Welcome, MOHA (Hungary) - now 109 patient organisations from 82 countries in the CML Advocates Network

We hereby proudly welcome a new member organisation in the CML Advocates Network: MOHA based in Budapest / Hungary is our second Hungarian patient organization. The CML Advocates Network now counts a total of 109 member organisations in 82 countries worldwide! See the list of CML groups in the Network on our world map.

Welcome, "MIELOPRO" (Romania) and CML-Armenia (Armenia) - now 108 patient organisations from 82 countries in the CML Advocates Network

We hereby proudly welcome two new member organisations in the CML Advocates Network: 1. "MIELOPRO" - Asociatia Pacientilor cu Neoplazii Mieloproliferative based in Romania and 2. CML-Armenia based in Armenia. The CML Advocates Network now counts a total of 108 member organisations in 82 countries worldwide! See the list of CML groups in the Network on our world map.

Patient-friendly summary of the ELN CML Treatment Recommendations now also in Croatian language - and 19 other languages

ELN2013summary-coverThe CML Advocates Network, advised by medical experts, has developed a lay-friendly summary of the ELN Expert Treatment recommendations for CML.

It is now available in 20 languages: English, Arabic, Albanian, Azerbaijani, Bulgarian, Chinese (traditional and simplified), Croatian, Danish, Dutch, French, Georgian, German, Hebrew, Italian, Polish, Portuguese, Russian, Serbian, Spanish and Turkish (new: Croatian, a big thank you to Dražen Vincek (president of CML Club in Croatian Leukaemia and Lymphoma Society (HULL)) and his colleagues for translating, reviewing and approving this new version of the lay-friendly summary!

See our ELN Summary here: http://www.cmladvocates.net/cmlsummary

 

Welcome, "CML Saudi Group"! Now 106 patient organisations from 81 countries in the CML Advocates Network

We hereby proudly welcome a member organisation in the CML Advocates Network: The "CML Saudi Group", which is a part of the "Saudi Cancer Foundation" based in Saudi Arabia. The CML Advocates Network now counts a total of 106 member organisations in 81 countries worldwide! See the list of CML groups in the Network on our world map.

Welcome, "Taiwan Bone Marrow Transplantation Association" and "CML Busters Family Support Group of California"! Now 105 patient organisations from 80 countries in the CML Advocates Network

We hereby proudly welcome two new members to our network: The "Taiwan Bone Marrow Transplantation Association" based in Taiwan and "CML Busters Family Support Group of California" based in the USA. The CML Advocates Network now counts a total of 105 member organisations in 80 countries worldwide! See the list of CML groups in the Network on our world map.

Patient-friendly summary of the ELN CML Treatment Recommendations now also in Albanian language - and 18 other languages

ELN2013summary-coverThe CML Advocates Network, advised by medical experts, has developed a lay-friendly summary of the ELN Expert Treatment recommendations for CML.

It is now available in 19 languages: English, Arabic, Albanian, Azerbaijani, Bulgarian, Chinese (traditional and simplified), Danish, Dutch, French, Georgian, German, Hebrew, Italian, Polish, Portuguese, Russian, Serbian, Spanish and Turkish (new: Albanian, a big thank you to Jeton Lika (Kosovo Association for Support to Chronic Leukaemiae Patients) and Dr Aferdita Ukimeraj (Director of the department for Haematology, University Clinical Centre in Pristina, Kosovo) for translating, reviewing and approving this new version of the lay-friendly summary!

See our ELN Summary here: http://www.cmladvocates.net/cmlsummary

 

Two new animated patient videos: Carin´s & Michelly´s story are now available!

In September 2014, the CML Advocates Network published the international CML Book "Faces of Courage and Hope" an English-language book that illustrates the life of 16 CML patients from 15 countries. The book features wonderful photos and moving interviews. Selected patient stories are now also available in form of animated videos! The animated stories bring to life the emotional impact of CML on patients and their friends and family, in addition to their future hopes and aspirations. Two new story are now available in form of animated videos:

 

Here you will find other videos available to date:

  • Living with CML: Bert´s story of courage and hope (English)
  • Living with CML: Mina´s story of courage and hope (English / French)
  • Living with CML: David´s story of courage and hope (English)

Welcome, "K.E.F.I. of Athens"! Now 103 patient organisations from 79 countries in the CML Advocates Network

We hereby proudly welcome a new member to our network: "K.E.F.I. of Athens" Association of Cancer Patients of Athens, based in Greece. The CML Advocates Network now counts a total of 103 member organisations in 79 countries worldwide! See the list of CML groups in the Network on our world map.

Today is World CML Day - 9/22!

WCMLD 2013 0922logo día mundial LMCLogo Today TogetherTODAY IS WORLD CML DAY!

One day, one community, one life changing reality… Today, we are together to make a status, share and involve on our needs!

Screenshot CML Today 1Screenshot CML Today 2Today on World CML Day, the CML Advocates Network is launching its brand-new mobile CML ADHERENCE APP “CML Today” for CML patients to support adherence to TKIs as well as to track their PCR results.

The mobile app is available for free in English, French, Spanish, German, Portuguese, Arabic, Hebrew, and more languages will follow soon.

Find „CML Today“ in the Apple App Store (iphone) and in the Google PlayStore (Android). Please talk about “CML Today” and encourage CML patients to use “CML Today”!

Please also check out the activities that are being carried out all over the world on World CML Day 2015 and the campaign materials developed by members of the CML Advocates Network.

More information on World CML Day 2015 can be found here.

The CML Advocates Network wishes everybody an inspiring and successful World CML Day 2015!

wcmld15 key-audiences

 

CMLadvocates.net goes mobile, now optimized for smartphones

cmladvocates-mobile-screenshotOn World CML Day on 22 September, the CML Advocates' Network will launch a mobile app for CML patients to support adherence to TKIs as well as to track their lab results.

In order to make all our information available more conveniently wherever you are, the cmladvocates.net website is now also smartphone-ready. All information on cmladvocates.net, e.g. the news on the homepage, are now optimized for small screens when accessed from mobile phones.

 

 

Getting ready for World CML Day 2015 on Sept 22

WCMLD 2013 0922Logo Today Together... is the motto for this year´s World CML Day campaign! One day, one community, one life changing reality… Today, we are together to make a status, share and involve on our needs!

To help our members spread the message of awarenss and strenghten their voice, this year the CML Advocates Network is providing a World CML Day "Toolkit" that includes adaptable artwork for print and online use (posters & flyers), a photo-database, a press release and communication guidelines containing valuable strategies and hints for how to get the most out of the campaigns. Visit our World CML Day Section on this website to learn more about World CML Day, about this year´s campaign and about key initiatives planned and campaign materials prepared by our members for this Sept 22. Wishing you all an inspiring and successful World CML Day 2015!

wcmld15 key-audiences

 

Welcome, CFР «DROP BLOOD» (Ukraine)! Now 102 patient organisations from 78 countries in the CML Advocates Network

We hereby proudly welcome a new member to our network: CFР «DROP BLOOD», based in Ukraine. The CML Advocates Network now counts a total of 102 member organisations in 78 countries worldwide! See the list of CML groups in the Network on our world map.

Please donate!

Please donate!

LogIn

EU e-Privacy Directive