CML Advocates Network Steering Committee 2021

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We are excited to formally welcome and introduce the three new members of the CML Advocates Network Steering Committee 2021:

  • Zack Pemberton-Whiteley, Chief Executive Officer of Leukaemia Care, United Kingdom. Region Western Europe Representative.
  • Eunice Orekha, President of Max Care Foundation, Nigeria. Region Middle East & Africa Representative.
  • Felipe Tapia, Vice President of Maxi Vida Association, Chile. Region Latin America Representative.

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ASH 2021 Annual Meeting

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The 63rd ASH Annual Meeting and Exposition organised by the American Society of Hematology will be presented at the Georgia World Congress Center in Atlanta, Georgia – and virtually – from December 11-14, 2021.

This year we will be attending this important meeting for the CML patient advocacy community to discover the newest advances in hematology, review many scientific abstracts highlighting updates on chronic myeloid leukemia and prepare a comprehensive report of of the most critical presentations on CML.

Read more about the agenda to be followed by the CML patient advocates. Please, note all times listed are in US Eastern Time (EST):

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In Memoriam of Trevor Steyn

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It is with great sadness that we share that our friend, colleague, and CML patient advocate Trevor Steyn passed away on 9th November 2021 at the age of 63.

CML Advocates Network loses a friend, a CML patient for over 32 years and also a very active patient advocate, leading the CML patient organisation CML SA founded in 2013 to offer up-to-date information, emotional support and advocacy on behalf of all CML patients in South Africa.

Trevor was a very smart person, someone who was very outspoken at our network meetings with very well reflected questions, and such a wonderful and caring individual. In words of our colleague Bahija Gouimi from AMAL, Morocco, “We lost a devoted leader and a great friend. I will really miss you calling me my dear Sister. Know that you're unforgettable. I will really miss you. I send my prayers and support to Delphine, your amazing wife and your family during this difficult time.

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In Memoriam of Euzebiusz Jan Dziwiński

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To the memory of our dearly departed friend. We will miss you with all our hearts. We may have lost you but your spirit lives on long after you’re gone.

It is with deep sadness that we inform the CML community about the passing of our friend, colleague, and CML patient advocate Euzebiusz Jan Dziwiński on 5th December 2021, at the age of 71.

CML Advocates Network loses a close friend who was also a very active patient advocate and member of the CML family from the outset of the global network.

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In Memoriam Professor Michele Baccarani

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We have learnt with deep sadness the passing away of Professor Michele Baccarani on 20th December 2021.

Dr. Baccarani was an outstanding renowned doctor, a great scientist, an excellent hematologist and one of the most important leaders on chronic myeloid leukemia worldwide.

He dedicated his life to research against leukemia, making a significant contribution to change the natural history of this disease and impact on the quality of life of patients.

The CML Advocates Network on behalf of the global CML patients community all around the world, are profoundly grateful to him for his remarkable work on the benefit of CML patients, moreover for the support provided to the birth of our member organisation, AIL Group of CML patients in Italy.

It was a privilege and an honour for us to know him and learn from him.

We wish his family, friends and colleagues all the strength and wisdom they need in these difficult times.

Rest in peace.

 

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