EHA 2017 in Madrid, Spain: Patient Advocacy Programme

ehaNot many weeks left until the European Hematology Association's annual congress opens its doors in Madrid, Spain. We are excited to see many of you at #EHA22 2017!

Over the past months, we've been working hard with the EHA team to set up an attractive patient advocacy programme during the congress.  We have a joint booth of all European patient advocacy organisations, and once again also having a “Patient Advocacy Track” within the scientific program during the congress. Up to 50 free congress registrations were offered to patient advocates, so we hope there will be strong patient attendance!

Click on "Read more" what is offered specifically for patient advocates, hematologists and other stakeholders at EHA this year.

Patient Advocacy Booth

European patient advocacy groups will have a central meeting place at the EHA Patient Advocacy Booth in the exhibition hall.

Patient Advocacy Track

Patient Advocacy sessions:

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Innovative Clinical Trial Designs, Adaptive Pathways (MAPPs) and Patient Involvement in R&D
Date: Saturday, June 24, Room N115
Time: 08:00 – 09:30
Chairs: S. Wintrich (UK), S. Liptrott (IT)
  • Patient perspective on new trial design, regulation and patient involvement,G. Spurrier (FR)
  • Adaptive pathways and other approaches to promote timely access to medicines, Kyriaki Tzogani, European Medicines Agency (UK)
  • Designing innovative clinical trials: Methodology and practice, Elihu H. Estey (WA, USA)
  • How will the new EU Clinical Trials Regulation foster innovation in clinical trials? B Wörmann (DE)
  • Q&A Panel discussion
Pregnancy During and After Treatment: Myths and reality
Date: Saturday, June 24, Room N115
Time: 11:30 – 12:45,
Chairs: D. Turner (UK, J. Geissler (DE)
  • Hematologist perspective: The trade-off between treatment and real life, J. Apperley (UK)
  • Patient perspective on myths, reality and appropriate patient information, A. Plate (DE)
  • Overcoming infertility after cancer treatment: IVF and egg/sperm donation. A. Guillen (ES)
  • Q&A with the audience

EHA Capacity Building Meeting

Date: Thursday, June 22
Time: 14:00-17:00 (EHA congress), and from 20:45 (informal advocacy meeting, tbd)

EHA Fellows will hear about EuroBloodNet, the ePAGs, about how to read scientific papers and interpret data in scientific presentations, and about how to get the best out of a scientific conference EHA (EHA's congress format, type of sessions, and relevance to patients). This will then be followed with a summary of the most important data presented at EHA, specifically for Fellows in MDS, Myeloma, Acute Leukemias, Lymphomas & CLL, MDS and CML.



EHA Education session

General EHA education session for hematologists, this year with patient input.

Fertility preservation in patients with hematological malignancies

Repeated twice: Saturday June 24, 9:45-11:15 and Sunday June 25, 11:15-12:45.
Chair: D Meirow (IL)
  • A Plate (DE): What patients expect from hematologists
  • Wallace (UK): The effects of chemotherapy and radiotherapy on reproduction
  • MM Dolmans (BE): Fertility preservation in female patients
  • R Mitchell (UK): Fertility preservation in pre-pubertal and adult males

Other EHA Advocacy Track sessions (not: Patient Advocacy Track)

EU Funded Projects in Hematology

Date: Saturday, June 24, Room N115
Time: 14:45 – 15:45

EHA Advocacy Session: Topic: Access & Pricing

Date: Saturday, June 24, Room N115
Time: 16:00 – 17:15
Patient Speaker: Peter Kapitein (NL)


If you are coming to #EHA22, don't miss any of them, they will all be really interesting!