TFR 4 CML patients survey

TFR 4 CML patients

 

The TFR for CML patients survey is now live!

The CML Advocates Network is launching the online global survey “TFR 4 CML Patients”, available in seven languages: English, Spanish, German, Italian, French, Finnish and Hebrew, to measure the viewpoints, needs and experiences of CML patients that are considering or have already started Treatment Free Remission (TFR).

The findings of the survey will help us to better understand what the concerns, challenges and motivations are during the decision phase, the first probation phase after stopping, and when attempting TFR has either worked or failed.

Take the TFR survey here

Be a part of this project & participate in the TFR 4 CML patients survey

If you are a CML patient and you are considering stopping your treatment or you are actually in treatment-free remission, we invite you to take part in our TFR 4 CML PATIENTS Survey. This anonymous survey will take you approx. 20 minutes and your responses will be absolutely confidential. This is the reason why the website does not store your profile and therefore, we kindly ask you to complete the survey until the end because if you leave it in the middle, once you restart it you should start from the beginning. Come on! It is not very complicated and if you have any problems we are here to support you by email at

The survey is open for completion for patients of the global CML community until July 2018, and the results will be professionally analysed in order to obtain patient-based evidence about TFR that will support both patient and doctors. 

TFR for CML map April_2018

Let's join forces to circulate the TFR 4 CML PATIENTS Survey to CML patients...

The CML Advocates Network calls upon our 118 patient organisation members, other partners and stakeholders as well as the global CML community to circulate the survey to make sure that as many CML patients from different regions as possible contribute to this important piece of research.

This is how you can help the community to distribute the survey:tfr 4 cml survey

  • Publish the banner and link the TFR 4 CML PATIENTS Survey on your website and encourage the CML patient community to participate. To free download TFR 4 CML patients survey materials, click HERE. You can use this link to your publications: http://www.myonlinesurvey.co.uk/TFR4CML
  • Contact your collaborators, HCPs and media in your country - please send them information about the TFR 4 CML PATIENTS Survey and ask them to contribute.
  • Circulate the survey link on your Social Media channels using the hashtag #TFR4CML

With your support and collaboration, we will better understand the real needs, concerns and challenges of patients that want to achieve a treatment-free remission.

If you want us to keep you informed about TFR, our survey and any other activity of the CML Advocates Network, please, subscribe to our Newsletter HERE.

About the TFR 4 CML patients project

The content of the survey TFR 4 CML patients has been created by the CML Advocates Network with the collaboration of a group of several CML patient advocates with specific expertise and experience in TFR.

The project is receiving the unconditional support of the pharmaceutical companies Novartis Oncology and Incyte Biosciences International. The companies had no insight or influence on content and implementation of the project.

 

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