More CML Educational Videos available

Testing  monitoringThe "CML Education and Science Section" is constantly being expanded. From today, the POLISH version of the "Testing and Monitoring" video is available!

See all videos here!

 

Two new CML Educational Videos available: Testing & Monitoring and Adherence video in Dutch language

Testing  monitoringThe "CML Education and Science Section" is constantly being expanded. Two new videos in Dutch language are available now. Here is the full list of currently available videos in multiple languages:

  • What you need to know about adherence to therapy (now also available in Dutch!)
  • What you need to know about side effects and how to manage them
  • What you need to know about testing and monitoring (now also available in Dutch!)

See the videos here!

 

New CML Educational Video available: Testing & Monitoring video in Czech language

Adherence Facilitating access to information and providing educational material to patients is key to patient advocacy groups. In 2012, a European workgroup of patient advocacy groups and CML experts started to develop and produce a series of educational videos on CML, supported by Bristol-Myers Squibb. Videos are available in several languages. Currently there are three videos available:

  • What you need to know about adherence to therapy
  • What you need to know about side effects and how to manage them
  • What you need to know about testing and monitoring (as of today, also available in Czech language!)

See the videos here!

 

New CML Educational Video available: Adherence video in Czech language

Adherence Facilitating access to information and providing educational material to patients is key to patient advocacy groups. In 2012, a European workgroup of patient advocacy groups and CML experts started to develop and produce a series of educational videos on CML, supported by Bristol-Myers Squibb. Videos are available in several languages. Currently there are three videos available:

  • What you need to know about adherence to therapy (as of today, also available in Czech language!)
  • What you need to know about side effects and how to manage them
  • What you need to know about testing and monitoring

See the videos here!

 

NEW CML EDUCATIONAL VIDEO AVAILABLE!

Testing  monitoring

We are proud to announce that a new educational video has been added to our YouTube-channel:

Currently, the video is only available in English language. However, more languages will follow.

See all videos here and feel free to share them!

 

More CML Educational Videos available on our YouTube-channel!

Adherence

In the last few days, further videos in different languages have been added to our YouTube-channel. Currently there are two videos available:

  • What you need to know about adherence to therapy
  • What you need to know about side effects and how to manage them

See the videos here! And feel free to share them!

A third video is soon to come!

CML Educational Videos: Adherence video, Side Effects Management video now available in multiple languages

Adherence

Facilitating access to information and providing educational material to patients is key to patient advocacy groups. In 2012, a European workgroup of patient advocacy groups and CML experts started to develop and produce a series of educational videos on CML, supported by Bristol-Myers Squibb. Videos are available in several languages. Currently there are two videos available:

  • What you need to know about adherence to therapy
  • What you need to know about side effects and how to manage them

See the videos here!

 

EBMT Nurses Group launches nurses CML education programme

ebmt-learningprogrammeThe Chronic Myeloid Leukaemia Learning Programme, devised by the European Group for Blood and Marrow Transplantation (EBMT) Nurses Group, represents the first specialist Chronic Myeloid Leukaemia (CML) education programme that has been developed in Europe especially for nurses.  The programme, which will be launched during the opening ceremony of the annual meeting of the European Group for Blood and Marrow Transplantation (EBMT), to be held in Geneva, Switzerland, 1-4 April, 2012, has been designed to help nurses and other allied health care professionals through the rapidly evolving CML treatment landscape and enable them to deliver optimal care to patients.

>> The programme (PPT slides) is available for download here <<<

Read more ...

Animated patient videos

In September 2014, the CML Advocates Network published the international CML Book "Faces of Courage and Hope" an English-language book that illustrates the life of 16 CML patients from 15 countries. The book features wonderful photos and moving interviews.

Selected patient stories are now also available in form of animated videos! The animated stories bring to life the emotional impact of CML on patients and their friends and family, in addition to their future hopes and aspirations. The videos were developed with support from Novartis Oncology.

The following videos and languages are currently available:

  • Living with CML: David´s story of courage and hope (English)

  • Living with CML: Bert´s story of courage and hope (English)

  • Living with CML: Mina´s story of courage and hope (French)

  • Living with CML: Mina´s story of courage and hope (English)

  • Living with CML: Carin´s story of courage and hope (English)

  • Living with CML: Carin´s story of courage and hope (Swedish)

  • Living with CML: Michelly´s story of courage and hope (English)

 

  • Living with CML: Michelly´s story of courage and hope (Portuguese)

You may also be interested in the following video called "Chronic Myeloid Leukaemia Journey" and published by Novartis Oncolovy as part of their "What if? What now?" campaign:

 

 

 

CML Educational Videos

Facilitating access to information and providing educational material to patients is key to patient advocacy groups. In 2012, a European workgroup of patient advocacy groups and CML experts started to develop and produce a series of educational videos on CML, supported by Bristol-Myers Squibb. Videos are available in several languages. Currently there are three videos available: one on managing side effects, one on therapy adherence, and one on testing & monitoring.

You can also embed these videos on your own websites, as they are hosted on YouTube!

   
 

Video 1: What you need to know about adherence to therapy

Taking medication exactly as prescribed is not always easy for many patients with chronic myeloid leukaemia, also known as CML. But, it's important. Adherence, or taking the medication as prescribed by the doctor, has a strong impact on the effectiveness of treatment.  "Chronic Myeloid Leukemia: What you need to know about adherence to therapy" is a video that educates patients with CML about the importance of adherence to treatment.

Available languages: English, German, Italian, Spanish, Czech, Dutch
With subtitles: German, Dutch, Spanish, Hebrew, Malay

 

   

Video 2: What you need to know about side effects and how to manage them

This video educates patients with chronic myeloid leukaemia (CML) that they may experience side effects from their CML treatment, and aims to help patients maintain quality of life. Usually, side effects occur at the beginning of CML-therapy and improve or gradually disappear over time. However, in some cases side effects emerge even if the patient has been on treatment for a while. Knowing this can help patients alleviate side effects. The video helps CML patients understand their side effects, speak about them with their doctor and finally manage side effects to reduce their impact on daily life.

Available languages: English, German, German with English subtitles, Dutch, SpanishItalian, Czech, Polish, French, English with Chinese subtitles

 
   

Video 3: What you need to know about testing and monitoring

This video educates patients with chronic myeloid leukemia (CML) that it is very important to closely monitor how their disease is responding to treatment in order to ensure the best health, the best possible treatment outcome and a high quality of life. The video gives a brief and patient friendly introduction to the several types of tests a CML patient should be familiar with and concludes that the right testing at the right time is critical for the best management of CML.
 
Available languages: English, Czech, English with Chinese subtitles, Dutch, Polish, German

 

 

 

 

 

 

 

 

 

 

 

 

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