Russia: CML-Stop

Member’s description

Web-community CML-STOP

Audience/Constituency:

More than 7000 patient with CML from Russia and other countries.

Ways of communication with constituency:

Website

Organizational objectives and key programs

Our organizational objectives are:

• Support for the patients.
• Consultations of our hematologists for the patients.
• Coverage of the main events in hematology.
• Сollaboration with patient organizations.

Our key programs are:

• Consultations for the patients by lawyers (5-10 per year).
• Consultations for the patients by hematologists (100 per year).
• Fight for access to novel drugs and qualitative medical care (registration of ponatinib in Russia).
• Coverage of the main events in hematology.