Diagnoza CML

Member’s description

Diagnoza leukemie is a patient-governed society building on the experience of a CML support organization (2006-2014) when it has expanded into the broader scope of blood cancers (all leukemias, MDS, MPN). Independent source of disease-related information through collaboration with medical study groups. Providing patients input into legislative changes by means of membership at the Patient Advisory Board of the Health Ministry. Facilitating peer-to-peer support.

Audience/Constituency

Patients and their family members in the role of caregivers.

Ways of communication with constituency

Non-stop telephone helpline.
Immediate Messanger and email communication.
Social media (Facebook.com/diagnoza.leukemie and closed Facebook forums for CML and CLL patients).

Organizational objectives and key programs

Our organizational objectives are:

  • A reliable source of information and education.
  • Collaboration with HCP and other stakeholders within the Czech healthcare system.
  • Patient representative within the Health Ministry Advisory Board.
  • Providing opportunities for peer-to-peer support.
  • International connection through patient networks.

Our key programs are:

  • Organizing “Regional Patient Meetings” – conferences performed at 3 major Czech cities.
  • Community patient meetings at locations of active patient involvement.
  • Video-library as a root information base on the website.
  • Updates on local and international activities via social media.
  • Connecting patients with researchers.

Contact Address

ÚHKT, U Nemocnice 1 (virtual site-for registration purposes)
Prague 2
Prague 128 20
Czechia
+420728308360
https://www.diagnoza-leukemie.cz/

Key Contacts

Ms. Jana Pelouchova
Chair person
+420728308360

Information

Board of Directors

3

Year of establishment

2006

No. of members

250+

Contact Address

ÚHKT, U Nemocnice 1 (virtual site-for registration purposes)
Prague 2
Prague 128 20
Czechia
+420728308360
https://www.diagnoza-leukemie.cz/

Key Contacts

Ms. Jana Pelouchova
Chair person
+420728308360

Information

Board of Directors

3

Year of establishment

2006

No. of members

250+