PDF, Video
The afternoon’s Medical Session 2 focused on Treatment-Free Remission (TFR) – Clinical Advances & Patient Impact). We explored:
- What’s new in TFR research with Franck Nicolini – PDF, Video
- Psychosocial Support during TFR journey with Barbara Meunier – PDF, Video
- Patient perspective on restarting treatment after TFR failure by Nigel Deekes – PDF, Video
- Debate: TFR or Quality of Life – What Matters Most in CML Today? with Jeff Lipton for TFR and Brian Druker for QoL – PDF, Video 1, Video 2
- Panel Discussion & Questions: Ways to improve TFR; increase number of patients and success rate. – Video
We closed the second day with Advocacy Session 4 on Quality of Life in CML:
- How do we incorporate Patient Experience Data (PED) into our advocacy work presented by Jan Geißler – PDF, Video
- Tools for Patient-Reported Outcomes (PROs)
- Patient Preference Study presented by Denis Costello – PDF, Video
- Introducing the New QoL Scale by Catherine Moura – PDF, Video
DAY 3
We began the final day of the conference with a powerful message from the 2025 CML Advocates Network Award recipient Dr. Andreas Hochhaus – an inspiring tribute to advocacy, commitment, and community impact. Their words reminded us why we gather each year: to learn, connect, and make a difference. – Video
The final Medical Session of the conference titled: Overcoming challenges to TKI treatment tackled some of the toughest issues in CML care:
- How to identify TKI-Related Side Effects: When is TKI Switching Needed? by Jeff Lipton – PDF, Video
- New Approaches to Overcome TKI Resistance with Dragana Milojković – PDF, Video
- Real-World Evidence in CML Treatment (Drug interactions & overcoming comorbidities) by Franck Nicolini – PDF, Video
- Pregnancy and challenges with TKI’s
by Ekaterina Chelysheva – PDF, Video - Question and discussion – Video
Moderated by Yigal Aviv, our final advocacy session 5 explored how AI tools can enhance the work we do every day. – PDF, Video
The conference closed with reflections from the regional meetings and heartfelt farewells. The Best Poster Award was announced by Giora Sharf recognizing outstanding work from the patient advocacy community. – Video
1st place CML Tunisia
2nd place KBDCA South Korea
2nd place Hematon Netherlands
3rd place Esperantra Peru
The CML Steering Committee 2025
This year’s HORIZON programme was governed by a global steering committee consisting of CML patient advocates from North America, Latin America, Asia and Pacific, Western Europe, Central and Eastern Europe & West Asia, Middle East and Africa. With Project Management led by Giora Sharf & Lidija Pecova. Thank you so much to all of you for your ongoing fantastic work leading to a very successful CML Horizons 2025!
- Giora Sharf, Co-founder of the CML Advocates Network – Director of Flute of Light, Israel
- Jan Geissler Co-founder of the CML Advocates NetworkChair of LeukaNET, Germany
- Jana Pelouchová Co-founder of the CML Advocates Network – President of Diagnoza Leukemie, Czech Republic
- Rod Padua, Chair of the CML Advocates Network President of Touched by Max, Philippines.
Region Asia-Pacific representative. - Jelena Cugurovic, CML Association of Serbia, Serbia.
Region Central and Eastern Europe & West Asia representative - Gerald Raymond Clements, CML Buster Foundation, USA
Region North America - Catherine Moura, CEO of Associação Brasileira de Linfoma e Leucemia, “ABRALE”, Brazil
Region Latin America representative - Eunice Orekha, President of Max Care Foundation, Nigeria
Region Middle East & Africa representative - Nigel Deekes
CML UK Facebook Group, United Kingdom Region
Region Western Europe Representative
Sponsorship Acknowledgement
We would like to thank the following organisations for providing unconditional educational funding. Without their support, this conference would not be possible:
- Novartis Oncology (Initiating Sponsor)
- Pfizer Oncology
- Incyte
- Takeda
- Terns Pharmaceuticals
- Enliven Therapeutics
- The Leukemia & Lymphoma Society
Highlights of the conference!
