CML Advocates Network co-founders receive the 2022 iCMLf Prize
During the month of March 2022, the International CML Foundation announced the iCMLf Prizes for 2022. These prestigious global awards are conferred on individuals who have played a major role in advancing the understanding and management of CML.
On this ocassion, Giora Sharf and Jan Geissler, chronic myeloid leukemia (CML) patient advocates and co-founders of the CML Advocates Network, have been awarded the 2022 iCMLf Prize for their achievements in the field of patient advocacy using the experience of their own diagnosis to help other patients across the world.
Apply for an EHA 2022 Fellowship until 17th April
The European Hematology Association (EHA) has already opened the Fellowship Application and Registration process by providing 100 Full registration fellowships for leaders of hematology patient organisations.
This year, EHA is organizing its first hybrid EHA22 Congress in Vienna, Austria, and again providing patient advocates the opportunity to attend the conference both in-person and virtually from June 9 to 17.
If you are a representative of a CML patient organisation interested in attending this Congress, you have the possibility to apply for an EHA Fellowship and attend the 27th EHA Congress HERE.
Calling CML patients living in Ukraine
CML Advocates Network stands in solidarity with the CML patients in Ukraine.
CML Advocates Network statement supporting fellow members and patients in Ukraine.
The CML Advocates Network is an active network specifically for leaders of Chronic Myeloid Leukemia (CML) patient groups, connecting 128 patient organisations in 93 countries on all continents. It was set-up and is run by CML patients
In the light of recent geopolitical events in Ukraine we fully support our members and patients and families living with CML.
Following the recent COVID-19 pandemic during which care for so many patients living with cancer has undeniably suffered it is unfortunate that the recent series of events has ocurred and will certainly prolong the effects on those living with cancer and with CML in Ukraine.
As a patient-led global organisation it has always been our belief that disease has no borders and we have always working together both within CML and with the wider patient community to advance the voice of those who have been touched by disease and their families in order to highlight its effect on society.
We stand by our fellow members and patients in Ukraine and with wider global community in asking for common sense and diplomacy to prevail so that normal people living their lives can continue as such and in particular those who find themselves living with cancer and in our case CML can access the care and treatment that they fundamentally need.
As CML Advocates Network we stand by our members and their families and the wider medical community affected during these times.
ASH 2021 CML Conference Report
The 63rd ASH Annual Meeting and Exposition organised by the American Society of Hematology was presented at the Georgia World Congress Center in Atlanta, Georgia – and virtually – from December 11-14, 2021.
We have prepared a Conference Report in order to provide you the latest updates on the management of chronic myeloid leukemia and the most important highlights presented in this key meeting for the CML community.
Download the ASH 2021 Conference report by clicking on the image below:
Celia Marín - Head of Communications - celia@cmladvocates.net
EBMT 48th Annual Meeting and Patient, Family and Donor Day
The European Society for Blood and Marrow Transplantation is a collaborative peer network of professionals working, in centres and as individuals, in the field of clinical bone marrow transplantation and cellular therapy.
Every year, they hold the Annual Meeting as the most important event for research and education in the field of bone marrow transplantation and cellular therapy in Europe.
We are proud to announce that our Abstract titled “Chronic Myeloid Leukemia Access To Tyrosine Kinase Inhibitors And Polymerase Chain Reaction Testing. A Patient Advocacy Perspective From Central-Eastern Europe And West Asia Region. Jelena Čugurović, Šarūnas Narbutas, Jana Pelouchová, Denis Costello, Celia Marin.” has been accepted for poster presentation at the 48th Annual Meeting of the European Society for Blood and Marrow Transplantation (EBMT 2022) to be held as a hybrid event in Prague, Czech Republic from the 19th to the 23rd of March 2022.
CML Advocates Network Steering Committee 2021
We are excited to formally welcome and introduce the three new members of the CML Advocates Network Steering Committee 2021:
- Zack Pemberton-Whiteley, Chief Executive Officer of Leukaemia Care, United Kingdom. Region Western Europe Representative.
- Eunice Orekha, President of Max Care Foundation, Nigeria. Region Middle East & Africa Representative.
- Felipe Tapia, Vice President of Maxi Vida Association, Chile. Region Latin America Representative.
In Memoriam Professor Michele Baccarani
We have learnt with deep sadness the passing away of Professor Michele Baccarani on 20th December 2021.
Dr. Baccarani was an outstanding renowned doctor, a great scientist, an excellent hematologist and one of the most important leaders on chronic myeloid leukemia worldwide.
He dedicated his life to research against leukemia, making a significant contribution to change the natural history of this disease and impact on the quality of life of patients.
The CML Advocates Network on behalf of the global CML patients community all around the world, are profoundly grateful to him for his remarkable work on the benefit of CML patients, moreover for the support provided to the birth of our member organisation, AIL Group of CML patients in Italy.
It was a privilege and an honour for us to know him and learn from him.
We wish his family, friends and colleagues all the strength and wisdom they need in these difficult times.
Rest in peace.
In Memoriam of Euzebiusz Jan Dziwiński
To the memory of our dearly departed friend. We will miss you with all our hearts. We may have lost you but your spirit lives on long after you’re gone.
It is with deep sadness that we inform the CML community about the passing of our friend, colleague, and CML patient advocate Euzebiusz Jan Dziwiński on 5th December 2021, at the age of 71.
CML Advocates Network loses a close friend who was also a very active patient advocate and member of the CML family from the outset of the global network.
In Memoriam of Trevor Steyn
It is with great sadness that we share that our friend, colleague, and CML patient advocate Trevor Steyn passed away on 9th November 2021 at the age of 63.
CML Advocates Network loses a friend, a CML patient for over 32 years and also a very active patient advocate, leading the CML patient organisation CML SA founded in 2013 to offer up-to-date information, emotional support and advocacy on behalf of all CML patients in South Africa.
Trevor was a very smart person, someone who was very outspoken at our network meetings with very well reflected questions, and such a wonderful and caring individual. In words of our colleague Bahija Gouimi from AMAL, Morocco, “We lost a devoted leader and a great friend. I will really miss you calling me my dear Sister. Know that you're unforgettable. I will really miss you. I send my prayers and support to Delphine, your amazing wife and your family during this difficult time.”
CML Horizons 2021 Virtual Conference Information
CML Horizons 2020: Learn. Share. Grow.
22 – 24 October 2021, Virtual Conference
CML Advocates Network (CML AN) initially planned to hold the 19th International CML Horizons 2021 as a Hybrid event from 22nd to 24th October of 2021 in Netanya, Israel, however, in light of the ever-evolving and unpredictability of COVID-19 and the various variants that are now posing a health risk globally, the Steering Committee decided to move to a fully virtual event for 2021 and keeping the same dates.
2021 CML Horizons virtual event attracted high interest with close to 300 registrations from 74 countries from all corners of the world. The 19th Conference Programme consisted of 3 half days with 150 daily participants and from the daily feedback we were receiving from our members it showed that once again this virtual event was immensely successful.
Watch videos of all sessions on demand
ASH 2021 Annual Meeting
The 63rd ASH Annual Meeting and Exposition organised by the American Society of Hematology will be presented at the Georgia World Congress Center in Atlanta, Georgia – and virtually – from December 11-14, 2021.
This year we will be attending this important meeting for the CML patient advocacy community to discover the newest advances in hematology, review many scientific abstracts highlighting updates on chronic myeloid leukemia and prepare a comprehensive report of of the most critical presentations on CML.
Read more about the agenda to be followed by the CML patient advocates. Please, note all times listed are in US Eastern Time (EST):
