Romania: “Fighting and Preventing Lymphoma and Leukemia” Leukemia Association

Member’s description

Leukemia Association, created in December 2005, has a main goal of representing patients’ rights and interests. It also fights for promoting medical education concerning the diseases had in view, and addressing issues and concerns of patients to authorities and healthcare system institutions.

AUDIENCE/CONSTITUENCY:

Low income population

WAYS OF COMMUNICATING WITH CONSTITUENCY:

Publications, website, conference calls

Organizational objectives and key programs

ORGANIZATIONAL OBJECTIVES:

• Creating databases on leukemia patients
• Awareness program on patients rights

KEY PROGRAMS:

• Creating a data base with the patients to maintain an accurate view of the way the disease affects the low income population.
• Working on improving relations with doctors, healthcare and other institutions representatives involved in this specific area
• Working on improving the healthcare system on distributing medication regardless of any social boundaries