Romania: “MIELOPRO” – Asociatia Pacientilor cu Neoplazii Mieloproliferative

Member’s description

THE PURPOSE OF THE ASSOCIATION is to promote and protect the common interests of patients suffering from chronic myeloproliferative neoplasms, in accordance with the law. The purpose of the Association is non-patrimonial, medical, and humanitarian. The association does not carry out political activities and does not aim at political goals.

Audience/Constituency

Patients with mieloprplipheratives neoplasis from Romania, volunteers.

Ways of communication with constituency

National conferences,videoconferences,e mail,phone,social media.

Organizational objectives and key programs

Our organizational objectives are:

• Militate to ensure the necessary treatment for patients with chronic myeloproliferation, in the health units in Romania, with state-of-the-art medical products registered in Romania and the European Union;
• Initiate actions in order to improve the access to the best therapies for the patients they represent, as well as to quality medical services;
• Campaign for the right to life without any constraints on age, sex, ethnicity or others;
  Organize their own activities to inform the public about the pathologies represented, as well as awareness campaigns for health promotion, prevention of disease risks;
• To collaborate with the health units and the medical staff and with the patients’ families in order to improve the adherence to the treatment.

Our key programs are:

• Militate to ensure the necessary treatment for patients with chronic myeloproliferation, in the health units in Romania, with state-of-the-art medical products registered in Romania and the European Union;
• Initiate actions in order to improve the access to the best therapies for the patients they represent, as well as to quality medical services;
• Campaign for the right to life without any constraints on age, sex, ethnicity or others;
• Organize their own activities to inform the public about the pathologies represented, as well as awareness campaigns for health promotion, prevention of disease risks;
• To collaborate with the health units and the medical staff and with the patients’ families in order to improve the adherence to the treatment.