CML-Stop

Member’s description

Web-community CML-STOP

Audience/Constituency:

More than 7000 patient with CML from Russia and other countries.

Ways of communication with constituency:

Website

Organizational objectives and key programs

Our organizational objectives are:

  • Support for the patients.
  • Consultations of our hematologists for the patients.
  • Coverage of the main events in hematology.
  • Сollaboration with patient organizations.

Our key programs are:

  • Consultations for the patients by lawyers (5-10 per year).
  • Consultations for the patients by hematologists (100 per year).
  • Fight for access to novel drugs and qualitative medical care (registration of ponatinib in Russia).
  • Coverage of the main events in hematology.

Contact Address

Moscow, Russia
+79663230862
http://www.cml-stop.ru/

Key Contacts

Rostislav Alekseevich Fedorov
Founder of the organization and community leader
+79663230862
Mikhail Chernobrovkin
Deputy of community leader
+79104458261

Information

Year of establishment

CMLAN member since

No. of members

600+

Contact Address

Moscow, Russia
+79663230862
http://www.cml-stop.ru/

Key Contacts

Rostislav Alekseevich Fedorov
Founder of the organization and community leader
+79663230862
Mikhail Chernobrovkin
Deputy of community leader
+79104458261

Information

Year of establishment

CMLAN member since

No. of members

600+