Quality of life in CML patients: Calling patient advocates to contribute to survey

The EORTC (European Organization for Research and Treatment of Cancer) "Quality of Life"Group, in collaboration with the GIMEMA (Italian Group Adult Hematologic Diseases), is coordinating a large international initiative whose main purpose is to develop an internationally validated questionnaire to assess the quality of life (QoL) of patients with chronic myeloid leukemia (CML). CML patients are being recruited in various hospitals in different countries to participate to this project, however, your contribution can further strength the quality of this project. The international scientific community believes that this research is very important because currently there is no "instrument" that allows doctors to know what are the most relevant health concerns for patients with CML. The research group is calling patient advocates to contribute to the survey.


The researchers are firmly convinced that all patients with CML can provide an invaluable and unique contribution to this international endeavor by guiding them in understanding more on this topic and helping them to identify the most critical quality of life issues that matter most to patients.

If you agree to participate, we kindly ask you to fill out the online questionnaire (Link removed because survey is closed). Generally, the questionnaire completion will take you no more than 15 minutes of your time.

At the end of the survey, you can also add any issue that you might consider important to be included in a future QoL questionnaire, which is not currently taken into account in our Survey.

Your information will be collected and analyzed in a completely confidential way and it will not require any personal contact or registration since the survey will remain completely anonymous.

Thank you very much for your invaluable help!

To participate click here: http://cml0310-quest.opisprojects.com/default_en.aspx


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