CML Advocates Network relaunched, further embracing social media

The "CML Advocates Network", the international platform of 54 patient groups supporting patients and relatives suffering from "Chronic Myeloid Leukaemia" (CML) across all continents, has relaunched its web community and provides new social media functionalities.

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World Cancer Day 2011, Maximized: The Max Foundation submits 13.000 signatures to World Cancer Declaration

wcc-uicc2011A delegation representing the Max Foundation's Maximize Life Movement arrived in Geneva on World Cancer Day (4 Feb 2011) and delivered 13,000 signatures endorsing the World Cancer Declaration to the Union for International Cancer Control (UICC). On behalf of 30 patient associations as well as volunteers and committed individuals in 87 countries, the five delegates brought with them the spirit and energy of everyone who embraces the Maximize Life Movement. Read more here

"CML Advocates Network" now connects 59 leukaemia patient groups in 48 countries

The "CML Advocates Network", an international platform for patient groups supporting patients and relatives suffering from "Chronic Myeloid Leukaemia" (CML) now connects 59 organisations from 48 countries across all continents. This worldwide network offers support by sharing of best practice, information and advice for CML patient representatives. We are delighted to welcome our new members, AMAL from Argentina, Leukaemia CARE from the UK, AMAL from Morocco, AEAL from Spain, Henzo from Kenya, Slovenian L&L, LMC France, CML Association of Macedonia.

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ASH 2010 Report: A new era in first line CML treatment coming up?

[Languages: English | Spanish | Russian]
ASH 2010Like every year, about 30.000 physicians, researchers and industry representatives from all across the world met in the US to discuss groundbreaking news in leukemias and other hematologic diseases. While "the ASH" is designed to be a meeting exclusively for health professionals, about 30 patient advocates representing patients with e.g. CML, myeloma and lymphoma attended to follow, discuss and disseminate the news.

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iCMLf-ESH Meeting in Washington DC: A patient's perspective

icmlf-logo-shadow_logo_200px.gif[Languages: English | Russian]
From 24-26 September 2010, the iCMLf-ESH conference on Chronic Myeloid Leukemia (CML) brought together around 400 CML experts from all across the world in Washington DC. Speakers and audience discussed the biological mechanisms of the disease and its treatment, and also about news from clinical trials with 3rd generation therapies.

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CML Advocates Network receives "ESO Cancer on Internet Award 2010" at UICC World Cancer Congress

coiaward2010.jpgThe "CML Advocates Network" has received the "ESO Cancer on Internet Award 2010" at the UICC World Cancer Congress in China on 19 August 2010. The focus of this year's award provided by the European School of Oncology (ESO) is on e-cancer patients. It has the aim to raise awareness of the evolution of the internet and the impact of social media networks in the cancer patient community by recognising organisations and groups that have provided quality-based and easy-to-use communication platforms through the Internet.The prize of 4.000 EUR will be used to extend that social media functionality of the website which is based on free software and is run by volunteers.

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8th "New Horizons" 2010: 144 patient advocates from 56 countries met in Vienna, Austria

The 8th annual "International New Horizons Conference for Organizations Representing People with CML or GIST" was held this year in Vösendorf, Austria, from June 18 to 20, 2010. Sponsored by Novartis, the conference provided patient advocate leaders with an opportunity for 3 days of learning, companionship and the chance to share experiences across national boundaries. This year's conference was held on a particularly celebratory note, as it marked the 10th anniversary of imatinib and its revolutionary impact on the treatment of CML and GIST.

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Rising Sun for people living with CML in Asia

risingsun_banner_smallOn 9-11 April 2010, cancer advocates working in Asia witnessed a new beginning: the first conference for CML advocates in the region, Rising Sun, conveyed in Hong Kong. This unprecedented event was a "dream come true" for many of the participants.

Representatives from China, Hong Kong, Indonesia, Malaysia, India, Japan and the Philippines, joined by advocates from New Zealand, Australia, US and UK, spend two days getting to know each other, sharing best practices, and learning from each other. People who up to now had lived parallel lives without knowing each other, finally had the chance to meet in person and develop tight connections.

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ASH 2009 Recollections and why I went there again

ASH 2009"Actually, why do I always spend St Nicholas in the US, instead of with my family", I asked myself when I boarded the plane to the USA on 4 Dec, in anticipation of a boring 16 hour trip to New Orleans, arriving jetlagged, hiding for days in the dungeons of a large convention center, lacking any sense of the city I am in. Year by year, more than 20.000 hematologists and healthcare people attend the annual meeting of the American Society of Hematology, lovingly called 'the ASH' by repatriates. Its publications are all available on the Internet. "Is it really worth the effort being there again, instead of just using my browser?", I thought. It is. Definitely.

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CML and GIST conference 2009 in Lisbon: Forging alliances for global advocacy

New Horizons BannerThe 7th annual international "New Horizons Conference for Organisations Representing People with CML or GIST" was held this year in Lisbon, Portugal from June 26 to 28. Sponsored by Novartis and held for the seventh year, the conference once again demonstrated the value of bringing together patient advocacy groups from around the world to share their ideas and experiences and to get latest updates from medical professionals. The conference featured 30 hours of presentations from a dedicated and enthusiastic faculty of various disciplines and stakeholder groups.

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European Action Against Rare Cancers

action_against_rare_cancers.gifAt 24th of June 2009 a new campaign European Action Against Rare Cancers has been launched. The new campaign urges European policy-makers to prioritise better treatment and care for patients with rare cancers within the framework of the new Commission Communication on cancer and other recent policy initiatives such as the Council Recommendation on Rare Diseases. The CML Advocates Network is one of the supporting organisations. The campaign has launched a Call to Action – an international petition appealing to all stakeholders to initiate targeted actions to address the challenges of rare cancers.

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ASH 2008: Impressions from a CML patient advocate

welcome_to_ash2.jpgEvery year, around the day of St Nicholas in December, hematologists from around the world meet at the annual congress of the American Society of Hematology (ASH). It has become the most important event for this profession. This year, around 23.000 experts from more than 100 countries met in December 2008 at San Francisco for the 50th "ASH Annual Conference" to share knowledge about the latest results in research on leukemias. We've also had the chance to join this year, and we'd like to share our subjective impression on progress in CML therapy. An impression from a layman perspective.

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