CML Horizons 2022
Registration info - Preliminary Program - Conference fee - Scholarship Application
Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements
Registration is now open - Join us for the 20th “CML Horizons: Learn. Share. Grow" Conference
DATE: 28th – 30th October 2022
LOCATION: Marrakesh, Morocco
CML Advocates Network steering committee is excited to announce that the 20th CML Horizons will be a Hybrid event, with both in-person and online attendance options. As a first for Horizons, we will be taking attendees outside of Europe for the first time, bringing them to Marrakesh, Morocco, the hometown of Bahija Gouimi, our beloved first African and the Middle East regional leader.
In addition to developing our member advocates, the CML Horizons conference addresses topics like - New Treatment Strategy. In this event, we will hear from patients and leading experts about the challenges faced by patients with CML. We will also look at whether TFR is feasible in low- and middle-income countries, and whether or not it is the cure. Advocacy sessions this year will feature interactive topics such as access to treatment and evidence and data. The nature of Learn, Share, Grow is to deal with questions like these, and our conference offers the opportunity to facilitate and support quality education. The conference also provides a unique opportunity for exchange of ideas, interaction, sharing of best practices, establishing alliances and networking across borders, as well as opportunities for you to bring back to your own organization.
We plan to invite top speakers such as Prof. Andreas Hochhaus, Prof. François-Xavier Mahon, Prof. MD Gianantonio Rosti & Prof. Asmaa Quessar from Marrakesh and more speakers are expected to confirm soon.
We very much hope that you will be able to attend the 20th conference whether in person in Marrakesh or virtually from the comfort of your home. We have an exciting program covering both advocacy and CML science.
Our conference will provide you with the knowledge on how to make a difference in the lives of patients, identify opportunities in patient support & advocacy and learn from the experts - both patient advocates and physicians by networking opportunities with CML advocacy leaders around the globe.
CLICK HERE TO REGISTER
20 years of CML patient advocacy for patient access
Access to life-saving therapies is a global responsibility, not a luxury good in countries of the rich. But there are no simple solutions.
It’s more than 20 years since Imatinib revolutionized CML treatment and showed the potential of precision cancer medicine. In this article, CancerWorld journalist Anna Wagstaff asks why, despite the emergence of generics, are so many patients in low- and middle-income countriesstill dying for lack of access today, and what this could mean for efforts to improve global access to cancer care. Pat Garcia-Gonzalez, Martín Rosales de la Rosa, Rod Padua, Jan Geißler and a number of other patient advocates as well as company representatives and other experts have been interviewed by Anna Wagstaff over many months to dig deep on the complexities of generous access programmes, the end of patents and why CML generics didn't solve the access problem, the diversity of healthcare system deficiencies, the power play of collateral damage, and vested interests - and why robust data and infrastructure also in those countries may become so important.
ATTENTION: Caregivers &/or supporters of a patient with CML, AML, ALL, or CLL
Do you have somebody close to you who is diagnosed with leukemia? Be part of a global initiative where your input will help to understand care for the experiences and views of people who care for, or support leukemia patients.
The CML Advocates Network (CMLAN), in partnership with the CLL Advocates Network (CLLAN) and Acute Leukemia Advocates Network (ALAN), are running a worldwide survey to collect information on the ‘carer perspective’ of the care, treatment and support leukemia patients receive, as well as any personal impact the diagnosis has had.
We highly recommend you completing our survey to have your perspective heard by clicking below:
New “Know Your CML” App just launched
"Know your CML" is a new mobile app developed by CML Advocates Network. It offers a range of features to assist patients and caregivers in understanding various aspects of living with CML and provides articles and news related to CML.
By inputting valuable data, patients will be able to follow their response to treatment, find patient organisations near them, provide information relating to the quality of life as well as the availability of treatments in their country as well as reporting side effects. They will also be able to better understand CML through quizzes and other resources to assist them on their journey.
We have prepared a Webinar that launched our breakthrough App, to share with the CML Community. Look at the video by clicking here:
SAVE THE DATE: CML Horizons 2022
Date: 28 - 30 October 2022 Location: Marrakesh, Morocco
Dear members & friends of CML Advocates Network,
It is our pleasure to announce the dates for CML Horizons 2022. October 28 - 30 are the dates you need to block on your calendar, and the venue will be in Marrakesh, Morocco. The 20th CML Horizons should be an exciting event as we recognise the challenges that have been faced over the past two years. By providing the most current information and resources, CML Advocates Network aims to meet the needs of members by providing them with the most up-to-date information and resources, so that the CML Community can continue to: share, grow, and learn.
CML Advocates Network co-founders receive the 2022 iCMLf Prize
During the month of March 2022, the International CML Foundation announced the iCMLf Prizes for 2022. These prestigious global awards are conferred on individuals who have played a major role in advancing the understanding and management of CML.
On this ocassion, Giora Sharf and Jan Geissler, chronic myeloid leukemia (CML) patient advocates and co-founders of the CML Advocates Network, have been awarded the 2022 iCMLf Prize for their achievements in the field of patient advocacy using the experience of their own diagnosis to help other patients across the world.
