CML Horizons 2012 - Learn. Share. Grow: Web Streams
CML Advocacy: Learn. Share. Grow. 11-13 May 2012, Munich, Germany
The "CML Horizons 2012" conference, held in Munich in May 2012, was a great success, with 86 patient advocates from from 48 countries participating in this meeting. It enabled CML patient advocates to:
- identify opportunities in patient advocacy and patient support
- be inspired and gain the courage to fight for the rights of patients with CML
- learn from the experts: patient advocates, nurses and physicians
- share ideas and best practices, interact and exchange ideas
- start networking across borders and help build alliances
CML Horizons is a fully community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. It was run by the CML Advocates Network, hosted by the newly established, non-profit, swiss-based, patient-driven "Leukemia Patient Advocates Foundation" in Switzerland.
Programme and Video Web Streams
Click on the titles of the presentations to see the web stream!
1. Welcome!
- Welcome to Munich, by Jan Geissler
- About the CML Advocates Network and the Leukemia Patient Advocates Foundation, Giora Sharf
2. Bringing down access barriers, chaired by Pat Garcia Gonzalez and Zhenxi Zhong
- Access to Diagnostics & Monitoring: Example Ethiopia, by Pat Garcia Gonzalez, USA
+ Discussion - Access to Clinical Trials: Example Latin America, by Merula Steagall, Brazil
- Access to Treatment: Example Asia, by Mohamad Abd Razak, Malaysia
3. CML Session #1: Side Effects Management & CAM, chaired by Sarunas Narbutas and Erik Aerts
- Introduction
- Complementary Medicines and Drug-Drug Interactions, by Jutta Hübner, University Clinic of Frankfurt, Germany
- Side Effect Management in CML, by Peig O'Carrol, St. James's Hospital, Dublin, Ireland
+ Discussion
4. Tribute to lost friend: Zavie Miller, by Bahija Gouimi and Giora Sharf
5. CML Session #2: Best standard care in CML, chaired by Sandy Craine and Mei Ching Ong
- Update on approved TKIs, Jorge Cortes, MD Anderson Cancer Center, Houston, Texas
- Practical management of CML, Andreas Hochhaus, University Clinic of Jena, Germany
- How to treat first line failures?, Delphine Réa, Hospital Saint Louis, Paris, France
6. Experts Market Place (no web streams available)
- The challenges of adherence in CML, Lina Eliasson, Atlantis Healthcare, London, UK
- Drug-drug interaction, Yair Bar David, Israel
- Coping with cancer in the family, Christiane Viereck, Hospital Munich-Grosshadern, Germany
- Different approaches to fundraising, Merula Steagall, ABRALE, Brazil
- Pregnancy in CML - Pregnancy Registry, Ekaterina Chelysheva, Hematology Research center, Moscow, Russian Federation
- The EBMT CML Education Program, Erik Aerts, University Hospital Zürich, Switzerland
7. CML-Session #3: Monitoring CML, chaired by Jana Pelouchova and Nikolai Lamberts
- Monitoring treatment success and failure in CML, Andreas Hochhaus, University Clinic of Jena, Germany
- How CML monitoring is being made, Susanne Schnittger, MLL, Germany
- Monitoring CML in low resource countries, Jorge Cortes, MD Anderson Cancer Center, USA
8. CML Advocacy Market Place (no web streams available)
- Educating Children and Parents - Bahija Gouimi, Morocco
- How to improve informed consent in CML studies - the EUROSKI example - Marie-Christine Eckle, Germany
- Media awareness & partnering about rare diseases - Dorica Dan, Romania
- Overcoming barriers to diagnostics and "What is my PCR" campaign - Rod Padua, Philippines
- Building alliances on drug access - Anthony Wong, Hong Kong
- How to establish local support groups - Mercedes Arteaga, Argentina
9. CML-Session #4: Research and Future Outlook in CML, chaired by Rod Padua and Giora Sharf
- Targeting stem cells and eradicating CML, Ali Turhan, Université de Poitiers, France
- (When) can we safely stop therapies? Experience from the STOP trials, Delphine Rea, Hospital Saint Louis, Paris, France
- New drugs - are they getting us closer to cure?, Andreas Hochhaus, University Clinic of Jena, Germany,
10. Communicating Your Message, chaired by Anita Welborn and Jan Geissler
- How NGOs can bring about their message, create awareness, and campaign for the cause, Tara Williams, Lance Armstrong Foundation, USA
- International CML Awareness Day: How to campaign for CML, Mina & Stéphane Daban, LMC France
+ Discussion
11. Award of Best Poster and Meeting Close
CML Steering Committee
The programme has been governed by a global steering committee consisting of CML patient advocates from North America, Latin America, Asia, Europe, Middle East and Africa:
- Anita Welborn (USA/North America)
- Bahija Gouimi (Morocco/Africa)
- Euszebius Jan Dziwinski (Poland/Europe)
- Giora Sharf (Israel/Middle East)
- Jan Geissler (Germany/Europe)
- Jana Pelouchová (Czech Rep./Europe)
- Pat Garcia-Gonzalez (USA/Latin America)
- Zhengchen Liu (China/Asia-Pacific)
For any questions regarding the conference, please contact the conference coordinators Giora Sharf, giora@cmladvocates.net and Jan Geissler, jan@cmladvocates.net
Sponsorship Acknowledgement
We would like to thank the following organisations for providing unconditional educational funding. Without their support, this conference would not be possible:
- Novartis Oncology (Initiating sponsor)
- Bristol-Myers Squibb
- Pfizer Oncology
- Ariad
- The Leukemia & Lymphoma Society
- International CML Foundation
- Lance Armstrong Foundation
