The patient community contributing to the HARMONY Alliance has worked hard on some companies and institutions to get them also provide quality of life and toxicity data from the clinical trials. It has now become more a reality since some have shared the data that can allow us to conduct our own patient-led research projects on the platform. Work is still in progress and we are looking forward to soon having results on this.
While this happens, we would like to invite you to read the #bigdataforbloodcancer blog 04/2023 | Using the HARMONY Big Data Platform to improve the quality of life of patients with CML: https://bit.ly/40Sjtqg where our founder Jan Geissler and Scientific Project Manager Eglys Gonzalez have given their thoughts on the topic.
The three new research projects in chronic myeloid leukemia (#CML) give emphasis on the quality of life of CML patients, as the side effects of CML treatments may severely affect patients’ quality of life. Through these projects, our goal is to gain further understanding of the anticipated side effects linked with the therapy choices that are accessible. Being aware of these effects will give patients and physicians the evidence to make more informed treatment decisions.