Dear members & friends of the CML Advocates Network,
We are thrilled to share with you our contribution to the to VII Simposio anual GELMC!
Our Scientific Project Manager Eglys González-Marcano, talked about the current needs for patients in CML, achieving TFR but also going beyond TFR. The importance of QOL and the use of PROs in Clinical Trials and the regular practice as well as our ongoing projects and activities. Have a closer look at her presentation HERE.
The Acute Leukemia Advocates Network (ALAN) has published a groundbreaking qualitative study exploring the lived experiences of informal carers across six countries. This first-of-its-kind report...
Over the past year, a group of advisors have been busy co-creating a standardized and community validated CML quality of life (QoL) tracker. The goal of this tracker is to empower and equip all...
Managing multiple medications can be challenging and carries significant risks if not handled safely. To support patients, caregivers, and advocates, the European Union-funded SAFE POLYMED project...