Save the date for the CML Horizons 2020 Conference

CML Logotip Costa Rica 2020 5

We are pleased to announce that the CML Advocates Network will hold the 18th International Conference for organisations representing people with CML in San José, Costa Rica on 1-3 May 2020.

Stay tuned, more information coming soon!

Save the date and join the CML Horizons 2020!

 

SAVE THE DATE2

 

 

CML Horizons 2019 - Presentations, photo gallery and videos now available!

 CML Logotip Portugal 2019 5

 

CML Advocacy: Learn. Share. Grow. 

17 - 19 May 2019, Lisbon, Portugal

 

banner1HZ19The 17th International CML Horizons Conference was held in Lisbon, Portugal from the 17th to 19th May 2019

This year we greeted a record 119 participants and welcomed 22 newcomers who all support the CML Community worldwide with a very active engagement in Social Media by sharing, making comments and networking in Facebook, Twitter and Instagram during the meeting.

Hundreds of posts on the Facebook Pages of the CML patient advocates and groups were informing thousands of people worldwide and more than 300 Tweets using the hashtag #CMLHZ19 got a large impact on the online CML community with more than 11.000 impressions on this social media channel.

Our participants were given the opportunity to hear from 21 speakers from both medical and patient advocate specialists.

In addition to the expert presentations from our acclaimed speakers our participants once again through the interactive regional workshops collectively played a role in strengthening the regions.

The conference also offers cross border networking where delegates were able to share best practices, interact and exchange ideas.

The poster session has become extremely popular and 21 advocates showcased their organisations' activities.

Read more to access to the Presentations, Video Streams and Photo Gallery of the CML Horizons 2019 Conference.

 

Read more ...

CML Horizons 2018 - Learn. Share. Grow: Presentations, Photo Gallery and Web streams now available!

 

CML Logotip Warsaw 2018 1

 

CML Advocacy: Learn. Share. Grow. 

4 - 6 May 2018, Warsaw, Poland

 

During the annual CML Horizons Conference on 4 to 6, May 2018 the CML Advocates Network welcomed 117 attendees (among them 41 newcomers) supporting patients and families affected by Chronic Myeloid Leukemia (CML) to Warsaw, Poland. Delegates from around the world (Europe, North America, Asia, Africa, Middle East and Latin America) came to Warsaw to learn from experts both medical and patient advocates on the latest information about CML, share best  practices in patient advocacy in order to grow their organisations in their own countries and give back to their own communities. This year we had introduced the "Poster Presentation Session" that gave our members the opportunity to interact with other CML Patient Organisations and showcase their organisation on a worldwide platform and share their activities and/or best practices.  

Our member Amal Hrim gave a heartbreaking moving tribute to our dearly beloved Ferdinand Mwangura and the community and members of the Africa & Middle East region have voted for Bahija Gouimi to act as temporary region steering committee until next elections.

The conference has over the years shown the immense energy and power of the worldwide CML Community: inspirational poster presentations, interactive regional workshop and outstanding and relevant presentations by CML medical and advocate specialists. The meeting doesn't simply give us just medical insight and advocacy expertise, but considerably more - we feel that throughout the years, the group has built up an extraordinary community crossing oceans and borders to improve the life of patients and empower new and existing patient groups and has turned into a remarkable universal family.

CML Horizons is a wholly community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. The annual conference is run by the CML Advocates Network, hosted by the non-profit, Swiss-based and patient-driven "Leukemia Patient Advocates Foundation".

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PresentationsVideo streams and Photo Gallery are available now!

 To view, all the presentations just Click on "PDF". Should you wish to translate selected presentation, please contact Lidija Pecova at l and request for the PowerPoint file. This will make it easier for you to translate the presentation into the language of your choice.

Please take note that the speakers have authorized CML Advocates Network to disburse the presentations in PDF format only on this site, however, it isn't permitted to transfer the PDF files elsewhere! If you would like to share the slides, kindly do this by connecting to this page or the documents on this site!

To view individual sessions, click on "Video Webstream" below. 

Of course, you can reflect back on of the 16th CML Horizons Conference by viewing the photo gallery,  HERE

 

Read more ...

CML Horizons 2017 - Learn. Share. Grow: Presentations, Photo Gallery and Web streams now available!

 

CML-Logotip-Frankfurt-2017-1

 

CML Advocacy: Learn. Share. Grow. 

26-28 May 2017, Frankfurt, Germany

 

During the annual CML Horizons Conference on 26 to 28 May 2017 the CML Advocates Network welcomed 100 delegates (among them 24 newcomers) supporting patients and families affected by Chronic Myeloid Leukemia (CML) to Frankfurt, Germany. Delegates from around the world (Europe, North America, Asia, Africa, Middle East and Latin America) came to Frankfurt to learn from experts both medical and patient advocates on the latest information about CML, share best practises in patient advocacy in order to grow their organisations in their own countries and give back to their own communities. We also featured a poster board where our members were able to present some of their activities that they have had during the year. In addition to this our members had the opportunity to submit abstracts and feature in our “best Practice session” on a successful activity they had on their own country. Furthermore, at this year's conference a new CML Horizons Steering Committee was elected. 

CML Horizons is a wholly community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. The annual conference is run by the CML Advocates Network, hosted by the non-profit, swiss-based and patient-driven "Leukemia Patient Advocates Foundation".

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Presentations, Photo Gallery and Videostreams are available now!

Click on "PDF" to see all presentations. If you wish to translate selected presentation, please contact Celia Marín at  and ask for the PowerPoint-file! This will make it easier for you to translate the presentation to the language of your choice.

Please note that the speakers have authorized CML Advocates Network only to provide the PDFs on this website, but it is not allowed to upload the PDFs somewhere else! So if you want to share the slides, please do this by linking to this page or the files on this site! 

To stream individual sessions, click on "Webstream" below. 

To check out the CML Horizons 2017 Photo Gallery, click HERE

 

Read more ...

CML Horizons 2020 Preliminary Program

CML Logotip Costa Rica 2020 1

 Register here - Preliminary Program - Conference fee Scholarship Application

Call for Poster Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements  

 

Preliminary Programme of CML Horizons 2020

Friday 1st to Sunday 3rd May 2020

PreliminaryProgram

Faculty - Dr. Hochhaus, Dr. Cortez, Dr. Lipton, also Dr. Benneh.

 

Overall contact and programme coordination

Please contact Lidija Pecova , Lisa Machado or Giora Sharf  should you need any clarification about the conference programme.

 

 

 

 

 

 

 

 

CML Horizons 2020 Call for Nominations

CML Logotip Costa Rica 2020 1

 Register here - Preliminary Program - Conference fee Scholarship Application

Call for Poster Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements  

 

 

Call for nominations for the regions of Asia & Pacific and Latin America of the CML Horizons Steering Committee.

 

At CML Horizons 2019, the community elected its fifth global "CML Horizons Steering Committee", consisting of CML patient advocates from North America, Middle East and Africa, Western Europe, Latin America, Asia & Pacific and Central and Eastern Europe & West Asia regions.

Our Steering Committee is made up of expert CML Patient Advocates and Is intended to serve as a leading team member for the CML community by providing support and help to implement CML Horizons annual meetings, as well as other projects, led by the CML Advocates Network. 

The current term CML Horizons Steering Committee from Asia & Pacific and Latin America is coming to an end at "CML Horizons 2020" in Costa Rica, and hence we would like to ask the community to nominate candidates for the upcoming elections. If you are from these regions, this is your opportunity to become an active and professional CML Patient Advocate and empower yourself as well as your region. If you feel you can contribute, please submit your nomination.

The CML Horizons Steering Committee consists of one elected representative from each of the six major regions:

  • Asia & Pacific
  • North America
  • Latin America
  • Middle East & Africa
  • Western Europe
  • Central and Eastern Europe & West Asia

 plus, the three CML Advocates Network founders as permanent committee members.

 Deadline for nominations: 15th April 2020

To nominate a candidate for the election of the "CML Horizons Steering Committee 2020-2023", we would like to ask your patient organisation to submit the nomination form by 15th April 2020 to 

The nomination needs to state your motivation and contribution to the committee on behalf of your region, your history and vision as CML advocate, your English language skills, and whether you are willing to commit significant time for teleconferences, meetings and emails to bring the community and conference to the next level.

Every CML Advocates Network member organisation can nominate only one candidate from their region. A list of CML Advocates Member organisations can be found here: http://www.cmladvocates.net/members

Please look at the nomination form for further information.

 

Elections

The elections will be held at CML Horizons in San José on Saturday 2nd May during the regional sessions. All nomination files will be provided to all members during the regional sessions, to give everyone sufficient time to consider their vote. In addition, every candidate will present themselves in the first of the two regional sessions planned for 2020.

Every member organisation from Asia & Pacific and Latina America regions of the CML Advocates Network has one vote per seat at the elections. Even if there are 2 delegates from a specific organisation, they have only one vote. Email votes are not permitted. Only those organisations that participate in the conference in San José can take part in the voting.

Questions?

If you have any questions, please feel free to contact Lidija Pecova  or Giora Sharf  at any time.

Your CML Steering Committee,

  • Giora Sharf (Israel/co-founder CML Advocates Network)
  • Jan Geissler (Germany/co-founder CML Advocates Network)
  • Jana Pelouchová (Czech Rep./co-founder CML Advocates Network)
  • Šarūnas Narbutas (Lithuania/Central and Eastern Europe & West Asia)
  • Lisa Machado (Canada/Region North America Representative)
  • Bahija Gouimi (Morocco/Region Middle East & Africa Representative.)
  • Felice Bombaci (Italy/Region Western Europe Representative)
  • José Castro, (Costa Rica/Region Latin America Representative)
  • Rod Padua (Philippines/Asia-Pacific) 

 

 

 

 

 

CML Horizons 2020 Conference Fee

CML Logotip Costa Rica 2020 1

 Register here - Preliminary Program - Conference fee Scholarship Application

Call for Poster Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements  

 

CML Horizons 2020 Conference fee for regular delegates

A conference fee of EUR 500 per delegate will be invoiced to the participant in the name of the Leukemia Patient Advocates Foundation, Switzerland, in advance of the meeting. The conference fee covers

  • max 4 – 5 nights of accommodation,
  • local transportation from Juan Santamaría International airport to the conference and back.
  • food and drinks (breakfast, lunch and dinner), during the conference.
  • Free wifi internet in conference rooms, and in bedrooms too.
  • the general costs of the conference.

Participants are expected to cover their own travel to Juan Santamaría International airport (e.g. flights). The conference fee does not cover incidental costs like bar, mini-bar, phone calls, taxi costs, upgrades for double rooms, relatives attending the conference, and any other non-official activities.

Payment of the conference fee must arrive before the start of the conference. It must also be paid in case of cancellations no later than 30 days before the conference. The conference fee should be paid by wire transfer to the foundation. Should another postal address be required on the invoice for the conference fee, the delegate must provide a note during the electronic registration process, stating the full postal address and the name of the organization who will pay the conference fee.

For those that cannot find organisations or sponsors to cover the costs to attend the conference, see our Scholarship page 

Sponsor delegates participation

Sponsors' delegates are also expected to register at the registration website. Room bookings will then be made by our logistics agency. Pharma representatives are expected to book their own flights and settle their room charge at the hotel. We will organise their individual local transport to the conference venue if they provide us with their flight details at least two weeks before the conference. Costs for attending the conference, including the daily delegate rate and all meals, will be covered by us and will not be invoiced to pharma representatives.

If you have any Questions?

Please contact Lidija Pecova  or Giora Sharf  should you need any assistance. 

 

 

 

 

 

 

CML Horizons 2020 Scholarship Application

CML Logotip Costa Rica 2020 1

 Register here - Preliminary Program - Conference fee Scholarship Application

Call for Poster Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements  

 

Application for Scholarship / Conference Grant

We encourage everyone to seek sponsors in during 2019 and early 2020 to cover the travel and conference costs. However, we acknowledge that not everybody is able to find an organisation or sponsor to participate in CML Horizons 2020.

Therefore, a limited number of 40 scholarships, full or partial, are available for patient advocates who are interested in attending the conference and who cannot find sponsors for their attendance. Applications for these scholarships are invited from interested advocates. Those that are granted will receive an economy class return ticket to San José and will not need to pay the conference fee.

Eligibility criteria

To be eligible for a scholarship, candidates should:

  • Be a staff member or volunteer of an established CML patient organization that is a member of CML Advocates Network,
  • Be in a country where a local sponsor is unavailable to support attendance at the conference OR be an individual who is in the process of setting up a CML patient organization where regulations prohibit local sponsoring his/her attendance at the conference.
  • Hold a position where they can shape ongoing advocacy activities and initiate new ones
  • Be proficient in English
  • Preference will be given to applicants coming from countries with limited resources.

Scholarship types

We are offering two different types of scholarships, which will be given according to the needs of each applicant.

  • Full scholarship: This scholarship will cover both the flight costs and an exemption from the conference fee.
  • Partial scholarship: This scholarship will cover either the flight costs or the conference fee. 

Application procedure

Interested advocates should submit an application with the Attached Application form by 15th March 2020. Please email your application to Vanja at email: 

 

The CML Horizons Steering Committee members will review and prioritize all applications received. Applicants will be informed whether they will receive a grant and whether it is a full or partial grant, as soon as possible. According to our policy, there is a maximum of 1 scholarship per patients’ organization.

 

 

 

 

 

CML Horizons 2020 Call for Posters

CML Logotip Costa Rica 2020 1

 Register here - Preliminary Program - Conference fee Scholarship Application

Call for Poster Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements  

 

 

Call for Posters: CML Advocacy Poster Area at CML Horizons 2020

What is the CML Advocacy Poster Area?

The CML Advocacy Poster Area is a separate area inside the venue where CML Horizons 2020 participants can display a paper poster illustrating their CML patient advocacy activities, projects and outcomes.

During CML Horizons 2020 conference, your poster will be shown and accessible by all conference participants and shared throughout our social media channels.

The aim of the Poster Area is to provide participants with the opportunity to share their key activities and learn from the initiatives and experience of other CML organisations from around the world in CML advocacy.

Win the Best Poster Award!

During the conference, there will be an opportunity to vote (once only per organization) for the best poster and we will announce the winners on Sunday, 3rd May. 

So, we invite you to bring your poster to the conference please note that we will not be able to print the poster on spot, so bring your printed posters with you, please.

This is an amazing opportunity to showcase your Organisations’ yearly activity or a special project that made an impact on the CML Community in your country on a worldwide platform and share your activities.

How can I submit a poster?

Participants who would like to display a poster in the CML Advocacy Poster Area are invited to create a poster using the template and recommendations below. Participants can use this poster template or can have their own design.

Be creative!

You can be as creative as you like or you can use our poster guideline and template, we have made for you. You can download this template HERE.

 

 

 

 

 

 

 

 

 

 

 

CML Horizons 2020 Travel

CML Logotip Costa Rica 2020 1

 Register here - Preliminary Program - Conference fee Scholarship Application

Call for Poster Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements  

  

Arrival and departure dates and times

Arrival date: Thursday 30th April 2020

  • The official opening session will be on Friday 1st May at 08:00, be on time for this session. 
  • Traveling from the airport to the hotel will take you at least 20 minutes, depending on traffic. A shuttle service from the Airport to the hotel will be arranged (see below for details).

Departure date: Monday 4th May 2020

This year because of the distance we are organising a full day tour on Monday 4th May 2020 if you plan to participate your flights should not depart before 21.00 or Tuesday 5th May. You must click “yes” in the registration form if you wish to be part of the tour.

Visa

Please make sure that you have valid travel documents, please visit our page that explains Visas in detail.

 Travel of patient advocates

Regular advocates and Pharma sponsors are expected to book and cover their own travel to Juan Santamaría International airport  (e.g. flights).

A limited number of travel grants (scholarships) are available for some advocates who are unable to fund their own travel and the conference fee (see the section on scholarships))

Transport from the airport to the conference venue will be provided for free.

After registration, please provide Vanja Muratovic from our logistics agency "Balkan-Adriatic " at email  with your travel details so we can arrange your local transport and accommodation accordingly. These details should be provided no later than 1 month before the meeting.

Travel of Steering Committee members, receivers of scholarships, and speakers

We will book flights for Steering Committee members, those receiving a travel grant from us, and speakers. Please do not book your own travel in these cases. Please indicate your preferences for departure day and time, which airport, an airline, etc. in the respective fields of the registration form. Also, provide your preferred return day and time. The travel agency will try to book your flights according to your preferences, taking also into account costs as our non-profit organization has a very limited budget. Please do this as soon as possible - and it is important we get the best available rates as soon as possible - they increase every day closer to the conference.

Here are the contact details for All Tours travel agency:

Email:  
Phone Office: +972 4867 0670 .
For emergencies: Avigail's mobile number +972 504 265 880 or Nimrod's Mobile: +972 504 265 878

For any of your travel queries please copy Giora Sharf at 

Travel of sponsors representatives 

Please make note that even though you need to book your own flights, we need your registration with flight details to be able to book your hotel room and arrange your transfers from the airport to the hotel and back.

Questions?

Please contact Lidija Pecova  Tel: +389 7838 8235 or Giora Sharf  should you need assistance or see challenges in attending CML Horizons.

 

 

 

 

 

CML Horizons 2020 Visas

CML Logotip Costa Rica 2020 1

 Register here - Preliminary Program - Conference feeScholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements  

 

VISA Information for Costa Rica

To visit Costa Rica, some countries need a visa and you can check this by clicking on the link below to access the excel document listing all the countries. The document has 5 tabs at the bottom that lists the different groups and types of visas you may need to apply for. Please read this document carefully:

Costa Rica Visa

You can find a list of Costa Rican consulates or embassies in the following link:

https://www.embassypages.com/costarica

Please register as soon as possible so you can start your visa process immediately. If you are from a country that needs a visa please contact Lidija for your supporting documents. Also please take note if your country is not listed in the below list of Costa Rican Consulates and Embassies and you cannot get to a neighboring country you will also need to make contact with Lidija at  and she will assist you with your application.

Please make sure that you have valid travel documents with at least 6 months till the end of your passport expiry date and if you need any help, please do not hesitate to contact us.

 

 

 

 

 

CML Horizons 2020 Acknowledgements

CML Logotip Costa Rica 2020 1

 Register here - Preliminary Program - Conference fee Scholarship Application

Call for Poster Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements  

 

Acknowledgment of Sponsors

We would like to thank the following sponsors for providing unconditional grants - without their support, this conference would not be possible:

Novartis Oncology (Initiating platinum sponsor)  novartis
Bristol-Myers Squibb (Gold Sponsor) BMS
 

Pfizer (Gold Sponsor)

 Pfizer
 

 

Incyte Biosciences International Sàrl (Gold Sponsor)

 

 Incyte 2CPos RGB1
Takeda Oncology (Silver Sponsor) Takeda Oncology logo
The Leukemia & Lymphoma Society (Bronze Sponsor) LLC

International CML Foundation (Bronze Sponsor)

iCMLf

 

If you want to support the conference, we would be delighted! 

 

 

 

 

 

 

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