Argentina: ALMA – Asociación Leucemia Mieloide Argentina

Member’s description

ALMA is a patient organization whose mission is to “provide emotional and practical support to leukemia patients” to fulfill our mission we develop different programs of which the main ones are: Comprehensive Patient Education (different professionals provide workshops on diagnosis, types of treatments, monitoring studies, adverse effects management looking for an expert patient); Spreading Life: (we hold patient meetings in different cities of the country, forming ALMA patient groups; Emotional containment coordinated by our psycho-oncologists we give the professional support that patients require; Advocacy defends patients’ right in relation to their treatments and studies.

Audience/Constituency

Patients with the 4 main types of leukemia, relatives, and caregivers. Our reach is national.

Ways of communication with constituency

Direct telephone contact, WhatsApp, mailing, social networks, website, press releases, and face-to-face meetings.

Organizational objectives and key programs

Our organizational objectives are:

• Give and receive emotional and practical support to patients with leukemia.
• Provide education programs with professionals from various areas.
• Defend the right of patients to receive the best treatments.
• Exchange and receive information about the different treatment options.

Our key programs are:

• With you.
• Empowering patients.
• Spreading Life.
• Emotional Containment.