CML Advocates Network

CONTACT INFORMATION:

Santa Hortensia, 15 - Oficina K
28002 Madrid
SPAIN

Tel. +34 915631801
Fax +34 911410114
Web: http://www.aeal.es
E-Mail:

KEY CONTACT:

Begoña Barragan
President

BRIEF DESCRIPTION OF ORGANIZATION:

AEAL is a non-profit organization of Lymphoma, Multiple Myeloma, Leukemia and MDS patients. AEAL provides information on the diagnosis, treatment and care of persons living with these diseases and their families.

KEY OBJECTIVES AND INITIATIVES:

Brochures, Educational Seminars, Patients Congresses, Support groups, Advocacy, PR

MEMBERS:

About 1700 (January 2011)

CONTACT INFORMATION:

Leukaemia CARE
One Birch Court,
Blackpole East,
Worcester,
Worcestershire WR3 8SG, UK

Tel: 08088 010 444

EMail:

Web: www.leukaemiacare.org.uk

COUNTRIES WHERE THIS ORGANISATION IS ACTIVE:

England, Scotland, Wales, Northern Ireland

KEY CONTACT:

Monica Izmajlowicz, Chief Executive,
Zack Pemberton-Whiteley, Head of Campaigning & Advocacy

BRIEF DESCRIPTION OF ORGANIZATION:

Leukaemia CARE is a UK charity dedicated to ensuring that anyone affected by blood cancer receives the right information, advice and support. We not only support patients, but carers and families too. We focus on the support that is needed right now to help those affected by blood cancer cope during a diagnosis and beyond.

SUPPORT SERVICES:

• 24-hour CARE Line: 08088 010 444 (Freephone): The CARE Line is the only 24-hour dedicated freephone telephone service for people affected by blood cancers. Having the opportunity to talk with someone any hour of the day, 365 days a year, can be of great benefit and comfort for patients and their families, particularly those who are feeling lonely and isolated.

• Nationwide support groups: We run and co-ordinate many support groups across the country that provide support and advice to patients on a local basis. The groups enable patients and their carers to talk with others in a similar situation. If you think there is a need for a group in your area, please call the CARE Line on 08088 010 444

• Cancer information and booklets: We supply a wide range of free information booklets and factsheets on blood cancers and issues that affect patients.

• Patient and carer conferences: We run three conferences each year for patients and their carers. These take place in different locations and more information can be found on our website.

• Cancer campaigning and patient advocacy: Our involvement in various patient forums and groups means that we can use our influence to affect Government opinion, particularly with regard to patient wellbeing, NHS funding and availability of drugs and new drug licensing.