Family Meeting of the German Parents' Organisation for Children with CML
From 31.05.-02.06.2019 the members of the Parents' Organisation for Children with CML e.V. met in Dortmund, Germany. 20 families followed the invitation of the first chairman Ullrich Duckstein and his wife. For many of them, it was a reunion but for 3 families it was the first personal contact with other affected parents after CML diagnosis of their child.
Our dear Cornelia Borowczak, a very active member of this organization, mother of a CML patient as well as a member of our CML Community Advisory Board has shared with the global CML community the following information about CML and children. Don't miss these interesting updates on "Pediatric Chronic Myeloid Leukemia":
CML Horizons 2019 - Presentations, photo gallery and videos now available!
CML Advocacy: Learn. Share. Grow.
17 - 19 May 2019, Lisbon, Portugal
The 17th International CML Horizons Conference was held in Lisbon, Portugal from the 17th to 19th May 2019
This year we greeted a record 119 participants and welcomed 22 newcomers who all support the CML Community worldwide with a very active engagement in Social Media by sharing, making comments and networking in Facebook, Twitter and Instagram during the meeting.
Hundreds of posts on the Facebook Pages of the CML patient advocates and groups were informing thousands of people worldwide and more than 300 Tweets using the hashtag #CMLHZ19 got a large impact on the online CML community with more than 11.000 impressions on this social media channel.
Our participants were given the opportunity to hear from 21 speakers from both medical and patient advocate specialists.
In addition to the expert presentations from our acclaimed speakers our participants once again through the interactive regional workshops collectively played a role in strengthening the regions.
The conference also offers cross border networking where delegates were able to share best practices, interact and exchange ideas.
The poster session has become extremely popular and 21 advocates showcased their organisations' activities.
Read more to access to the Presentations, Video Streams and Photo Gallery of the CML Horizons 2019 Conference.
€ 20,000 donated to the CML Advocates Network during the EHA 2019 Congress!
The World CML Day
CML results from a transformation of a stem cell caused in about 95% of Chronic Myeloid Leukemia patients by the change of chromosomes 9 and 22, which is why World CML Day (9/22) carries a symbolic significance for the patient community.
This day was initiated in 2008 by the patient community to bring awareness about patients’ needs to the general public, politicians and medical professionals across the world.
To face this challenge, every 22 September the entire Chronic Myeloid Leukemia community stands together to raise awareness about one life-changing reality – living with CML.
The CML Advocates Network annually coordinates the World CML Day global awareness campaign to support our 122 members worldwide.
Hiring an Executive Director for the CML Advocates Network: Extended deadline for applications: 1st July 2019
Want to work in an exciting global non-profit organization in the emerging fields of patient-centred healthcare and patient advocacy, working together with key patient advocacy leaders around the world?
The Leukemia Patient Advocates Foundation, a Swiss-based globally operating non-profit patient advocacy organization, is seeking an Executive Director based in Europe to run initiatives and projects of one of the leading worldwide patient advocacy networks, the CML Advocates Network.
A detailed job description can be found at http://www.cmladvocates.net/jobs
Welcome to EHA 2019 in Amsterdam, The Netherlands
From June 13-16, 2019, the European Hematology Association holds the 24th EHA annual congress at RAI Amsterdam, The Netherlands.
Address details RAI Amsterdam Europaplein 24, 1078 GZ Amsterdam, The Netherlands www.rai.nl/en
More than 10.000 hematologists coming from all over the world, patient organisations, patient advocates representing hematological diseases and other stakeholders will be attending this impressive meeting. Up to 60 free congress registrations were offered to patient advocates, including more than 20 advocates interested in CML, so we hope there will be strong patient attendance!
Click "Read more" to see what has been offered specifically for patient advocates, haematologists and other stakeholders at #EHA24 this year.
Welcome, Patients with chronic myeloid leukemia in Kyrgyzstan!
Now 122 patient organisations from 92 countries in the CML Advocates Network
We are proud to welcome a new member organisation to the CML Advocates Network: Patients with chronic myeloid leukemia in Kyrgyzstan.
The CML Advocates Network now totals at 122 member organisations in 92 countries worldwide!
Read more to see the list of CML groups in the Network on our world map.
