EHA2021 CML Oral Sessions

 

Oral Sessions

On demand from 11 June 2021, 09:00 AM CET.

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Population based studies in myeloid disorders.

  • P411-1 (S155) THE LOSS OF LIFE EXPECTANCY IN PATIENTS WITH CHRONIC MYELOID LEUKEMIA: A POPULATION-BASED STUDY IN THE NETHERLANDS, 1989-2018. Msc Carolien Maas, The Netherlands.

  • P411-2 (S156) ELTROMBOPAG FOR MYELODYSPLASTIC SYNDROMES OR CHRONIC MYELOMONOCYTIC LEUKEMIA WITH NO EXCESS BLASTS AND THROMBOCYTOPENIA: A FRENCH MULTICENTER RETROSPECTIVE REAL-LIFE STUDY. Dr. Thibault Comont, France.

  • P411-4 (S158) IMPACT OF RUXOLITINIB ON SURVIVAL OF PATIENTS WITH MYELOFIBROSIS IN REAL WORLD – UPDATE OF ERNEST (EUROPEAN REGISTRY FOR MYELOPROLIFERATIVE NEOPLASMS) STUDY. Dr. Paola Guglielmelli, Italy.

  • P411-5 (S159) CLONAL HEMATOPOIESIS, ELEVATED BLOOD CELL COUNTS, AND DECREASED RENAL FUNCTION – A GENERAL POPULATION STUDY. Msc Morten Kranker Larsen, Denmark.

Live Q&A Panel Discussion. 16 June 2021 1:00 PM - 1:45 PM CET. Virtual room 2.

 

Response, resistance and treatment-free remission in CML

  • p410-1 (S150) LOSS OF G0/G1 SWITCH GENE 2 (G0S2) IN CML PROMOTES TKI RESISTANCE BY DEREGULATING THE MITOCHONDRIAL ELECTRON TRANSPORT CHAIN. Mayra Gonzalez, United States.
  • p410-2 (S151) MITOCHONDRIAL DNA MUTATIONS ARE ASSOCIATED WITH RESPONSE TO IMATINIB IN CHRONIC MYELOID LEUKAEMIA PATIENTS. Dr. Ilaria Stefania Pagani, Australia.
  • p410-3 (S152) FINAL ANALYSIS OF A PAN EUROPEAN STOP TYROSINE KINASE INHIBITOR TRIAL IN CHRONIC MYELOID LEUKEMIA : THE EURO-SKI STUDY. Prof. Dr. Susanne Saussele, Germany.
  • p410-4 (S153) OPTIC PRIMARY ANALYSIS: A DOSE-OPTIMIZATION STUDY OF 3 STARTING DOSES OF PONATINIB (PON). Dr. Jorge Cortes, United States.
  • p410-5 (S154) COVID-19 INFECTION IN CHRONIC MYELOID LEUKEMIA AFTER 1 YEAR OF THE PANDEMIC IN ITALY. A CAMPUS CML ANALYSIS. Dr. Massimo Breccia, Italy.

Live Q&A Panel Discussion. 16 June 2021 2:00 PM - 2:45 PM CET. Virtual room 2.

  

 

CML Advocates Network Newsletter 2021

Newsletter 1

Below you can find, read and download the 2021 CML Advocates Network Newsletters:

 

pdf CML Newsletter December 2021 (1.46 MB)

 

pdf CML Newsletter November 2021 (2.85 MB)

 

pdf CML Horizons 2021: Videos and presentations now on demand (10.04 MB)

 

pdf CML Horizons Virtual Conference 2021 Day 3 Highlights (9.70 MB)

 

pdf CML Horizons Virtual Conference 2021 Day 2 Highlights (5.07 MB)

 

pdf CML Horizons Virtual Conference 2021 Day 1 Highlights (4.12 MB)

 

pdf Today is World CML Day 2021 (3.27 MB)

 

pdf Get involved in World CML Day 2021 (2.84 MB)

 

pdf CML Newsletter, August 2021 (2.03 MB)

 

pdf World CML Day 2021: Save the Date (1.38 MB)

 

pdf EHA 2021 CML updates, May 2021 (465 KB)  

 

pdf CML Newsletter, February 2021 (942 KB)

 

pdf CML Newsletter, January 2021 (1.44 MB)

 

 

 

CMLCAB Newsletters

Newsletter 1

Below you can find, read, and download the CMLCAB Newsletters:

 

pdf “CML CAB News” – 1st edition, October 2020 (5.02 MB)

 

pdf “CML CAB News” – 2nd edition, November 2020 (2.05 MB)

 

pdf “CML CAB News” – 3rd edition, February 2021 (1.41 MB)

 

pdf “CML CAB News” – 4th edition, April 2021 (900 KB)

 

 

 

CML Horizons 2020: registration opens 8th October.

CML Logotip 2020 Online Virtual 5

 

In light of the circumstances surrounding the global COVID-19 outbreak, the CML Advocates Network Steering Committee has decided to hold the CML Horizons Conference 2020 as a virtual event on 6-8 November 2020.

After 18th years, we regret to announce we are unable to get together the global CML patient advocacy community in person as we always do every year. We are committing ourselves to providing a top-notch, interactive, and immersive online experience for our attendees. 

It is our pleasure to share with you we have confirmed the participation of some key CML experts as Dr. Cortés, Dr. Hochhaus, Dr. Lipton, or Dr. Benneh. We are working on some interesting sessions such as the one dedicated to generics, treatment-free remission, or a special talk about the COVID19 outbreak and its impact on CML patients.

We want to do our best to bring what you want to learn, share and grow during #CMLHZ20 to you remotely! Furthermore, this year the CML Horizons will be free for registration, opening on October, 8. 

Stay tuned to social media channels for more information.

 

 

Living with CML Newsletter

Newsletter 1

Below you can find, read and download the Living with CML Newsletters:

 

pdf Living with CML: Param PS (2.18 MB)

pdf Living with CML: Lisa Machado (4.07 MB)

pdf Living with CML: Basil Jacobs (2.41 MB)

pdf Living with CML: Joannie Clements (4.88 MB)

pdf Living with CML: Nigel Deekes (2.95 MB)

pdf Living with CML: Tanja Fajon (6.06 MB)

pdf Living with CML: Toni Montserrat (3.30 MB)

  pdf Living with Jana Pelouchová (2.67 MB)

 

 

CML Advocates Network Newsletter 2020

Newsletter 1

Below you can find, read and download the 2020 CML Advocates Network Newsletters:

  

pdf CML Newsletter, December 2020 (2.31 MB)

 

pdf Announcement, just published: Patient friendly summary of 2020 ELN Guidelines for CML (1.72 MB)

 

pdf CML Atlas East Europe (700 KB)

 

pdf CML Horizons 2020: Videos of all sessions now on demand (2.91 MB)

 

pdf CML Horizons Virtual Conference 2020 Day 3 Highlights (1.80 MB)

 

pdf CML Horizons Virtual Conference 2020 Day 2 Highlights (2.74 MB)

 

pdf CML Horizons Virtual Conference 2020 Day 1 Highlights (2.09 MB)  

 

pdf CMLHZ20 Call for posters (634 KB)  

 

pdf CML Newsletter, October 2020 (4.92 MB)

 

pdf Today 4th September is World Leukemia Day (1.09 MB)

pdf CML Newsletter August 2020 (593 KB)  

pdf EHA 2020 CML updates (3.26 MB)

pdf New article: Results of the TFR for CML patients' research published in Leukemia (1.06 MB)

pdf CML Newsletter April 2020 (676 KB)

pdf Coronavirus disease and CML patients, March 2020 (345 KB)

pdf CML Advocates Network March 2020 (276 KB)

pdf CML Newsletter March 2020 (1.57 MB)

pdf CML Newsletter February 2020 (4.19 MB)

pdf CML Newsletter January 2020 (1.30 MB)

pdf ASH 2019 Congress: CML reports, January 2020 (1.55 MB)

 

 

 

 

CML Newsletters

Newsletter 1

Visit these webpages to read and download the CML Advocates Network Newsletters:

 

Living with CML Newsletters

 

CML Advocates Network Newsletters 2022

 

CML Advocates Network Newsletters 2021

 

CML Advocates Network Newsletters 2020

 

CMLCAB Newsletters

 

CML Advocates Network Newsletters 2019

 

CML Advocates Network Newsletters 2014-2018

 

 

 

 

CML Advocates Network Newsletter 2019

Newsletter 1

Below you can find, read and download the 2019 CML Advocates Network Newsletters:

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pdf CML Newsletter April 2019 (1.40 MB)

pdf Climb for a Cure with Tim Hughes, May 2019 (1.38 MB)

default Cross-border access survey, June 2019 (64 KB)

pdf CML Horizons 2019 Conference, July 2019 (1.67 MB)

pdf World CML Day, September 2019 (1.52 MB)

pdf World CML Day is coming up! September 2019 (1.66 MB)

pdf CML Advocates Network appoints Denis Costello as its first-ever Executive Director, October 2019 (674 KB)

pdf CML Newsletter November 2019 (552 KB)

pdf CML Newsletter December 2019 (3.00 MB)

 

 

European Association Hematology Congress Sessions

European Association Hematology Congress CML Sessions

Our dear CML patient advocates Cornelia Borowczak from Germany and Toni Montserrat from Spain were attending and summarizing many EHA sessions highlighting the very hot topics for CML patients were presented.


Below you can find and download a report on those sessions:

  1. Enhancing the CML patient experience: key factors for determining the choice of therapy. Chair: J Cortés (MD Anderson, Texas, United States).
  2. Anticipate your next move in CML patient management: interactive case studies and discussion. Chair: J Janssen (Amsterdam UMC, The Netherlands).
  3. Mechanisms for resistance and treatment-free remission (TFR) in CML. Chair: S Mustjoki (University of Helsinki, Finland).
  4. Meet the Expert: Management of treatment-free remission (TFR) in CML. FX Mahon (Bergonie Cancer Centre, Bordeaux, France).
  5. Future implications of management in CML. Chairs: A Hochhaus (Universitätsklinikum Jena, Germany); E Abruzesse (S Eugenio Hospital, ASL Roma2, Roma, Italy).

 

 

 

The Capacity Building Session at EHA 2019

The Capacity Building Session at EHA 2019

Jan low 2This mandatory session for the entire group of fellowship receivers was started by our co-founder Jan Geissler with the presentation on “How to get the most of EHA”.

During this key session for newcomers, the patient advocates were able to better know how to organize a very good agenda during the huge Congress and select the most interesting sessions for them.

Other tips as to how to engage with doctors, understand poster presentations and avoid too many technical sessions were shared by Jan with a full room of attendees.

After this Plenary Session for the whole patient advocacy community, the CML patient advocates attended the Chronic Myeloid Leukemia Breakout Session. The CML expert Dr. Tim Brümmendorf gave us a brief overview of what was being presented at EHA on CML. Unfortunately, not a lot of data on CML were presented at #EHA24 this year.

 

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