Uruguay: Asociación Uruguaya de Leucemia ASUL

Member’s description

Founded in 2006 by CML patients ( Chronic Myeloid Leukemia ) and their families, achieving legal entity in 2007.

Organizational objectives and key programs

The key goals of our organization are:

• To be there at the moment a patient is diagnosed
• To facilitate the creation of the bond physician-patient
• To keep the patients informed about their duties and rights
• To create a relationship between the physicians and the members of the organization
• To become known by new physicians
• To participate in training
• To advocate for patients, in tandem with health authorities and proposing different changes
• To organize activities with physicians and patients
• To create networks in all Latin America
• We created the network of oncologic groups in Uruguay, Gabriel being the vice-president of this organization. We now have 12 departments.
• We are plenary members of Alianza Latina.
• We participate in training by The Max Foundation.
• We are founders of the Latin-American Coalition of Blood Diseases
• We participate in GAPFA | Global Alliance for Patient Access