Japan: IZUMI (The Association of CML patients & families)

Member’s description

Conducting activities for CML patients and their families throughout Japan.

Audience/Constituency:

CML patients and their families.

Ways of communication with constituency:

Email, phone, mail, SNS.

Organizational objectives and key programs

Our organizational objectives are:

• Get the right information and treat positively;
• Make connections between patients;
• Publicize the actual condition of treatment;
• Solving the problems we face together.

Our key programs are:

• Holding forums and social gatherings;
• Information dissemination by the website;
• Publication of newsletter;
• Consultation by phone or email;
• Questionnaire survey of patients’ living conditions.