USA: The National CML Society

Member’s description

The National CML Society was created by and for patients and their families in order to provide a centralized hub of information for this rare form of leukemia.

Founded in 2007 as Carolyn’s Hope, this organization quickly spread beyond the confines of a local work to address the real concerns faced by the CML community nationwide. In December 2009, the organization became The National CML Society (NCMLS), serving the needs of the CML community in the United States and its Territories.

The National CML Society is governed by a Board of Directors, a Medical Advisory Board, and a Patient/Caregiver Advisory Board. Together, these groups work to ensure the ongoing activities of the organization and that it adheres to its goals and objectives.

Audience/Constituency:

CML Patients, Carers & Family Members, Medical Professionals and other stakeholders.

Ways of communication with constituency:

Website, social media, phone, teleconference, video conferencing, Zoom, email, virtual and ground-based support groups, one-to-one support, events, conferences, and more.

Organizational objectives and key programs

Our organizational objectives are:

• One on one support and guidance for the newly diagnosed
• Regional educational opportunities
• CML Specialist Directory
• Nationwide network of ground based support groups

Our key programs are:

• CML Connection
• One-to-One Support
• Assistance for Newly Diagnosed