Alliances & Collaborations
Partners and Membership
The CML Advocates Network, hosted by the Leukemia Patient Advocates Foundation, would like to thank its partners for their friendship and mutual support!
The Alliance and Partnerships for Patient Innovation and Solutions (APPIS) is an organization that aims to bring together individuals and groups to create innovative solutions for patients. With its 4th year approaching, APPIS continues to make a positive impact.
The CML Advocates Network collaborates very closely with the International CML Foundation. The iCMLf is a charitable foundation established by a group of hematologists with a strong interest in Chronic Myeloid Leukemia. The mission of the iCMLf is to improve the outcomes for patients with CML globally. It aims to foster and coordinate global clinical and research collaborations and to improve clinical practice and disease monitoring in CML. Scientific advisors and national representatives spanning over 30 countries provide guidance and advice to further the aims of the iCMLf. Read more here.
The CML Advocates Network is a founding member of Rare Cancers Europe. Rare Cancers Europe (RCE) has been established as a partnership of all stakeholders that work together to place the issue of rare cancers firmly on the policy agenda, to identify and promote appropriate solutions and to exchange best practice.
It campaigns to foster the creation of reference networks for the treatment of patients with rare cancers, to spread knowledge and good practice guidelines on rare cancers, and to address obstacles to patients’ access to appropriate therapies. Read more here.
The CML Advocates Network cooperates with Patient Power. Patient Power brings in-depth information to patients with cancer and chronic illness. Audio and video interviews, with transcripts, help patients make informed decisions in partnership with their medical team. Founded by patient advocate, medical journalist, author and cancer survivor Andrew Schorr, Patient Power goes far beyond basic health information. Patient-centric programs focus on delivering the most credible, authoritative and up-to-date health information. More than 2,000 on-demand programs feature leading medical experts, inspiring patients, unforgettable stories and actionable medical guidance on serious health concerns. Connect with Patient Power on Facebook, YouTube, Twitter and Vimeo, and view the entire library of audio and video interviews on CML at www.PatientPower.info.
The Leukemia Patient Advocates Foundation / CML Advocates Network is a member or EURORDIS.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 900 rare disease patient organisations in over 70 countries. Read more here.
WECAN, the Workgroup of European Cancer Patient Advocacy Networks is an informal network of leaders of cancer patient umbrella organisations active in Europe. Its mission is to act as a well-coordinated cancer patient community towards all stakeholders by building levels of trust, collaboration, alignment and mutual support between pan-European cancer patient umbrella organisation.
The CML Advocates Network is co-founder and member of WECAN since 2016. Read more here.
Lepaf gets the membership of the Rare Diseases International organisation, the global alliance of people living with a rare disease of all nationalities across all rare diseases, in 2020.
RDI logoAs a member of RDI all LEPAF networks, including the CML Advocates Network, can fully participate in all Rare Disease International activities and projects and be represented at key international institutions and forums through this umbrella organisation.
Rare Diseases International aims to bring all umbrella rare disease patient organisations in every country and all regional and international networks for every rare disease into one global community to speak with one voice. Read more here
The CML Advocates Network is co-founder and member of WECAN since 2016. Read more here.
The CML Advocates Network is from 2020 member of the Global Genes RARE Foundation Alliance, a coalition of more than 600 rare disease members, providing networking opportunities and effective strategies, tools and resources to organisations. Read more here
The CML Advocates Network, as one of the networks of the Leukemia Patient Advocates Foundation, is a member of the Patient Advisory Committee run by the European Cancer Organisation.
The European Cancer Organisation aims to reduce the burden of cancer, improve outcomes and the quality of care for cancer patients, through multidisciplinarity and multiprofessionalism.
As the not-for-profit federation of member organisations working in cancer at a European level, the European Cancer Organisation convenes oncology professionals and patients to agree policy, advocate for positive change and speak up for the European cancer community. Read more here
The CML Advocates Network, as one of the networks of the Leukemia Patient Advocates Foundation, is from May 2021 full member of the International Alliance of Patient’s Organizations IAPO, the global alliance representing patients of all nations across all disease areas, working to promote patient-centred healthcare around the world.