CML Advocates Network

CML Advocacy: Learn. Share. Grow.
1-3 May 2015, Barcelona, Spain

From 1-3 May 2015, the CML Advocates Network welcomed 118 delegates (among them almost 30 newcomers) supporting patients and families affected by Chronic Myeloid Leukemia (CML) to its annual conference CML Horizons that this year was held in Barcelona (Spain). Delegates from 65 countries worldwide (Europe, North America, Asia, Africa, Middle East and Latin America) came to Barcelona to learn from medical experts, share best practice in patient advocacy and grow their organization’s capacity. Besides enlightening medical sessions and interesting panel discussions, for the first time an interactive poster session was held. Furthermore, at this year´s conference a new CML Horizons Steering Committee was elected.

CML Horizons is a fully community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. The annual conference is run by the CML Advocates Network, hosted by the non-profit, swiss-based and patient-driven "Leukemia Patient Advocates Foundation".

Presentations, photo gallery, video web streams and conference report are available now!

Click on "PDF" to see all presentations. If you wish to translate selected presentation, please contact Nicole at nicole@cmladvocates.net and ask for the powerpoint-file! This will make it easier for you to translate the presentation to the language of your choice.

To stream individual sessions click on "Web Stream" below. Alternatively, you can click on the following links where we have sorted all video streams by day:

Web Streams for Day 1 (Friday, 1 May 2015)

Web Streams for Day 2 (Saturday, 2 May 2015)

Web Streams for Day 3 (Sunday, 3 May 2015)

Please note that the speakers have authorized CML Advocates Network only to provide the PDFs on this website, but it is not allowed to upload the PDFs somewhere else! So if you want to share the slides, please do this by linking to this page or the files on this site! 

Welcome

• Welcome to Barcelona, by Giora Sharf (CML Advocates Network) and María Navarro (Spanish Patients' Forum)  -  PDF & Web Stream (Giora) / PDF & Web Stream (María)

Parallel pre-meetings

1. CML 101 (Pat Garcia-Gonzalez)  -  PDF & Web Stream
2. Patient involvement in CML research (Jan Geissler)  -  PDF - session was not recorded! No webstream available!

Medical Session #1: CML Update

• Overview CML 1st line, 2nd line, managing resistance (Michael Mauro)  -  PDF & Web Stream
• Managing CML in countries with limited resources (Hari Menon)  -  PDF & Web Stream
• Q&A with experts (Michael Mauro & Hari Menon) - Web Stream
  

Advocacy Session #1: Advocacy examples on access to treatment & care

• Access to therapies (Ananda Plate)  -  PDF & Web Stream
• Access to trials (Zhengchen Liu)  -  PDF & Web Stream
• Access programs (Pat Garcia-Gonzalez)  -  PDF & Web Stream
• Achieving reimbursement (Georges Sayde)  -  PDF & Web Stream

Elections 2015 – Presentations of candidates for the CML Horizons Steering Committee - PDF - Nomination Forms - Web Stream

Medical Session #2: Treatment-free remission: Opportunities and challenges

• Treatment-free remission, stop trials, predictors for stopping treatment (Andreas Hochhaus)  -  PDF & Web Stream
• The patient perspective on treatment-free remission, including support needs (Pat Elliott)  -  PDF & Web Stream
• Panel discussion: The psychology of stopping treatment (Pat Elliott + Michael Mauro + Andreas Hochhaus + Cristian Neves) - Web Stream
  

Advocacy Session #2: World CML Day Toolkit

• Introduction (Jan Geissler) - PDF & Web Stream
• Training & practical tips (Danielle Miller, ZN Consulting)  -  PDF part 1/4 - PDF part 2/4 - PDF part 3/4 - PDF part 4/4 & Web Stream
  

Medical Session #3: Living (long) with CML

• Long-term side effect profiles of CML treatments, cardiovascular & thrombotic events (Andreas Hochhaus)  -  PDF & Web Stream
• Managing CML in children and young adults (Frederic Millot)  -  PDF & Web Stream
• Panel discussion: What is different for adolescent patients with CML? (Cornelia Borowczak, Rod Padua, Cristian Neves, Frederic Millot, Andreas Hochhaus) - Web Stream
  

Advocacy Session #3: Marketplace of the regions - Interactive poster session

CML Horizons Steering Committee 2016-2017: Results of the elections - PDF

Advocacy-Session #4: Advocating on generics and fighting for quality of care

• Introduction: How are drugs approved and monitored? (Nicole Schröter)  -  PDF & Web Stream
• CML TKI register & Declaration on Generics (Jelena Čugurović)  -  PDF & Web Stream
• Debate: Going from fear to action – what can advocacy do? (Pat Garcia-Gonzalez, Sandra Shaw, Jelena Čugurović, Hari Menon) - Web Stream
  

Medical Session #4: Future outlook and future ways to do CML research

• Overview: Clinical Drug Development Process (Jan Geissler)  -  PDF & Web Stream
• Beyond TKIs - addressing different pathways (Arnon Nagler)  -  PDF & Web Stream
• Upcoming clinical trials (Michael Mauro)  -  PDF & Web Stream
• Summary: What is the role of CML patient groups in developing the future of CML treatment? (Giora Sharf) - PDF & Web Stream
  

CML Steering Committee

The programme has been governed by a global steering committee consisting of CML patient advocates from North America, Latin America, Asia, Europe, Middle East and Africa. The CML Steering Committee 2014-2015 was:

• Gail Sperling (USA, region North America)
• Bahija Gouimi (Morocco, elected representative region Africa & Middle East)
• Mina Daban (France, elected representative region Europe)
• Giora Sharf (Israel, co-founder & permanent member of the Steering Committee)
• Jan Geissler (Germany, co-founder & permanent member of the Steering Committee)
• Jana Pelouchová (Czech Republic, co-founder & permanent member of the Steering Committee)
• Pat Garcia-Gonzalez (USA, elected representative region Latin America)
• Zhengchen Liu (China, elected representative region Asia-Pacific)

The new CML Horizons Steering Committee elected during the CML Horizons 2015 conference and appointed for the period 2016-2017 consists of the following representatives:

• Gail Sperling (USA, elected representative region North America)
• Bahija Gouimi (Morocco, elected representative region Africa & Middle East)

• Rita O. Christensen (Denmark, elected representative region Western Europe)
• Jelena Cugurovic (Serbia, elected representative region Central and Eastern Europe & West Asia)
• Giora Sharf (Israel, co-founder & permanent member of the Steering Committee)
• Jan Geissler (Germany, co-founder & permanent member of the Steering Committee)
• Jana Pelouchová (Czech Republic, co-founder & permanent member of the Steering Committee)
• Pat Garcia-Gonzalez (USA, elected representative region Latin America)
• Rod Padua (Philippines, elected representative region Asia-Pacific)

For any questions regarding the conference, please contact Nicole Schröter, nicole@cmladvocates.net or the scientific coordinators Giora Sharf, giora@cmladvocates.net and Jan Geissler, jan@cmladvocates.net

Sponsorship Acknowledgement

We would like to thank the following organisations for providing unconditional educational funding. Without their support, this conference would not be possible:

• Novartis Oncology (Initiating platinum sponsor)
• Bristol-Myers Squibb (Gold Sponsor)
• Pfizer Oncology (Gold Sponsor)
• Ariad (Silver Sponsor)
• The Leukemia & Lymphoma Society (Bronze Sponsor)
• International CML Foundation (Bronze Sponsor)