CML Horizons 2020 Venue and Accommodation

CML Logotip Costa Rica 2020 1

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Call for Poster Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements  

 

Venue and Accommodation for CML Horizons 2020

San José is the capital of Costa Rica and found in the Central Valley.  It has become a modern, cosmopolitan city and is presently home a third of the country’s entire population. Founded in 1738 by Cabildo de Leon, San José was not made the capital until 1823.  

Today it is a sprawling metropolitan area that encompasses 44.62 sq km (17.2 sq mi) and a population of 365,799 people, which is roughly a third of Costa Rica's total population.  San José is the economic center of Costa Rica, home to a rich culture, historic architecture, and an exciting night life.

Located in the Central Valley of Costa Rica, San José has an average elevation of 1,161 meters above sea level.  Technically it lies in a torrid zone of tropical rainforest, but due to its elevation, it has a mild climate.  Temperatures range from 15 and 30 °C (59 and 86 °F), but it is also very windy so it can be cooler.  

The rainy season stretches from May to late November, but it isn't atypical for San José to experience rain and cloudiness during the dry season due to its elevation.

Within the city of San José there is a rich cultural history, including theaters and museums, and many bars and restaurants.  With one block you can find two of Costa Rica's most famous theaters, the Teatro Nacional de Costa Rica and the Teatro Popular Melico Salazar, and a variety of musical performances, acting, and art exhibits.  

The Gold Museum offers a rare collection of gold pre-Colombian artifacts from Latin American indigenous civilizations. The beautiful Lankester Botanical Garden is also located on the outskirts of the city.

Conference venue: Crowne Plaza Corobici

Address: Sabana Norte contiguo al Parque Metropolitano La Sabana, Mata Redonda, San José  2443-100, Costa Rica Tel: 506-2543-6000

hotel1

https://www.ihg.com/crowneplaza/hotels/us/en/san-jose/sjocp/hoteldetail

Costa Rica Tour on Monday 

For those interested, we will be offering an optional full-day tour on Monday. This will not be an official part of the program, and those who will like to join this tour will need to register at the registration website or at the hospitality desk at the hotel.

For any questions regarding the conference, please contact Lidija Pecova  +389 7838 8235 or Giora Sharf

 

 

 

 

CML Horizons 2019 Photo Gallery

Enjoy this gallery of images of the CML Horizons Conference held in Lisbon, Portugal, 17th to 19th May 2019.

Thank you so much to our Steering Committee member representing Latin America region, José Castro, for collecting these amazing images and share them with the CML global community.

 

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CML Horizons 2019 - Visas

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 Register here - Preliminary Program - Conference feeScholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

USEFUL TIPS FOR OBTAINING A VISA TO PORTUGAL.

Portugal is a member of the European Union. A Schengen-visa is required to enter the country.

Though we are doing our best to accelerate the approval of all visa, please do;

  1. not wait any longer and start applying for your visa NOW (all in all, obtaining a visa for Portugal can take up to 90 days).
  2. make sure that you have valid travel documents!

On the official website of the https://www.vistos.mne.pt/en/short-stay-visas-schengen/general-information you will find all relevant information on the requirement of a visa.  Please use the prompts on the right-hand side to navigate through about who needs a visa, how and where to apply. The website answers important questions such as:

-        Types of Visa? (Short stay visa is what you need to click on)

       -        Who needs a visa?

       -        Where should you lodge a visa application?

-        Documentation needed and Application forms?

Please remember that most of your questions can be answered at the Portuguese consular in your country or another Embassy that represents Portugal. This is listed in the section titled "Where should you lodge a visa application"

Please make sure that you have valid travel documents with a Passport Valid for at least Six Months and if you need any help, please do not hesitate to contact Lidija from our management team via email 

 

Thank you.

Giora & Lidija

CML Advocates Network

 

 

CML Horizons 2019 - Conference fee

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 Register here - Preliminary Program - Conference feeScholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

 

CML Horizons 2019 Conference fee for regular delegates

A conference fee of EUR 500 per delegate will be invoiced to the participant in the name of the Leukemia Patient Advocates Foundation, Switzerland, in advance of the meeting. The conference fee covers

  • max 4 nights of accommodation,
  • local transportation from Lisbon airport to the conference and back.
  • food and drinks (breakfast, lunch and dinner), during the conference.
  • Free wifi internet in conference rooms, and in bedrooms too.
  • the general costs of the conference.

Participants are expected to cover their own travel to Lisbon International airport (e.g. flights). The conference fee does not cover incidental costs like bar, mini-bar, phone calls, taxi costs, upgrades for double rooms, relatives attending the conference, and any other non-official activities.

Payment of the conference fee must arrive before the start of the conference. It must also be paid in case of cancellations later than 30 days before the conference. The conference fee should be paid by wire transfer to the foundation. Should another postal address be required on the invoice for the conference fee, the delegate must provide a note during the electronic registration process, stating the full postal address and the name of the organization who will pay the conference fee.

For those that cannot find organisations or sponsors to cover the costs to attend the conference, see our Scholarship page 

Conference fee and travel costs for representatives of the sponsors

Sponsors' delegates are also expected to register at the registration website. Room bookings will then be made by the logistics agency. Pharma representatives are expected to settle their room costs at the hotel. We will organise their individual local transport to the conference venue if they provide us with their flight details at least two weeks before the conference. Costs for attending the conference, including the daily delegate rate and all meals, will be covered by us and will not be invoiced to pharma representatives.

If you have any Questions?

Please contact Lidija Pecova  Tel: +389 7838 8235, or Giora Sharf should you need any assistance.

 

CML Horizons 2019 - Acknowledgement of Sponsors

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 Register here - Preliminary Program - Conference feeScholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

 

Acknowledgment of Sponsors

We would like to thank the following sponsors for providing unconditional grants - without their support, this conference would not be possible:

Novartis Oncology (Initiating platinum sponsor)  novartis
Bristol-Myers Squibb (Gold Sponsor) BMS
 

Pfizer (Gold Sponsor)

 Pfizer
 

 

Incyte Biosciences International Sàrl (Gold Sponsor)

 Incyte 2CPos RGB1
The Leukemia & Lymphoma Society (Bronze Sponsor) LLC

International CML Foundation (Bronze Sponsor)

iCMLf

 

If you would like to support the CML Advocates Network and/or the CML Horizons Conference, this would be very valued and appreciated!

 

CML Horizons 2019 - Scholarships

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 Register here - Preliminary Program - Conference feeScholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

 

 Application for Scholarship / Conference Grant

CML Horizons 2019 will take place in Lisbon, Portugal. All participants are expected to cover their own travel costs to Lisbon and to pay the conference fee which covers accommodation, local transportation from the airport and back, food, drinks and the cost of the conference.

We encourage everyone to seek sponsors in early 2019 to cover the travel and conference costs. However, we acknowledge that not everybody is able to find an organisation or sponsor to participate in CML Horizons 2019.

Therefore, a limited number of 25 scholarships, full or partial, are available for patient advocates who are interested in attending the conference and who cannot find sponsors for their attendance. Applications for these scholarships are invited from interested advocates. Those that are granted will receive an economy class return ticket to Lisbon and will not need to pay the conference fee.

Eligibility criteria

To be eligible for a scholarship, candidates should:

  • Be a staff member or volunteer of an established CML patient organization that is a member of CML Advocates Network,
  • Be in a country where a local sponsor is unavailable to support attendance at the conference OR be an individual who is in the process of setting up a CML patient organization where regulations prohibit local sponsoring his/her attendance at the conference.
  • Hold a position where they can shape ongoing advocacy activities and initiate new ones
  • Be proficient in English
  • Preference will be given to applicants coming from countries with limited resources.

Scholarship types

We are offering two different types of scholarships, which will be given according to the needs of each applicant.

  • Full scholarship: This scholarship will cover both the flight costs and an exemption from the conference fee.
  • Partial scholarship: This scholarship will cover either the flight costs or the conference fee. 

Application procedure

Interested advocates should submit an application with the attached application form by 1st March 2019. Please email your application to Vanja at email:

The CML Horizons Steering Committee members will review and prioritize all applications received. Applicants will be informed whether they will receive a grant and whether it is a full or partial grant, As soon as possible. According to our policy, there is a maximum of 1 scholarship per patients organization.

 

 

CML Horizons 2019 - Venue and Accommodation

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 Register here - Preliminary Program - Conference feeScholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

 

Venue and Accommodation for CML Horizons 2019

00052129662 Large 2                   

City of Lisbon

Lisbon is located on 7 hills situated near the Tagus river a historical city full of stories to tell, where the sun shines 290 days a year and the temperature rarely drops below 15.C. Lisbon the capital of Portugal has a unique beauty and shows multiple contrasts between the historical and modern, combining different cultures, trends and lifestyles. Landmarks such as the Medieval Castle of St. George, Medieval Cathedral, Belem Tower, Jeronimos Monastery, National Pantheon, Palace Square and the Downtown are some of the Lisbon city highlights that charms people from around the world.

Conference venue: Lisbon Marriott Hotel  

Address: Avenida dos Combatentes 45, Lisbon 1600-042 Portugal Telephone: +351 21 723 5400

https://www.marriott.com/hotels/travel/lispt-lisbon-marriott-hotel/?scid=bb1a189a-fec3-4d19-a255-54ba596febe2

lispt entrance 0106 hor widelispt lobby 0107 hor widelispt guestroom 0108 hor widelispt lobby 0098 hor wide

Lisbon City Tour on Sunday

The city centre was destroyed by an earthquake in 1755 but was rebuilt by the marquês de Pombal. This seagirt city of multicoloured houses and elegant parks and gardens has been reconstructed as a bustling modern metropolis. In fact, Lisbon was designated a European City of Culture in 1994. The general outlines of the city remain as they have for hundreds of years and is still a city of balconies and vistas. Some of the most striking of the latter can be seen from the miradouros, the terraces maintained by the municipality on seven of its hillsides.

For those interested, we will be offering an optional 3.5-hour tour on Sunday afternoon. This will not be an official part of the program, and those who will like to join this tour will need to register at the registration website or at the hospitality desk at the hotel.

For any questions regarding the conference, please contact Lidija Pecova () +389 7838 8235 or Giora Sharf (

 

CML Horizons 2019 - Call for Posters

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 Register here - Preliminary Program - Conference feeScholarship Application

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Call for Posters: CML Advocacy Poster Area  at CML Horizons 2019

 

What is the CML Advocacy Poster Area?

The CML Advocacy Poster Area is a separate area inside the venue where CML Horizons 2019 participants can display a paper poster illustrating their CML patient advocacy activities, projects and outcomes.

During CML Horizons 2019  conference, your poster will be shown and accessible by all conference participants and shared throughout our social media channels.

The aim of the Poster Area is to provide participants with the opportunity to share their key activities and learn from the initiatives and experience of other CML organisations from around the world in CML advocacy.

Win the Best Poster Award!

During the conference, there will be an opportunity to vote (once only per organization) for the best poster and we will announce the winners on Sunday, 19th May. 

So, we invite you to bring your poster to the conference and please note that we will not be able to print the poster on spot, so bring your printed posters with you, please.

This is an amazing opportunity to showcase your organisations' yearly activity or a special project that made an impact for the CML Community in your country on a worldwide platform and share your activities.

How can I submit a poster?

Participants who would like to display a poster in the CML Advocacy Poster Area are invited to create a poster using the template and recommendations below. Participants can use this poster template or can have their own design.

Be creative!

You can be as creative as you like or you can use our poster guideline and template we have made for you. You can download this template HERE.

 

 

 

CML Horizons 2019 - Travel

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 Register here - Preliminary Program - Conference feeScholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

 

Arrival and departure dates and times

Arrival date: Thursday 16th May or Friday 17th May 2019

  • The official opening session will open at 09:00, to be on time for this session, your flight should arrive in Lisbon the latest by 07:00.
  • Traveling from the airport to the hotel will take you at least 15 -20 minutes, depending on traffic. A shuttle service from the Airport to the hotel will be arranged (see below for details).

Departure date: Sunday, 19th May 2019

  • Flights should not depart earlier than 16:30; in case you would like to participate in the City Tour, then the flights should not depart before 20:30

Visa

Please make sure that you have valid travel documents, please visit our page that explains Visas in detail 

Travel of patient advocates

Regular advocates and Pharma sponsors are expected to book and cover their own travel to Lisbon International airport (e.g. flights).

A limited number of travel grants (scholarships) are available for some advocates who are unable to fund their own travel and the conference fee (see section on scholarships)

Transport from the airport to the conference venue will be provided for free.

After registration, please provide Vanja Muratovic from our logistics agency "Balkan-Adriatic " at email  with your travel details so we can arrange your local transport and accommodation accordingly. These details should be provided no later than 1 month before the meeting, or by April 17, 2019. 

Travel of Steering Committee members, receivers of scholarships, and speakers

We will book flights for Steering Committee members, those receiving a travel grant from us, and speakers. Please do not book your own travel in these cases. Please indicate your preferences for departure day and time, which origin airport, an airline, etc. in the respective fields of the registration form. Also, provide your preferred return day and time. The travel agency will try to book your flights according to your preferences, taking also into account costs as our non-profit organization has a very limited budget. Please do this as soon as possible - as it is important we get the best available rates as soon as possible - they increase every day closer to the conference.

Here are the contact details for All Tours travel agency:
Email:  
Phone Office: +972 4867 0670 .
For emergencies: Avigail's mobile number +972 504 265 880 or Nimrod's Mobile: +972 504 265 878

For any of your travel queries please copy Giora Sharf at   

Travel of sponsors representatives 

Be aware that even though you need to book your own flights, we need your registration with flight details to be able to book your hotel room and arrange your transfers from the airport to the hotel and back.  

Questions?

Please contact Lidija Pecova   Tel: +389 7838 8235,  or Giora Sharf should you need assistance or see challenges in attending CML Horizons.

 

Call for Nominations: Elections 2019

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 Register here - Preliminary Program - Conference feeScholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

  

Call for nominations for the upcoming elections of the CML Horizons Steering Committee


The CML Advocates Network is an active network of CML patient groups and presently connects 122 patient organizations in 92 countries across ALL continents.

Currently, the CML Steering Committee is composed of six CML patient advocate leaders representing the major regions of the world plus three CML Advocates Network Founders as permanent Steering Committee members. At a Steering Committee meeting held earlier this year, new guidelines and expectations were approved for the Steering Committee. The main change is that the steering committee is not only responsible for the organization of CML Horizons as it was until last year, but is now responsible for the management of the CML AN.

At the upcoming CML Horizons in Lisbon, Portugal, we will be holding elections for this newly-revised CML Steering Committee. The elected individuals will not only represent their respective regions but will also work to ensure the active involvement of their region in the many activities of the CML Advocates Network.
Specifically, this includes the following important Steering Committee activities:
• Contributing to the projects of the CML Advocates including CML Horizons, CML-CAB (Community Advisory Board)
• Actively representing the network in their region and proactively connect CML patient organisations to the global CML Advocates Network
• Agreeing to attend at least two face-to-face Steering Committee meetings per year
• Intending to participate in at least two (of approximately four) virtual teleconferences per year
• Contributing a minimum of 8 hours/month to work as a Steering Committee member
• Timely response to Steering Committee-related email communication

Please note the specific regions and terms. The terms will be discussed in more detail during the regional sessions at CML Horizons.
• North America (Term: May 2019 – May 2022)
• Central and Eastern Europe & West Asia (Term: May 2019 - May 2022)
• Middle East & Africa (Term: May 2019 – May 2021)
• Western Europe (Term: May 2019 – May 2021)
• Asia and Pacific (incl. Australia and New Zealand) (Term: May 2019 – May 2020)
• Latin America (Term: May 2019 – May 2020)

You can obtain the Nomination Form by clicking HERE. Nominations must be done by member organizations of the CML Advocates Network. Each organization may nominate only one person for a defined region. If you represent that organization, you may also nominate yourself. Interested individuals should carefully complete the attached nomination form and submit it to by Thursday, May 9, 2019.
Nominees will need to be prepared to present themselves at the allocated time on Fridays Programme. All voting will occur within the Regional Meetings and the winners announced at the end of Saturday’s Programme.

We look forward to receiving your application and should you have questions about the terms or the new responsibilities please do not hesitate to contact Lidija  or your current regional leader listed below.

Current CML Steering Committee 

  • Giora Sharf (Israel/co-founder CML Advocates Network)
  • Jan Geissler (Germany/co-founder CML Advocates Network)
  • Jana Pelouchová (Czech Rep./co-founder CML Advocates Network)
  • Gail Sperling (USA/North America)
  • Bahija Gouimi (Morocco/Africa)
  • Zack Pemberton-Whiteley (UK/Region Western Europe)
  • Mercedes Arteaga, (Argentina/Latin America)
  • Rod Padua (Philippines/Asia-Pacific)
  • Šarūnas Narbutas (Lithuania/Central and Eastern Europe & West Asia)

 

CML Horizons 2018: Video Streams Gallery

CML Logotip Warsaw 2018 1

  

CML Horizons 2018 Video Streams Gallery 

 

DAY 1 - FRIDAY, 4 May 2018

Here you will find the video web streams of all CML Horizons 2018 sessions of DAY 1 (Friday).

Click on the play button to see and hear the presentation. Once the video plays, you can also click on the "full screen" button to improve readability of the slides. 

 


 

Welcome to Warsaw and to CML Horizons 2018

Jana Pelouchová and Giora Sharf (co-founders of the CML Advocates Network) and Euzebiusz Jan Dziwinski (Vice President of the Nationwide Association for CML Patients Aid) 

 


 

Update on the CML Advocates Network

Jana Pelouchova and Giora Sharf (co-founders of the CML Advocates Network)

 

 

 


Tribute to Ferdinand Mwangura 

Hrim Amal (AMAL General Secretary)

  

 


CML 301 – Introduction into CML, science and data

Šarūnas Narbutas (CML Advocates Network Steering Committee - Region Central and Eastern Europe & West Asia representative)  and Jan Geissler (co-founder of the CML Advocates Network)

 


 

Medical #1: CML Management in Countries with Access Challenges  


CML Horizons 2018 FRI12 Access to treatment (Eastern Europe) from CML Advocates Network on Vimeo.

 


CML Horizons 2018. FRI12 Access to monitoring (Africa) from CML Advocates Network on Vimeo.

 

 

CML Horizons 2018 FRI12 TFR in low and middle-income countries (Asia) from CML Advocates Network on Vimeo.

 

 


Advocacy #1: Improving the communication with patients

CML Horizons 2018. FRI13 Advocacy 1 Improving the communication with patients. Cristian Neves. Roleplay with Gail Sperling, Giantonio Rosti and Erin Schwarz.

CML Horizons 2018. FRI13Advocacy 1 Improving the communication with patients from CML Advocates Network on Vimeo.

 

 

CML Horizons 2018. FRI13 Managing anxiety from CML Advocates Network on Vimeo.

 

CML Horizons 2018 FRI13 Talking to teenage patients from CML Advocates Network on Vimeo.

 

CML Horizons 2018 FRI13 Empowering the caregivers from CML Advocates Network on Vimeo.

 

 


Regional report

CML Horizons 2018. FRI14 Regional report from CML Advocates Network on Vimeo.

 

 


DAY 2 - SATURDAY, 5 May 2018

Here you will find the video web streams of all CML Horizons 2018 sessions of DAY 2 (Saturday).

 

Advocacy #2: Evidence Based Advocacy 1 - Generating the evidence

CML Horizons 2018 SAT09 Barking up the right tree on access, policy & research. from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT09 Doing surveys: The Leukaemia Care Patient Experience Survey from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT09 Social Media-based data Facebook Group example from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT09 Patient-Reported Outcome Measures from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT10.5 Doing Focus Groups. Max Foundation Focus Group on PCR. Cathy Scheepers from CML Advocates Network on Vimeo.

 

 


 

Medical #2: First-line decision making

 

CML Horizons 2018 SAT11 Did the introduction of generics change clinical decisions in first-line therapy from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT11 Update on Treatment Guidelines from CML Advocates Network on Vimeo.

 


 

Medical #3: Side Effect Management

CML Horizons 2018 SAT11 Long-term side effects of TKIs from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT11 Collaboration of cardiologists and hematologists from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT11 Side effect management Nurse experience. from CML Advocates Network on Vimeo.

 


 

Advocacy #3: Stopping CML treatment - clinical data, bad practice, patient information

CML Horizons 2018 SAT12 Clinical update on TFR studies from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT12 Bad Practice examples from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SAT12 Informing patients about TFR from CML Advocates Network on Vimeo.

 

 


DAY 3 - SUNDAY, 5 May 2018

Here you will find the video web streams of all CML Horizons 2018 sessions of DAY 3 (Sunday).

 

Medical #4: New Agents / New Regimens

CML Horizons 2018. SUN09 ABL001 Ascitinib trials. from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SUN09: Is there any evidence to use lower TKI doses from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SUN09 How will therapeutic landscape in CML change in next 5 years in your region? from CML Advocates Network on Vimeo.

 


Advocacy #4: Evidence based advocacy 2 - Using the evidence (Theory & Examples)

CML Horizons 2018 SUN10 Influencing industry from CML Advocates Network on Vimeo.

 

CML Horizons 2018 SUN10 Influencing regulators and HTA from CML Advocates Network on Vimeo.

 


CML Horizons 2018 SUN10 Influencing scientists and clinicians from CML Advocates Network on Vimeo.

 


Best Poster Award, closing and farewell

CML Horizons 2018 SUN11 Best poster award. Closing and farewell from CML Advocates Network on Vimeo.

 

 

 

 

 

 

 

 

 

 

 

CML Horizons 2019 - Preliminary Program

CML Logotype Nairobi 2019 2

 

 Register here - Preliminary Program - Conference feeScholarship Application

Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements

 

Preliminary Programme of CML Horizons 2019

Friday 17th to Sunday 19th May 2019

matrix 3

Faculty - Dr. Francois Mahon, Dr. Gianantonio Rosti, Dr. Qian Jiang, Dr. Abinya and Dr. Benneh from Ghana. More speakers are expected to confirm soon.

Overall contact and programme coordination

  • Please contact  Lidija Pecova Tel: +389 7838 8235, or Jan Geissler   or Giora Sharf should you need any clarification about the conference programme.

 

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