Webinar: Getting the most out of EHA 2018
The European Hematology Association's annual congress will start in Stockholm, Sweden, this week and we would like to support all CML patient advocates who will be attending with us this amazing meeting.
Our co-founder and member of the EHA European Affairs Committee, Jan Geissler, on behalf of the EuroBloodNET ePAG, presents this webinar on how to get the most of EHA as a CML patient advocate.
Through the webinar, you will be able to know more about topics like:
- Types of sessions at EHA and their relevance for a CML patient advocate
- How to set your priorities attending this huge congress.
- How to find and engage with key opinion leaders at the EHA Posters Sessions.
- More about EHA Abstracts: how to find them and how to read them.
You can also find a selection of clinical and translational research abstracts, oral presentations and posters focused on Chronic Myeloid Leukemia. Please, click on the following links to check out the interesting information for CML patient advocates attending #EHA23:
To know more about the relevant sessions and meetings for patient advocates at #EHA23, the Patient Advocacy Track, the Patient Advocacy Capacity Building Meeting, the Programme at a glance and many more, please visit our webpage EHA 2018 in Stockholm: Patient Advocacy Programme.
Don't forget to share the webinar with your contacts and see you soon in Stockholm, dear CML advocates!
EHA 2018 in Stockholm, Sweden: Patient Advocacy Programme
Just two weeks left until the European Hematology Association's annual congress starts in Stockholm, Sweden. Many patients of the hematology community and 17 CML patient advocates will be attending this impressive meeting from June 14-17, 2018 within more than 10.000 hematologists from all over the world.
Over the past months, the Hematology ePAG Project Management Office, coordinated by Nicole and Jan, has been working very closely with the EHA Congress office in order to make this year´s congress a success again.
Back by popular demand again this year, we have a joint patient advocates booth of all European patient advocacy organisations as well as “Patient Advocacy Track” session within the scientific program during the Congress. Up to 50 free congress registrations were offered to patient advocates (including 17 advocates interested in CML), so we hope there will be strong patient attendance!
Click "Read more" to see what has been offered specifically for patient advocates, haematologists and other stakeholders at #EHA23 this year.
The CML Clinical Trials data-base now lists 51 studies worldwide
The CML Advocates Network inofficial registry on clinical trials currently lists 51 studies:
- 28 CML studies currently recruiting patients
- 1 non-CML study also in the recruiting phase
- 22 studies that are no longer recruiting.
Check here CML Trials Registry
Welcome, Uzbekistan CML patients league! Now 118 patient organisations from 88 countries in the CML Advocates Network
We are proud to welcome a new member organisation to the CML Advocates Network: Uzbekistan CML patients league based in Uzbekistan. The CML Advocates Network now totals at 118 member organisations in 88 countries worldwide! See the list of CML groups in the Network on our world map.
TFR 4 CML patients survey
The TFR for CML patients survey is now live!
The CML Advocates Network is launching the online global survey “TFR 4 CML Patients”, available in seven languages: English, Spanish, German, Italian, French, Finnish and Hebrew, to measure the viewpoints, needs and experiences of CML patients that are considering or have already started Treatment Free Remission (TFR).
The findings of the survey will help us to better understand what the concerns, challenges and motivations are during the decision phase, the first probation phase after stopping, and when attempting TFR has either worked or failed.
Ferdinand Mwangura Memorial
We pay tribute to our beloved friend and Steering Committee member
Ferdinand Mwangura
We are profoundly saddened at the passing of Ferdinand Mwangura, our friend and Steering Committee member. Ferdinand passed away in Kenya on 28th February 2018 at the age of 40.
Ferdinand was a young advocate and was well-loved and admired for his enduring commitment to work within CML Life Africa, a network of CML patient groups in Africa, Ferdinand was regarded as a leader, a mentor and a big brother to many.
In May of 2017, Ferdinand was voted in by his fellow patient advocates as the new steering committee member for CML Horizons representing Africa & Middle East region. He took this role on proudly and was a highly engaged member, always ready to provide advice and perspective on any issue.
He made particularly valuable contributions to the programme for 2018 CML Horizons. He also helped pioneer the network’s first global CML Community Advisory Boards, where he championed the voice and needs of CML patients from Africa.
- Ferdinand enjoying the rain in the Kenyan South Coast -
Retweeted Monday, 18 June 2018
Retweeted Sunday, 17 June 2018
