Use of complementary medicines: Calling patient advocates to contribute to survey

Many patients with cancer are using natural medicine as complementary and alternative therapies, or at least give serious thought to using them. 'Complementary therapies' must be understood as supplemental to conventional medicine, 'alternative therapies' as replacing conventional medicine. The CML Advocates Network, the University Center for Tumor Diseases (UCT) of the J. W. Goethe-University Frankfurt, Sarcoma Patients Euronet and Myeloma Euronet are asking patient advocacy leaders for their precious insight, knowledge and experience on complementary therapies.

It is the first time that we interview the leaders of patient support groups regarding the subject 'complementary and alternative medicine'. We would like to know from you what significance these procedures have in your country.

The survey can be access at and is open until 31 Oct 2011.

It should not take you much more than 10 minutes to answer the 20 questions. All information will, of course, be strictly confidential and evaluated anonymously. The results of this strictly non-commercial study will be shared with you.

We’d like to thank you in advance for your cooperation and important contribution for researching tumor therapies. If you have any questions about this study please contact us at


J. Hübner, MD, Chief Physician Palliative Medicine, Supportive and Complementary Oncology, University Center for Tumor Diseases (UCT), Clinical Center of the J. W. Goethe-University Frankfurt, Germany
Jan Geissler, Co-founder CML Advocates Network / LeukaNET e.V.
Markus Wartenberg, Spokesperson and Director of the GIST/Sarcoma Society, Das Lebenshaus e.V.
Anita Waldmann, President Myeloma Euronet


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