CML Horizons 2014 - Registration

CML-Landscape-Belgrade-2014-1

Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Venue & Accommodation - Acknowledgements

 

Welcome to the CML Horizons 2014 Registration Website!

CML Advocacy: Learn. Share. Grow.
2-4 May 2014, Belgrade, Serbia

Register Now!

We are looking forward to our  third  CML Horizons conference held at the Metropol Palace Hotel, Belgrade, on 2-4 May 2014. The CML Horizons Steering Committee has worked hard to ensure that the conference includes topics of importance to the CML patient community. The conference provides a unique opportunity for participants to share experiences and best practice. We hope that as a result of this meeting, CML patient groups globally will improve their capacity to meet the needs of their constituents and optimize their advocacy activities.

MEETING SCHEDULE

CML Horizons 2014 starts on Friday, 2 May 2014 at 12:30h with a welcome lunch, and ends on Sunday, May 4th, 2014 with a farewell lunch at 14:00h. A parallel session with a "CML 101 / Horizons 101" and a meeting on "CML Advcocates in Research" will be held on Friday 2 May from 10:30.

The programme features world-renowned CML experts - confirmed speakers are Dr Giuseppe Saglio from Italy, Dr Philipp Le Coutre from Germany, Dr. Neil Shah from the USA, Dr. Andrija Bogdanovic from Serbia, Dr. Qian Jiang from China and many more.

IN CASE OF QUESTIONS

Liberty Incentive & Congresses Serbia  is the logistics agency that will handle all logistical issues of this conference. Please contact only Liberty Incentive & Congresses for changes of bookings, questions about accommodation and transfers, costs, etc.  Your day to day contact will be Natasa Kokir , cml2014@liberty-serbia.com , tel +381 11 3625 036 and Mobile: +381 62 30 40 72.

All Tours Travel is our travel agency and will do flights booking for speakers, steering committee members and grants recievers. Your contact for travel booking will be Avigail avigail@alltours.co.il or Nimrod nimrod@alltours.co.il  Tel- +97248670670.

Please contact Nicole Schroeter nicole@cmladvocates.net, Jan Geissler jan@cmladvocates.net and Giora Sharf giora@cmladvocates.net should you need any clarification about the conference programme, or see challenges in attending CML Horizons 2014.

CML HORIZONS STEERING COMMITTEE

The programme has been governed by a global steering committee consisting of CML patient advocates from North America, Latin America, Asia, Europe, Middle East and Africa:

  • Gina Russo (USA/North America)
  • Bahija Gouimi (Morocco/Africa)
  • Mina Daban (France/Europe)
  • Giora Sharf (Israel/Middle East)
  • Jan Geissler (Germany/Europe)
  • Jana Pelouchová (Czech Rep./Europe)
  • Pat Garcia-Gonzalez (USA/Latin America)
  • Zhengchen Liu (China/Asia-Pacific)

 

CML Horizons 2014 - Program and Timing

CML-Landscape-Belgrade-2014-1

Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Venue & Accommodation - Acknowledgements

 

Preliminary Program

 

 

2014 03 28 CMLHZ14 - Programme Overview reviewed version

Confirmed faculty

  • CML experts: Dr Saglio, Dr. Neil Shah, Dr Bogdanovic, Dr Giang,
  • We are proud to announce that several other top speakers have confirmed their participation. Among them are: Annette Freidank, Martin Godfrey, Tamás Bereczky, Prof. Caraco, Sarah Liptrott

Overall contact and programme coordination

 

CML Horizons 2016 - Call for Abstracts

Call for Abstracts:
CML Advocacy Best Practice presentations at CML Horizons 2016

 

What is the Advocacy Best Practice Sharing session?

The CML Advocacy Best Practice session, held on Friday 6 May 2016 will include very short presentations and concise, focused discussions one of two topics:

1. CML Generics,
 - or -
2. Advocating for access to CML therapy

The aim of the session is provide participants with the opportunity to learn from the initiatives and experience other other CML organisations in these two topic areas.

Participants are now invited to submit abstracts for this session until 1 April 2016. The CML Horizons Steering Committee will then review all abstracts and select those that will be presented during the session.

 

What is the format of the session? How am I expected to present?

The CML Advocacy Best Practice session consists of 8 short (maximum 6 minutes, maximum 6 slides) plenary presentations  covering an initiative in the two topic areas. Each of the presentations will be followed by 4 minutes discussion. The presentations should not be about the organisation but about its initiative or activity.

 

How can I suggest to present in the CML Best Practice session?

Participants who would like to present in the session are invited to submit a short abstract using the form below. Please click on "submit" to submit your abstract:

Suggest a clinical trial in Chronic Myeloid Leukemia

Please provide us with information about a CML clinical trial!

We are delighted that you suggest a study to us that has so far not been listed in our inofficial CML trial registry. THANK YOU!

We are listing all clinical trials that are currently recruiting patients or are just about to start. You are helping us greatly if you give us as complete information as possible. In case of questions, please contact CML Advocates Network / Celia Marin at celia@lepaf.org

(*) are required fields.

Personal data

Your name and e-mail address is not being provided to third parties. They are only used to contact you in case we have further questions to clarify the data you provided in this form.
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Information about the clinical trial

Short title of the study(*)
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Official title of the study
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Short description of the intervention(*)
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Indication and most important inclusion criteria
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Type of trial(*)
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Is the study multinational?(*)

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Submit the data

 

What happens after I have submitted the abstract?

The CML Steering Committee will review the abstracts and select which ones will be presented during the CML Advocacy Best Practice session. If your abstract is not selected, please feel encouraged to bring a poster with you to the meeting to display in the poster area.

Participants will be informed three weeks before the conference, to give you enough time to prepare your presentation. The slides must be provided at least 9 days weeks prior to the conference, to be reviewed. Please note the number of slides should not exceed 6 slides.


Your CML Horizons Steering Committee

 

 

CML Horizons 2014 - Scholarships

CML-Landscape-Belgrade-2014-1

Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Venue & Accommodation - Acknowledgements

 

Application for Scholarship / Conference Grant

CML Horizons 2014, the international conference for organizations representing people with CML, will take place 2-4 May 2014 in Belgrade, Serbia. This two and a half day conference has the aims of:

  • Updating patient advocates on developments in different aspects of CML management
  • Helping participants develop skills to support their roles as advocates
  • Reviewing successful strategies that can be used by advocates to address common problems/issues
  • Building patient group capacity
  • Providing a forum for patient advocates from different countries worldwide to network and exchange of best practice.

The conference agenda has been prepared by a Steering Committee which consists of leading CML patient advocates from around the world.
20 travel grants, full or partial,  are available for advocates who are interested in attending the conference and who cannot find local sponsors for their attendance. Applications for these grants are invited from interested advocates. Those that are granted will receive an economy class return ticket and will not need to pay the conference fee.

Grant Eligibility

To be eligible for scholarship / grant, candidates should:

  • Be a staff member or volunteer of an established CML patient organization that is a member of CML Advocates Network,
  • Be in a country where a local sponsor is unavailable to support attendance at the conference, or
  • Be an individual who is in the process of setting up a CML patient organization where regulations prohibit local sponsoring his/her attendance at the conference.
  • Hold a position where they can shape ongoing advocacy activities and initiate new ones
  • Be proficient in English Preference will be given to applicants coming from countries with limited resources.

Grant Types

We are offering 2 types of grants, which will be given according to the needs of each applicant.

  • Full grant: This grant will cover both the flight costs and an exemption from the conference fee.
  • Partial grant: This grant will cover either the flight costs or the conference fee. 

Application procedure

Interested advocates should submit a  document completed application form (70 KB) by 16 March 2014. Please email your application to Natasa Kokir, email: cml2014@liberty-serbia.com

The CML Steering Committee members will review and prioritize all applications received by the application closing date. Applicants will be informed whether they will receive a grant, and whether it is a full or partial grant, by 23 March 2014.

 

 

CML Horizons 2016 - Call for Abstracts

Call for Abstracts:
CML Advocacy Best Practice presentations at CML Horizons 2016

 

What is the Advocacy Best Practice Sharing session?

The CML Advocacy Best Practice session, held on Friday 6 May 2016 will include very short presentations and concise, focused discussions in one of two topic areas:

1. CML Generics,
 - or -
2. Advocating for access to CML therapy

The aim of the session is provide participants with the opportunity to learn from the initiatives and experience of other CML organisations in these two topic areas.

Participants are now invited to submit abstracts for this session until 1 April 2016. The CML Horizons Steering Committee will then review all abstracts and select those that will be presented during the session.

 

What is the format of the session? How am I expected to present?

The CML Advocacy Best Practice session consists of 8 short (maximum 6 minutes, maximum 6 slides) plenary presentations covering an initiative in the two topic areas. Each of the presentations will be followed by 4 minutes discussion. The presentations should not be about the organisation but about one particular initiative or activity.

 

How can I submit an abstract?

Participants who would like to present in the best practice session are invited to submit a short abstract using the form below. Please click on "submit" to submit your abstract:

CML Horizons 2017 - Call for Abstracts

 

What happens after I have submitted the abstract?

The CML Steering Committee will review the abstracts and select which ones will be presented during the CML Advocacy Best Practice session. If your abstract is not selected, please feel encouraged to bring a poster with you to the meeting to display in the poster area.

Participants will be informed 3 weeks before the conference, to give you enough time to prepare your presentation. The slides must be provided at least 9 days weeks prior to the conference, to be reviewed. Please note the number of slides should not exceed 6 slides.


Your CML Horizons Steering Committee

 

CML Horizons 2014 - Acknowledgement of Sponsors

CML-Landscape-Belgrade-2014-1

Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Venue & Accommodation - Acknowledgements

 

Acknowledgement of Sponsors

 

We would like to thank the following sponsors for providing unconditional educational funding - without their support, this conference would not be possible:

  • Novartis Oncology (Initiating platinum sponsor)
  • Bristol-Myers Squibb (Gold Sponsor)
  • Pfizer (tbc)
  • Ariad (tbc)
  • iCMLf (tbc)
  • Leukemia & Lymphoma Society (Bronze Sponsor)
  • Asuragen (Bronze Sponsor)

(More grant requests pending - we hope to have more supporters of the conference)

 

 

CML Horizons 2014 - Conference fee

CML-Landscape-Belgrade-2014-1

Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Venue & Accommodation - Acknowledgements

 

Conference fee and travel costs for patient delegates

Patient advocates are expected to cover their own travel to  Belgrad airport (e.g. flights). Transport from the airport to the conference venue will be provided for free.

A conference fee of EUR 500 per delegate will be invoiced to the participant in the name of the Leukemia Patient Advocates Foundation, Switzerland, in advance of the meeting. Payment must arrive before the start of the conference. The fee will cover all costs including attendance at the conference, max. 3 nights of accommodation in a single room, local transport, catering, and Internet access in the conference room, etc. It will not cover incidental costs like bar, mini-bar, room WiFi, phone calls, taxi costs, upgrades for double rooms, relatives attending the conference, and any other non-official activities. The conference fee must also be paid in case of cancellations later than 30 days before the conference.
The conference fee should be paid by wire transfer to the foundation. Should another postal address be required on the invoice for the conference fee, the delegate must provide a note during the electronic registration process, stating the full postal address.

Conference fee and travel costs for representatives of the sponsors

Sponsors' delegates are also expected to register at the registration website. Room bookings will then be made by the logistics agency. Pharma representatives are expected to settle their room costs at the hotel. We will  organize their individual local transport  to the conference venue if you provide us with their flight details at least two weeks before the conference. Costs for attending the conference, including the daily delegate rate and all meals, will be covered by us and will not be invoiced to pharma representatives.

Questions?

Please contact Nicole Schroeter nicole@cmladvocates.net, Jan Geissler jan@cmladvocates.net and Giora Sharf giora@cmladvocates.net should you need any clarification about the conference programme, or see challenges in attending CML Horizons 2014.

 

CML Horizons 2013 - Learn. Share. Grow: Presentations and Web Streams

CMLHZ13-group-photoCML Horizons 2013

CML Advocacy: Learn. Share. Grow.
3-5 May 2013, Prague, Czech Republic

The "CML Horizons 2013" conference, held on 3-5 May in Prague (Czech Republic), was a great success. We were thrilled to welcome 141 participants from almost 60 countries. The conference has once again demonstrated the great power of the global community: inspiring best practice presentations, posters, marketplace sessions and Action Forum sessions - and excellent updates by CML experts. But the conference doesn't just provide scientific knowledge and advocacy skills, but much more - we feel that over the years, the community has developed a great collaborative spirit across borders and regions, and has become a unique global family.

CML Horizons is a fully community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. It was run by the CML Advocates Network, hosted by the newly established, non-profit, swiss-based, patient-driven "Leukemia Patient Advocates Foundation" in Switzerland.

Presentations and Video web streams

Click on "PDF"  to see all presentations or on "Video Stream" to see the full video web-stream of all sessions! Please note that the speakers have authorized CML Advocates Network to provide the PDFs on this website, but it is not allowed to upload them somewhere else! So if you want to share the slides or the webstreams, please do this by linking to this page or the files on this site!

 

Welcome

 

Welcome note by star tenor and leukemia survivor José Carreras

European Session

  1. Introduction - Video Stream
  2. Health Technology Assessment
    • HTA and patient involvement from a European perspective (Martin Visnansky, Slovakia) -  PDF - Video Stream
    • HTA and CML: involvement in practice (David Ryner, UK) -  PDF - Video Stream
  3. Cross border healthcare in the EU (S. Narbutas, Lithuania) - Video Stream

Ideal World vs. Reality: New Challenges with Substandard Drugs & Generics

CML Update

  • Introduction (Zhenxi Zhong, China) - Video Stream
  • All available drugs from clinical/efficacy point of view - how do they compare?  (Gianantonio Rosti, Italy) -  PDF - Video Stream
  • All available drugs from a side effect point of view - how do they compare? (Dina Ben Yehuda, Israel) -  PDF - Video Stream
  • Most potent induction, or early escalation on the most affordable drug? Context of therapy optimization and costs (Tim Hughes, Australia) -  PDF - Video Stream

Path to cure and treatment-free survival

  • Does transplant still have a role? News in transplant? How to treat advance disease? Transplant+TKI combination? (Jane Apperley, UK) -  PDF - Video Stream
  • Latest experience from STOP trials (Tim Hughes, Australia) -  PDF - Video Stream
  • What is the "real" cure? Is stopping really a feasible approach? (Dina Ben Yehuda, Israel) -  PDF - Video Stream
  • Panel discussion - is stopping feasible or do we need to wait for new curative treatments? - Video Stream

Experts Market Place

  • Using the Internet for CML advocacy (Kris Griffin, "Access CML Drugs" Blog, UK) -  PDF - Video Stream
  • How to advocate to policy makers (Nicola Bedlington, European Patients' Forum) - PDF
  • Working with pharma (Sandy Craine, CML Support UK; Helen Roberts, Novartis Oncology) - PDF1, PDF2
  • How to run a patient group meetingPDF (Viji Venkatesh, Markus Wartenberg)

CML in Real Life – Quality of life, adherence and pregnancy

  • CML and Quality of Life: What is the impact of life-long CML therapy on Quality of Life? (Fabio Efficace, Italy) -  PDF - Video Stream
  • Results from our global CML Advocates Adherence Survey (Giora Sharf, Israel) -  PDF - Video Stream
  • CML and pregnancy, how to plan a family (Jane Apperley, UK) -  PDF - Video Stream

Best Practice in CML Advocacy

  • Introduction (Jana Pelouchová, Czech Republic) - Video Stream
  • Rising Sun, a network of CML advocates from the Asia-Pacific region (Rod Padua, Philippines) -  PDF - Video Stream
  • Counselling sessions with haematologists as volunteers for patients (Milena Remic, Slovenia) -  PDF - Video Stream
  • Advocacy networking - joining forces with like-minded organizations to spread cancer awareness (Ferdinand Mwangura, Kenya) -  PDF - Video Stream
  • CML Life Africa (Bahija Gouimi, Morocco) -  PDF - Video Stream
  • What is my PCR? A global awareness campaign (Pat Garcia-Gonzalez, US) -  PDF - Video Stream
  • Quality of Life survey (Cheryl-Anne Simoneau, Canada) -  PDF - Video Stream

Monitoring and Guidelines

  • Introduction (Pat García-Gonzalez, US) - Video Stream
  • The basic monitoring before we can talk about "cure" (Katerina Machova-Polakova, Czech Republic) -  PDF - Video Stream
  • New and advanced monitoring techniques – and their costs (Tim Hughes, Australia) -  PDF - Video Stream
  • What do the treatment guidelines say? Update on the new ELN, NCCN recommendations (Gianantonio Rosti, Italy) -  PDF - Video Stream
  • Discussion: The (political and medical) importance of medical guidelines, how patient groups can contribute - Video Stream

Advocacy in Action: The Action Forum

  • How to increase engagement on World CML Day (Kathy Redmond, Erin Schwartz)
  • Increasing capacity in CML groups, introducing training (René Steuer) -  PDF - Video Stream
  • Call for better care: updating the Baveno declaration (Pat Garcia-Gonzalez)
  • Report of break-out-sessions - Video Stream

CML Steering Committee

The programme has been governed by a global steering committee consisting of CML patient advocates from North America, Latin America, Asia, Europe, Middle East and Africa. The CML Steering Committee 2011-2013 was:

  • Anita Welborn (USA/North America)
  • Bahija Gouimi (Morocco/Africa)
  • Euszebius Jan Dziwinski (Poland/Europe)
  • Giora Sharf (Israel/Middle East)
  • Jan Geissler (Germany/Europe)
  • Jana Pelouchová (Czech Rep./Europe)
  • Pat Garcia-Gonzalez (USA/Latin America)
  • Zhengchen Liu (China/Asia-Pacific)

For any questions regarding the conference, please contact the conference coordinators Giora Sharf, giora@cmladvocates.net and Jan Geissler, jan@cmladvocates.net

 

Sponsorship Acknowledgement

We would like to thank the following organisations for providing unconditional educational funding. Without their support, this conference would not be possible:

  • Novartis Oncology (Initiating platinum sponsor)
  • Bristol-Myers Squibb (Gold Sponsor)
  • Pfizer Oncology (Silver Sponsor)
  • Ariad (Silver Sponsor)
  • The Leukemia & Lymphoma Society (BronzeSponsor)
  • International CML Foundation (Additional supporter)
  • AsuraGen (Additional supporter)

CML Horizons 2014 - Travel

CML-Landscape-Belgrade-2014-1

Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Venue & Accommodation - Acknowledgements

 

Arrival and departure dates and times

Arrival date: Friday  2 May 2014

  • flights for advocates   should not land later than 9:00, as the European and other regional pre-meetings start at 10:30
  • It is recomended that advocates arrive on Thursday May 1st to be able to attend the regional pre-meetings
  • All conference participants meet for lunch on Friday 2 May at 12:30h. The global meeting starts at 14:00h.

Departure date: Sunday,  4 May 2014

  • Flights should not depart earlier than 16:30h; in case you like to participate in the city tour, then the flights should not depart before 21:30h

Visa

Please make sure that delegates have valid travel documents, and that you apply for visas early! Should you need an official invitation letter to obtain a visa, please let Natasa Kokir at  cml2014@liberty-serbia.com  know well in advance.

Travel of patient advocates

Patient advocates are expected to book and cover their own travel to Belgrade airport (e.g. flights). Transport from the airport to the conference venue will be provided for free. A conference fee of EUR 500 per delegate will be raised. The fee will cover all costs including attendance at the conference, max. 3 nights of accommodation in a single room, local transport, food and drinks, and Internet access in the conference room, etc. It will not cover incidental costs like bar, mini-bar, room WiFi, phone calls, taxi costs, upgrades for double rooms, relatives attending the conference, and any other non-official activities.

After registration, please provide our logistics agency "Liberty", Natasa Kokir at  cml2014@liberty-serbia.com, with your travel details so we can arrange your local transport and accommodation accordingly. These details should be provided no later than 1 month before the meeting, or by April 3 ed, 2014.

In addition, travel grants are available for some advocates who are interested in attending the conference. Applications for these grants are invited from interested advocates. Those that are granted will receive an economy class return ticket and will not need to pay the conference fee. See the page on scholarships.

Travel of Steering Committee, receivers of travel grants, and speakers

We will book your flights for Steering Committee members, Grants recievers and speakers. Please do not book your own travel.

To arrange your filghts please contact our travel agency- All Tours, as soon as possible, and indicate your preferences for departure day and time, which airport, and airline. Also provide your prefered return day and time. The travel agency will try to book your flights according to your preferences, taking also into account costs.

Here are the contact details for All Tours Travel agency:

Avigail: email- avigail@alltours.co.il      Nimrod: email- Nimrod@alltours.co.il   You can contact anyone of these 2 agents.

Phone- Office- +972-48670670.

For emergencies- Avigail's mobile- +972-504265880,   Nimrod's Mobile- +972-504265878

Since flight rates are going up on a daily basis, if you are one of the participants whose flights will be booked by us, please contact the travel agency as soon as possible.

Travel of representatives of sponsors

Be aware that even though you need to book your own flights, we need your registration with flight details to be able to book your hotel room and arrange your transfers from teh airport to teh hotel.

Questions?

Please contact Nicole Schroeter nicole@cmladvocates.net, Jan Geissler jan@cmladvocates.net and Giora Sharf giora@cmladvocates.net should you need any clarification about the conference programme, or see challenges in attending CML Horizons 2014.

 

CML Horizons 2014 - Venue and Accommodation

CML-Landscape-Belgrade-2014-1

Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Venue & Accommodation - Acknowledgements

 

 

belgrade

Venue and Accommodation

City of Belgrade

Belgrade is the capital and the largest city of Serbia. It is located at the place where river Sava confluences into the river Danube, the place where the Pannonian Plain meets the Balkans. Translated into English it means White city.

The city has the population of 1.6 people living in it formally and informally about 2 million inhabitants making it one of the biggest cities of the Southeastern Europe.

Belgrade is known for its turbulent history and great nightlife for all ages.

The average temperature in May is 18 degrees C° (lowest is 12 and highest is 22 C°).

Belgrade City Tour

For those interested, we will be offering an optional 3 hours tour of the main attractions of Belgrade, on Sunday afternoon. This will not be a part of the program, and those who will like to join this tour will need to register at the hospitality desk at the hotel and pay the costs directly to Liberty- the logistic agency.

The congress venue: Metropol Palace Belgrade

Metropol, Luxury Gem of Belgrade

Stunning five star Belgrade hotel, the Metropol has always been the heart of Belgrade's social life and the host to all its most esteemed guests. Designed by famous Serbian architect Dragiša Brašovan and originally opened in 1957, the Metropol Hotel reopened in 2012 as Metropol Palace, a Luxury Collection Hotel. Located in the city center near the Serbian National Parliament, after a total renovation and a new design by MKV, Metropol Palace can now be considered the luxurious modern gem of Belgrade again.

From the moment you walk into the Metropol Palace, its wide lobby emanates a sense of peace and comfort that instantly relaxes and unwinds. Our sumptuous selection of accommodations provides distinct design and supreme luxury: 199 elegant guest rooms and 40 suites with magnificient view over the Tasmajdan park, are all generously furnished to accommodate all types of requirements, and complete with the latest in communications and entertainment technology.

Hotel website: http://www.metropolpalace.com/?PS=LGEN_AA_DEMA_CGGL_TPRP 

Address & Map:
Bulevar Kralja Aleksandra 69 · Belgrade 11000 · Serbia,  Phone: (381)(11) 3333100
see Google Maps

 

 

 

For any questions regarding the conference, please contact the conference coordinators Giora Sharf, giora@cmladvocates.net and Jan Geissler, jan@cmladvocates.net

 

CML Horizons 2014 - Learn. Share. Grow: Presentations and Web Streams

CMLHZ2014 Group pictureCMLHZ2014 PanelCML-Landscape-Belgrade-2014-2

CML Advocacy: Learn. Share. Grow.
2-4 May 2014, Belgrade, Serbia

On 2-4 May 2014, 119 delegates from 58 countries supporting patients and families affected by Chronic Myeloid Leukemia (CML) met in Belgrade (Serbia) to learn from medical experts, share best practice in patient advocacy and grow their organization’s capacity. Again this year, enlightening medical sessions and discussions, inspiring posters and enriching best practice examples served mainly two purposes: to improve the life of patients and empower patient groups!

CML Horizons is a fully community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. It was run by the CML Advocates Network, hosted by the newly established, non-profit, swiss-based, patient-driven "Leukemia Patient Advocates Foundation" in Switzerland.

Presentations and Video web streams

Click on "PDF"  to see all presentations or on "Web Stream" to see the video of the presentation.

Please note that the speakers have authorized CML Advocates Network only to provide the PDFs and webstreams on this website, but it is not allowed to upload the PDFs somewhere else! So if you want to share the slides or the webstreams, please do this by linking to this page or the files on this site! 

Welcome

Parallel pre-meetings

  1. CML basics and CML 101 (Pat Garcia-Gonzalez, María Isabel Gómez de Soriano)  -  PDF  -  Video Stream
  2. How CML patient advocates could engage in CML research (Jan Geissler, Mina Daban, Felice Bombaci)  PDF

Advocacy-Session #1: Presenting the regions - initiatives, priorities and main challenges of each region and how the CML Advocates Network helps addressing them

Medical Session #1: CML Update

Medical Session #2: CML in real life, comorbidities and drug interaction

Advocacy-Session #2: Hands-on use of Social Media by Patient Organisations

  • How to maximize Facebook and Twitter to reach a broader patient audience (Martin Godfrey - 3 Monkeys)  -  PDF  -  Video Stream

Advocacy-Session #3: Developing and implementing an Advocacy Strategy

  • Strategy & Best Practice Example "EATG Community Advisory Boards" (Tamás Bereczky - EATG)  -  PDF  -  Video Stream

Medical Session #3: The new realities: Generics and Copy Drugs in CML

Medical Session #4: Treatment-Free Remission, or Eradicating CML?

  • STOP trials – results, learnings and outlook (Giuseppe Saglio)  -  PDF  -  Video Stream
  • The concept of STOP trials - is there a new role for Interferon? (Susanne Saußele)  -  PDF  -  Video Stream
  • Outlook - The future of CML therapy (Neil Shah)  -  PDF  -  Video Stream

Advocacy-Session #4: Supporting people living with CML

  • Book presentation:Le Livre Blanc des Etats Generaux de la LMC“ - from the first general state of the LMC (Mina & Stéphane Daban - LMC France, France)  -  PDF  -  Video Stream
  • Managing distress as an advocate (Gail Sperling - The Leukemia & Lymphoma Society, USA)  -  PDF  -  Video Stream
  • Sex, self-esteem and a chronic disease (Sarah Liptrott - European Institute of Oncology, Italy)  -  PDF  -  Video Stream

 

CML Steering Committee

The programme has been governed by a global steering committee consisting of CML patient advocates from North America, Latin America, Asia, Europe, Middle East and Africa. The CML Steering Committee 2013-2015 is:

  • Gina Russo / Gail Sperling (USA/North America)
  • Bahija Gouimi (Morocco/Africa)
  • Mina Daban (France/Europe)
  • Giora Sharf (Israel/Middle East)
  • Jan Geissler (Germany/Europe)
  • Jana Pelouchová (Czech Rep./Europe)
  • Pat Garcia-Gonzalez (USA/Latin America)
  • Zhengchen Liu (China/Asia-Pacific)

For any questions regarding the conference, please contact the conference coordinators Giora Sharf, giora@cmladvocates.net and Jan Geissler, jan@cmladvocates.net

 

Sponsorship Acknowledgement

We would like to thank the following organisations for providing unconditional educational funding. Without their support, this conference would not be possible:

  • Novartis Oncology (Initiating platinum sponsor)
  • Bristol-Myers Squibb (Gold Sponsor)
  • Pfizer Oncology (Gold Sponsor)
  • Ariad (Bronze Sponsor)
  • The Leukemia & Lymphoma Society (Bronze Sponsor)
  • International CML Foundation (Bronze Sponsor)

CML Horizons 2015 - Learn. Share. Grow: Presentations, web streams and photo gallery now available!

Group photo CMLHZ15-800Conference CMLHZ15-800CMLHZ15logo-720px

CML Advocacy: Learn. Share. Grow.
1-3 May 2015, Barcelona, Spain

From 1-3 May 2015, the CML Advocates Network welcomed 118 delegates (among them almost 30 newcomers) supporting patients and families affected by Chronic Myeloid Leukemia (CML) to its annual conference CML Horizons that this year was held in Barcelona (Spain). Delegates from 65 countries worldwide (Europe, North America, Asia, Africa, Middle East and Latin America) came to Barcelona to learn from medical experts, share best practice in patient advocacy and grow their organization’s capacity. Besides enlightening medical sessions and interesting panel discussions, for the first time an interactive poster session was held. Furthermore, at this year´s conference a new CML Horizons Steering Committee was elected.

CML Horizons is a fully community-run and multi-sponsored conference, which has evolved from the "New Horizons" conferences 2002-2011. The annual conference is run by the CML Advocates Network, hosted by the non-profit, swiss-based and patient-driven "Leukemia Patient Advocates Foundation".

Presentations, photo gallery, video web streams and conference report are available now!

Click on "PDF" to see all presentations. If you wish to translate selected presentation, please contact Nicole at nicole@cmladvocates.net and ask for the powerpoint-file! This will make it easier for you to translate the presentation to the language of your choice.

To stream individual sessions click on "Web Stream" below. Alternatively, you can click on the following links where we have sorted all video streams by day:

Web Streams for Day 1 (Friday, 1 May 2015)

Web Streams for Day 2 (Saturday, 2 May 2015)

Web Streams for Day 3 (Sunday, 3 May 2015)

Please note that the speakers have authorized CML Advocates Network only to provide the PDFs on this website, but it is not allowed to upload the PDFs somewhere else! So if you want to share the slides, please do this by linking to this page or the files on this site! 

Welcome

  • Welcome to Barcelona, by Giora Sharf (CML Advocates Network) and María Navarro (Spanish Patients' Forum)  -  PDF & Web Stream (Giora) / PDF & Web Stream (María)

Parallel pre-meetings

  1. CML 101 (Pat Garcia-Gonzalez)  -  PDF & Web Stream
  2. Patient involvement in CML research (Jan Geissler)  -  PDF - session was not recorded! No webstream available!

Medical Session #1: CML Update

Advocacy Session #1: Advocacy examples on access to treatment & care

Elections 2015 – Presentations of candidates for the CML Horizons Steering Committee - PDF - Nomination Forms - Web Stream

Medical Session #2: Treatment-free remission: Opportunities and challenges

Advocacy Session #2: World CML Day Toolkit

Medical Session #3: Living (long) with CML

  • Long-term side effect profiles of CML treatments, cardiovascular & thrombotic events (Andreas Hochhaus)  -  PDF & Web Stream
  • Managing CML in children and young adults (Frederic Millot)  -  PDF & Web Stream
  • Panel discussion: What is different for adolescent patients with CML? (Cornelia Borowczak, Rod Padua, Cristian Neves, Frederic Millot, Andreas Hochhaus) - Web Stream

Advocacy Session #3: Marketplace of the regions - Interactive poster session

CML Horizons Steering Committee 2016-2017: Results of the elections - PDF

Advocacy-Session #4: Advocating on generics and fighting for quality of care

  • Introduction: How are drugs approved and monitored? (Nicole Schröter)  -  PDF & Web Stream
  • CML TKI register & Declaration on Generics (Jelena Čugurović)  -  PDF & Web Stream
  • Debate: Going from fear to action – what can advocacy do? (Pat Garcia-Gonzalez, Sandra Shaw, Jelena Čugurović, Hari Menon) - Web Stream

Medical Session #4: Future outlook and future ways to do CML research

  • Overview: Clinical Drug Development Process (Jan Geissler)  -  PDF & Web Stream
  • Beyond TKIs - addressing different pathways (Arnon Nagler)  -  PDF & Web Stream
  • Upcoming clinical trials (Michael Mauro)  -  PDF & Web Stream
  • Summary: What is the role of CML patient groups in developing the future of CML treatment? (Giora Sharf) - PDF & Web Stream

CML Steering Committee

The programme has been governed by a global steering committee consisting of CML patient advocates from North America, Latin America, Asia, Europe, Middle East and Africa. The CML Steering Committee 2014-2015 was:

  • Gail Sperling (USA, region North America)
  • Bahija Gouimi (Morocco, elected representative region Africa & Middle East)
  • Mina Daban (France, elected representative region Europe)
  • Giora Sharf (Israel, co-founder & permanent member of the Steering Committee)
  • Jan Geissler (Germany, co-founder & permanent member of the Steering Committee)
  • Jana Pelouchová (Czech Republic, co-founder & permanent member of the Steering Committee)
  • Pat Garcia-Gonzalez (USA, elected representative region Latin America)
  • Zhengchen Liu (China, elected representative region Asia-Pacific)

The new CML Horizons Steering Committee elected during the CML Horizons 2015 conference and appointed for the period 2016-2017 consists of the following representatives:

  • Gail Sperling (USA, elected representative region North America)
  • Bahija Gouimi (Morocco, elected representative region Africa & Middle East)
  • Rita O. Christensen (Denmark, elected representative region Western Europe)
  • Jelena Cugurovic (Serbia, elected representative region Central and Eastern Europe & West Asia)
  • Giora Sharf (Israel, co-founder & permanent member of the Steering Committee)
  • Jan Geissler (Germany, co-founder & permanent member of the Steering Committee)
  • Jana Pelouchová (Czech Republic, co-founder & permanent member of the Steering Committee)
  • Pat Garcia-Gonzalez (USA, elected representative region Latin America)
  • Rod Padua (Philippines, elected representative region Asia-Pacific)

For any questions regarding the conference, please contact Nicole Schröter, nicole@cmladvocates.net or the scientific coordinators Giora Sharf, giora@cmladvocates.net and Jan Geissler, jan@cmladvocates.net

 

Sponsorship Acknowledgement

We would like to thank the following organisations for providing unconditional educational funding. Without their support, this conference would not be possible:

  • Novartis Oncology (Initiating platinum sponsor)
  • Bristol-Myers Squibb (Gold Sponsor)
  • Pfizer Oncology (Gold Sponsor)
  • Ariad (Silver Sponsor)
  • The Leukemia & Lymphoma Society (Bronze Sponsor)
  • International CML Foundation (Bronze Sponsor)

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