CML Horizons 2015 - Call for Abstracts

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Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Elections - Venue & Accommodation - Acknowledgements

 

Call for Abstracts: CML Advocacy Best Practice presentations at CML Horizons 2013

 

What is the Advocacy Best Practice Sharing session?

This year we have decided to do the best practice sharing in a plenary session, which will give you the opportunity to share your advocacy experience with all participants in a presentation.

The CML Advocacy Best Practice session, held on Saturday, May 4, 2013, will include very short presentations and concise, focused discussions on patient advocacy. The aim of the session is provide participants with the opportunity to share and discuss best practices with their peers. Participants are being invited to submit abstracts for this session. The CML Steering Committee will review the abstracts and select the best practices that will be presented during the session.

 

What is the format of the session?

The CML Advocacy Best Practice session consists of six short (maximum 8 minutes) plenary presentations each covering a different best practice. Over a one and a half hour period there will be 6 short presentations, followed by 5 minutes discussion.

 

Do presenters need to prepare slides for the best practice session?

We would recommendto prepare a small number of slides if it supports your presentation. The maximum number of slides should not exceed 5-6 slides.

 

How can I suggest to present in the CML Best Practice session?

Participants who would like to present in the session are invited to submit a short abstract (maximum 300 words) by email on an advocacy or capacity building initiative (not on your organization!).

Potential topics for presentation include, but are not limited to:

  • Actions that solved a treatment access problem
  • Advocacy networking - joining forces to address an advocacy challenge
  • Reaching patients who are not online
  • Working with volunteers
  • Promoting wellness using complementary therapies
  • Tools that facilitate communication with patients' families (eg. children)
  • Conducting a patient survey
  • Using guidelines as an advocacy tool
  • Supporting caregivers

The presentation should NOT present your organisation but a successful initiative of yours, so other advocates can learn from your experience and potentially do something similar in their countries!

 

Submission Form

Please provide the following information and click on "submit" to submit your abstract:

CML Horizons 2013 - Call for Abstracts
First name (*)

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Last name

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Organisation's name

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Country (*)

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EMail address (*)

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Title of the initiative/presentation that you would like to present (max 8 words) (*)

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Please provide the background of your initiative, and why you decided to undertake the initiative (max 100 words) (*)

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IMPLEMENTATION: Please provide a brief overview of what you did / are doing, and what you want other advocates to learn from your initiative (max 200 words) (*)

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RESULTS: Please provide the results that you have achieved with your initiative (max 100 words) (*)

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Please submit your abstract using this form by 1 April 2013. If you have any questions, please contact Giora and Jan at .

 

What happens after I have submitted the abstract?

The CML Steering Committee will review the abstracts and select six for presentation during the CML Advocacy Best Practice session. If your abstract is not accepted for the advocacy best practice session, you can still bring a poster with you to the meeting to display in the poster area.

Participants will be informed three weeks before the conference, to give you enough time to prepare your session. The slides must be provided at least 9 days weeks prior to the conference, to be reviewed. Please note the number of slides should not exceed 6 slides.


Your CML Horizons Steering Committee

 

 

 

CML Horizons 2015 - Scholarships

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Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Elections - Venue & Accommodation - Acknowledgements

 

Application for Scholarship / Conference Grant

CML Horizons 2015 will take place in Barcelona, Spain. All participants are expected to cover their own travel costs to Barcelona and to pay a conference fee which covers accommodation, local transportation in Barcelona, food, drinks and the cost of the conference.

We encourage everyone to seek sponsors in early 2015 to cover those costs.
However we acknowledge that not everybody is able to find an organisation or sponsor to participate in the conference.

Therefore, a limited number of 25 scholarships, full or partial, are available for patient advocates who are interested in attending the conference and who cannot find sponsors for their attendance. Applications for these grants are invited from interested advocates. Those that are granted will receive an economy class return ticket to Barcelona and will not need to pay the conference fee.

Eligibility criteria

To be eligible for scholarship, candidates should:

  • Be a staff member or volunteer of an established CML patient organization that is a member of CML Advocates Network,
  • Be in a country where a local sponsor is unavailable to support attendance at the conference, or
  • Be an individual who is in the process of setting up a CML patient organization where regulations prohibit local sponsoring his/her attendance at the conference.
  • Hold a position where they can shape ongoing advocacy activities and initiate new ones
  • Be proficient in English
  • Preference will be given to applicants coming from countries with limited resources.

Scholarship types

We are offering two different types of scholarships, which will be given according to the needs of each applicant.

  • Full scholarship: This scholarship will cover both the flight costs and an exemption from the conference fee.
  • Partial scholarship: This scholarship will cover either the flight costs or the conference fee. 

Application procedure

Interested advocates should submit a completed application form by 16 March 2015. Please email your application to Natasa Kokir, email:

The CML Horizons Steering Committee members will review and prioritize all applications received by the application closing date. Applicants will be informed whether they will receive a grant, and whether it is a full or partial grant, by 23 March 2015.

 

 

CML Horizons 2015 - Program and Timing

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Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Elections - Venue & Accommodation - Acknowledgements

 

Preliminary Programme of CML Horizons 2015

cmlhz15-programme-overview2

Confirmed faculty

  • (to be announced soon)

Overall contact and programme coordination

  • Please contact Nicole Schroeter , Jan Geissler and Giora Sharf should you need any clarification about the conference programme, or see challenges in attending CML Horizons 2015.

 

CML Horizons 2015 - Registration

CML-Landscape-Belgrade-2014-1

Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Elections - Venue & Accommodation - Acknowledgements

 

Welcome to the CML Horizons 2015
Registration Website!

CML Advocacy: Learn. Share. Grow.
1-3 May 2015, Barcelona, Spain

Register Now!

We are looking forward to the 13th "CML Horizons" conference held in Barcelona, Spain, on 1-3 May 2015. The CML Horizons Steering Committee has worked hard to ensure that the conference includes topics of importance to the CML patient community. The conference provides a unique opportunity for participants to share experiences and best practice. We hope that as a result of this meeting, CML patient groups globally will improve their capacity to meet the needs of their constituents and optimize their advocacy activities.

MEETING SCHEDULE

CML Horizons 2015 starts on Friday, 1 May 2015 at 10:30 AM with 2 parallel sessions (one session on "CML 101 / Horizons 101"  and one on "HTA 101" or "CML Advocates in Research"). This session will be followed by a welcome lunch and the official welcome of the conference. The conference ends on Sunday, May 3rd, 2015 with a farewell lunch from 13:00-14:00h.

The programme features world-renowned experts in CML and patient advocacy.

IN CASE OF QUESTIONS

Two Liberty Incentive & Congresses offices, one in Spain and the second in Serbia, are the logistics agencies that will handle all logistical issues of this conference. Please read carefully and contact the correct office depending on the type of question you have:

For all issues concerning registration, arrival and departure dates as well as scholarship requests please contact Natasha at Liberty Serbia: ,  Tel: +381113625036 and mobile: +38162304072

For all issues concerning visas, hotel accommodation and transfers please contact Sara Guix from Liberty Spain:
, Tel: +34932890766

All Tours Travel is our travel agency and will do flights booking for speakers, steering committee members and grants receivers. Your contact for travel booking will be Avigail or Nimrod , Tel- +97248670670.

Please contact Nicole Schroeter , Jan Geissler and Giora Sharf should you need any clarification about the conference programme or experience challenges in attending CML Horizons.

CML HORIZONS STEERING COMMITTEE

The programme has been governed by a global "CML Horizons Steering Committee" consisting of CML patient advocates from North America, Latin America, Asia, Europe, Middle East and Africa:

  • Gail Sperling (USA/North America)
  • Bahija Gouimi (Morocco/Africa)
  • Mina Daban (France/Europe)
  • Giora Sharf (Israel/Middle East)
  • Jan Geissler (Germany/Europe)
  • Jana Pelouchová (Czech Rep./Europe)
  • Pat Garcia-Gonzalez (USA/Latin America)
  • Zhengchen Liu (China/Asia-Pacific)
  • Jelena Čugurović (Serbia/Europe – ex-officio, non-elected volunteer).

CML Horizons 2015: Video Streams DAY 1 - FRIDAY 1 May 2015

CMLHZ15logo-720px

 

 

 

 

 

DAY 1 - FRIDAY, 1 May 2015

Here you will find the video web streams of all CML Horizons 2015 sessions of DAY 1 (Friday).

Click on the play button to see and hear the presentation. Once the video plays, you can also click on the "full screen" button to improve readability of the slides. You can also download the PDF of the slides.

 


 

Welcome to Barcelona and to CML Horizons 2015

Giora Sharf (CML Advocates Network) and María Navarro (Spanish Patients' Forum) - PDF (Giora) - PDF (María)

 


Parallel pre-meeting: CML 101

Pat Garcia-Gonzalez  -  PDF

 

Parallel pre-meeting: Patient Involvement in CML Research

Patient involvement in CML research (Jan Geissler)  -  PDF
(No webstream available of this session)

 


Medical Session #1: CML Update

Overview CML 1st line, 2nd line, managing resistance

Michael Mauro  -  PDF

Managing CML in countries with limited resources

Hari Menon  -  PDF

Q&A with experts (Michael Mauro & Hari Menon)


Advocacy Session #1: Advocacy examples on access to treatment & care

Access to therapies 

Ananda Plate  -  PDF

 

Access to trials 

Zhengchen Liu  -  PDF

Access programs

Pat Garcia-Gonzalez -  PDF

 

Achieving reimbursement

Georges Sayde  -  PDF

 

CML Horizons 2015: Video Streams DAY 2 - SATURDAY 2 May 2015

CMLHZ15logo-720px

 

 

 

 

DAY 2 - SATURDAY, 2 May 2015

Here you will find the video web streams of all CML Horizons 2015 sessions of DAY 2 (Saturdayay).

Click on the play button to see and hear the presentation. Once the video plays, you can also click on the "full screen" button to improve readability of the slides. You can also download the PDF of the slides.

 


Elections 2015 – Presentations of candidates for the CML Horizons Steering Committee

PDF - Nomination Forms


Medical Session #2: Treatment-free remission: Opportunities and challenges

Treatment-free remission, stop trials, predictors for stopping treatment

Andreas Hochhaus  -  PDF

The patient perspective on treatment-free remission, including support needs

Pat Elliott  -  PDF

Panel discussion: The psychology of stopping treatment 

Pat Elliott + Michael Mauro + Andreas Hochhaus + Cristian Neves


Advocacy Session #2: World CML Day Toolkit

Introduction

Jan Geissler - PDF

Training & practical tips

Danielle Miller, ZN Consulting  -  PDF part 1/4 - PDF part 2/4 - PDF part 3/4 - PDF part 4/4

 

 


Medical Session #3: Living (long) with CML

Long-term side effect profiles of CML treatments, cardiovascular & thrombotic events

Andreas Hochhaus  -  PDF

Managing CML in children and young adults

Frederic Millot  -  PDF

Panel discussion: What is different for adolescent patients with CML?

Cornelia Borowczak, Rod Padua, Cristian Neves, Frederic Millot, Andreas Hochhaus

 

CML Horizons 2015: Video Streams DAY 3 - SUNDAY 3 May 2015

 CMLHZ15logo-720px

 

 

 

DAY 3 - SUNDAY, 3 May 2015

Here you will find the video web streams of all CML Horizons 2015 sessions of DAY 3 (Sunday).

Click on the play button to see and hear the presentation. Once the video plays, you can also click on the "full screen" button to improve readability of the slides. You can also download the PDF of the slides.

 


 

Advocacy-Session #4: Advocating on generics and fighting for quality of care

Introduction: How are drugs approved and monitored?

Nicole Schröter  -  PDF

 CML TKI register & Declaration on Generics

Jelena Čugurović  -  PDF

Debate: Going from fear to action – what can advocacy do?

Pat Garcia-Gonzalez, Sandra Shaw, Jelena Čugurović, Hari Menon

 


Medical Session #4: Future outlook and future ways to do CML research

Overview: Clinical Drug Development Process

Jan Geissler  -  PDF

 

Beyond TKIs - addressing different pathways 

Arnon Nagler  -  PDF

Upcoming clinical trials

Michael Mauro  -  PDF

Summary: What is the role of CML patient groups in developing the future of CML treatment?

Giora Sharf - PDF

CML Horizons 2016 - Registration

CML-Logotip-Ljubljana-2016-2

Register here - Preliminary Program - Conference feeScholarship Application
- Travel - Visas - Venue & Accommodation - Acknowledgements

 

Welcome to the CML Horizons 2016
Registration Website!

CML Advocacy: Learn. Share. Grow.
6-8 May 2016, Ljubljana, Slovenia

Register Now!

We are looking forward to the 14th CML Horizons conference, held in Ljubljana / Slovenia on 6-8 May 2016. The CML Horizons Steering Committee has worked hard to ensure that the conference includes topics of importance to the CML patient community, and provides a unique opportunity for participants to share experiences and best practice. We hope that as a result of this meeting, CML patient groups globally will improve their capacity to meet the needs of their patients, and strengthen their advocacy activities.

Registration is now open for leaders of CML patient organisations.

.

MEETING SCHEDULE

CML Horizons 2016 starts on Friday, 6 May 2016 at 9:00 with an introductory "CML 101 / Horizons 101" session and - with this - earlier than in previous years. The official opening session will be at 10:45. The conference ends on Sunday, 8 May 2016 with a farewell lunch from 13:00-14:00, followed by a city tour for those staying over.

The programme features world-renowned experts in CML and patient advocacy.

IN CASE OF QUESTIONS

Two Liberty Incentive & Congresses offices, one in Slovenia and the second one in Serbia, are the logistics agencies that will handle all logistical issues of CML Horizons 2016. Please read carefully and contact the correct office depending on the type of question you have:

For all issues concerning registration, arrival and departure dates as well as scholarship requests please contact Natasa Kokir from Liberty Serbia: , Tel: +381 113 6250 36 and mobile: +381 623 040 72

For all issues concerning visas, hotel accommodation and transfers please contact Natasa Simikic Kozjak from Liberty Slovenia: , Tel: + 386 1 232 11 71 and mobile: +386 41 839 819

Please contact Jan Geissler and Giora Sharf , should you need any clarification about the conference program, or see challenges in attending CML Horizons 2016. We will be very happy to help and find ways for you to attend this year´s conference.

We are thrilled and excited to see you in lovely Ljubljana!

Giora and Jan and the CML Horizons Steering Committee:

  • Bahija Gouimi (Morocco/Africa)
  • Rita O. Christensen(Denmark/Western Europe)
  • Gail Sperling (USA/North America)
  • Giora Sharf (Israel/Middle East)
  • Jan Geissler (Germany/Europe)
  • Jana Pelouchová (Czech Rep./Europe)
  • Pat Garcia-Gonzalez (USA/Latin America)
  • Rod Padua (Philippines/Asia-Pacific)
  • Jelena Čugurović (Serbia/Central & Eastern Europe and West Asia)

 

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