CML Horizons 2022
Registration info - Preliminary Program - Conference fee - Scholarship Application
Call for Poster - Call for Nominations Travel - Visas - Venue & Accommodation - Acknowledgements
Registration is now open - Join us for the 20th “CML Horizons: Learn. Share. Grow" Conference
DATE: 28th – 30th October 2022
LOCATION: Marrakesh, Morocco
CML Advocates Network steering committee is excited to announce that the 20th CML Horizons will be a Hybrid event, with both in-person and online attendance options. As a first for Horizons, we will be taking attendees outside of Europe for the first time, bringing them to Marrakesh, Morocco, the hometown of Bahija Gouimi, our beloved first African and the Middle East regional leader.
In addition to developing our member advocates, the CML Horizons conference addresses topics like - New Treatment Strategy. In this event, we will hear from patients and leading experts about the challenges faced by patients with CML. We will also look at whether TFR is feasible in low- and middle-income countries, and whether or not it is the cure. Advocacy sessions this year will feature interactive topics such as access to treatment and evidence and data. The nature of Learn, Share, Grow is to deal with questions like these, and our conference offers the opportunity to facilitate and support quality education. The conference also provides a unique opportunity for exchange of ideas, interaction, sharing of best practices, establishing alliances and networking across borders, as well as opportunities for you to bring back to your own organization.
We plan to invite top speakers such as Prof. Andreas Hochhaus, Prof. François-Xavier Mahon, Prof. MD Gianantonio Rosti & Prof. Asmaa Quessar from Marrakesh and more speakers are expected to confirm soon.
We very much hope that you will be able to attend the 20th conference whether in person in Marrakesh or virtually from the comfort of your home. We have an exciting program covering both advocacy and CML science.
Our conference will provide you with the knowledge on how to make a difference in the lives of patients, identify opportunities in patient support & advocacy and learn from the experts - both patient advocates and physicians by networking opportunities with CML advocacy leaders around the globe.
CLICK HERE TO REGISTER
20 years of CML patient advocacy for patient access
Access to life-saving therapies is a global responsibility, not a luxury good in countries of the rich. But there are no simple solutions.
It’s more than 20 years since Imatinib revolutionized CML treatment and showed the potential of precision cancer medicine. In this article, CancerWorld journalist Anna Wagstaff asks why, despite the emergence of generics, are so many patients in low- and middle-income countriesstill dying for lack of access today, and what this could mean for efforts to improve global access to cancer care. Pat Garcia-Gonzalez, Martín Rosales de la Rosa, Rod Padua, Jan Geißler and a number of other patient advocates as well as company representatives and other experts have been interviewed by Anna Wagstaff over many months to dig deep on the complexities of generous access programmes, the end of patents and why CML generics didn't solve the access problem, the diversity of healthcare system deficiencies, the power play of collateral damage, and vested interests - and why robust data and infrastructure also in those countries may become so important.
ATTENTION: Caregivers &/or supporters of a patient with CML, AML, ALL, or CLL
Do you have somebody close to you who is diagnosed with leukemia? Be part of a global initiative where your input will help to understand care for the experiences and views of people who care for, or support leukemia patients.
The CML Advocates Network (CMLAN), in partnership with the CLL Advocates Network (CLLAN) and Acute Leukemia Advocates Network (ALAN), are running a worldwide survey to collect information on the ‘carer perspective’ of the care, treatment and support leukemia patients receive, as well as any personal impact the diagnosis has had.
We highly recommend you completing our survey to have your perspective heard by clicking below:
New “Know Your CML” App just launched
"Know your CML" is a new mobile app developed by CML Advocates Network. It offers a range of features to assist patients and caregivers in understanding various aspects of living with CML and provides articles and news related to CML.
By inputting valuable data, patients will be able to follow their response to treatment, find patient organisations near them, provide information relating to the quality of life as well as the availability of treatments in their country as well as reporting side effects. They will also be able to better understand CML through quizzes and other resources to assist them on their journey.
We have prepared a Webinar that launched our breakthrough App, to share with the CML Community. Look at the video by clicking here:
SAVE THE DATE: CML Horizons 2022
Date: 28 - 30 October 2022 Location: Marrakesh, Morocco
Dear members & friends of CML Advocates Network,
It is our pleasure to announce the dates for CML Horizons 2022. October 28 - 30 are the dates you need to block on your calendar, and the venue will be in Marrakesh, Morocco. The 20th CML Horizons should be an exciting event as we recognise the challenges that have been faced over the past two years. By providing the most current information and resources, CML Advocates Network aims to meet the needs of members by providing them with the most up-to-date information and resources, so that the CML Community can continue to: share, grow, and learn.
CML Advocates Network co-founders receive the 2022 iCMLf Prize
During the month of March 2022, the International CML Foundation announced the iCMLf Prizes for 2022. These prestigious global awards are conferred on individuals who have played a major role in advancing the understanding and management of CML.
On this ocassion, Giora Sharf and Jan Geissler, chronic myeloid leukemia (CML) patient advocates and co-founders of the CML Advocates Network, have been awarded the 2022 iCMLf Prize for their achievements in the field of patient advocacy using the experience of their own diagnosis to help other patients across the world.
Apply for an EHA 2022 Fellowship until 17th April
The European Hematology Association (EHA) has already opened the Fellowship Application and Registration process by providing 100 Full registration fellowships for leaders of hematology patient organisations.
This year, EHA is organizing its first hybrid EHA22 Congress in Vienna, Austria, and again providing patient advocates the opportunity to attend the conference both in-person and virtually from June 9 to 17.
If you are a representative of a CML patient organisation interested in attending this Congress, you have the possibility to apply for an EHA Fellowship and attend the 27th EHA Congress HERE.
Calling CML patients living in Ukraine
CML Advocates Network stands in solidarity with the CML patients in Ukraine.
CML Advocates Network statement supporting fellow members and patients in Ukraine.
The CML Advocates Network is an active network specifically for leaders of Chronic Myeloid Leukemia (CML) patient groups, connecting 128 patient organisations in 93 countries on all continents. It was set-up and is run by CML patients
In the light of recent geopolitical events in Ukraine we fully support our members and patients and families living with CML.
Following the recent COVID-19 pandemic during which care for so many patients living with cancer has undeniably suffered it is unfortunate that the recent series of events has ocurred and will certainly prolong the effects on those living with cancer and with CML in Ukraine.
As a patient-led global organisation it has always been our belief that disease has no borders and we have always working together both within CML and with the wider patient community to advance the voice of those who have been touched by disease and their families in order to highlight its effect on society.
We stand by our fellow members and patients in Ukraine and with wider global community in asking for common sense and diplomacy to prevail so that normal people living their lives can continue as such and in particular those who find themselves living with cancer and in our case CML can access the care and treatment that they fundamentally need.
As CML Advocates Network we stand by our members and their families and the wider medical community affected during these times.
ASH 2021 CML Conference Report
The 63rd ASH Annual Meeting and Exposition organised by the American Society of Hematology was presented at the Georgia World Congress Center in Atlanta, Georgia – and virtually – from December 11-14, 2021.
We have prepared a Conference Report in order to provide you the latest updates on the management of chronic myeloid leukemia and the most important highlights presented in this key meeting for the CML community.
Download the ASH 2021 Conference report by clicking on the image below:
Celia Marín - Head of Communications - celia@cmladvocates.net
EBMT 48th Annual Meeting and Patient, Family and Donor Day
The European Society for Blood and Marrow Transplantation is a collaborative peer network of professionals working, in centres and as individuals, in the field of clinical bone marrow transplantation and cellular therapy.
Every year, they hold the Annual Meeting as the most important event for research and education in the field of bone marrow transplantation and cellular therapy in Europe.
We are proud to announce that our Abstract titled “Chronic Myeloid Leukemia Access To Tyrosine Kinase Inhibitors And Polymerase Chain Reaction Testing. A Patient Advocacy Perspective From Central-Eastern Europe And West Asia Region. Jelena Čugurović, Šarūnas Narbutas, Jana Pelouchová, Denis Costello, Celia Marin.” has been accepted for poster presentation at the 48th Annual Meeting of the European Society for Blood and Marrow Transplantation (EBMT 2022) to be held as a hybrid event in Prague, Czech Republic from the 19th to the 23rd of March 2022.
CML Advocates Network Steering Committee 2021
We are excited to formally welcome and introduce the three new members of the CML Advocates Network Steering Committee 2021:
- Zack Pemberton-Whiteley, Chief Executive Officer of Leukaemia Care, United Kingdom. Region Western Europe Representative.
- Eunice Orekha, President of Max Care Foundation, Nigeria. Region Middle East & Africa Representative.
- Felipe Tapia, Vice President of Maxi Vida Association, Chile. Region Latin America Representative.
