CancerWorld article on Side Effects of target treatments: Our CML adherence study is mentioned
The side effects of targeted drugs are poorly documented, and their impact on patients frequently seriously underestimated and undertreated. A new CancerWorld article covers this important issue. Our CML adherence study and the issue of side effects in CML treatment is covered in detail! Also covered: the Myeloma Patients Europe survey and the GIMEMA CML study on the different perceptions of doctors and patients on side effects. A must read!
Free EHA congress registrations for representatives of patient organizations: Deadline 24 March 2015!
This year's EHA Congress will be held 12-15 June 2015 in Vienna, Austria. Thanks to very patient-centric thinking, EHA continues to work closely with the patient community and is again offering a “Patient Advocacy Track” within the scientific program. A team of leading patient advocates is currently working on the sessions for the EHA Patient Advocacy track and making a great effort to cover topics of priority for patients across diseases that are – at the same time - attractive to hematologists.
As in previous years, EHA is again providing 50 free congress registrations for leaders of hematology patient organizations to give patient advocates the opportunity to attend the EHA congress in Vienna. The free registrations are only available to representatives of patient organizations, and EHA is requiring them to attend our capacity building session (planned for Saturday afternoon). The registration allows access to the scientific congress, but will not cover travel or accommodation costs.
If you are interested in a free registration, please reserve your free registration here.
Deadline for free registrations is 24 March 2015! Please also note that the free registration are subject to confirmation by the EHA office - the CML Advocates Network just collects statements of interest on behalf of the patient community.
Welcome to our 100th member in the CML Advocates Network!
Since its initiation in 2007, the CML Advocates Network has grown at an amazing pace. Since January 2015, 10 new organizations from 7 countries have joined the network! Our newest members are the "Indonesian CML & GIST Community (ELGEKA Indonesia)" and “Leucémie Espoir” from Mali. WELCOME! With this, we have now reached a total of 100 members based in 76 countries worldwide! See the list of CML groups in the Network on our world map.
The CML Advocates Network's Clinical Trial Registry now lists 24 CML studies
The CML Clinical Trials Registry is growing steadily. Our database continues to benefit from additional studies which makes this resource increasingly valuable to patients. Seven new studies have been entered since November 2014. The registry now lists a total of 24 CML studies at http://www.cmladvocates.net/cmltrials and we are continually adding further studies as they become known to us. Thanks very much to everyone who provided information on new studies or helped ensure that the registry entries are correct and remain up to date.
The recently included studies are:
- a first-line trial with ponatinib for CML in accelerated phase;
- two trials after therapy failure or intolerance (early switch from imatinib to dasatinib (CA180-399), bosutinib after treatment with tyrosine kinase inhibitors (B1871039));
- a study comparing imatinib to nilotinib in CML in chronic phase;
- a study of decitabine plus dasatinib for CML in blast phase;
- a treatment discontinuation study (LAST); and
- eltrombopag for thrombocytopenia in CML.
For other studies that were previously included in the registry, we have updated the list of participating study centers and added study information or relevant links.
Recruitment has been completed in five studies, meaning that no further patients will be included. These studies have been moved to the new category “Trials that are no longer recruiting”.
The registry has also been improved by a new geographical feature. You can now find the region where the study is being performed in square brackets immediately behind the study title (for example, “Drug xy for CML in chronic phase [Europe, North America]).”
Do you know of any study that is not yet listed here? Please let us know by filling out this form.
Or is there an entry which should be corrected? If so, please send us an email.
Please also visit our discussion forum if you have any questions or wish to share your experience on these studies!
Now 98 patient organisations from 74 countries in the CML Advocates Network!
We are truly overwhelmed by the rapid growth of our network. Since January 2015, we have welcomed 8 new organizations from 5 countries! It´s so great to see the community growing at this pace! Today we want to welcome The National Cancer Control Foundation based in Yemen as our 98th member organisation. We now have members in 74 countries worldwide! See the list of CML groups in the Network on our world map.
Patient-friendly summary of the ELN CML Treatment Recommendations now also in Serbian - and 15 other languages
The CML Advocates Network, advised by medical experts, has developed a lay-friendly summary of the ELN Expert Treatment recommendations for CML.
It is now available in 16 languages: English, Arabic, Bulgarian, Chinese (traditional and simplified), Dutch, French, German, Hebrew, Italian, Polish, Portuguese, Russian, Serbian, Spanish and Turkish (new: Serbian, thanks to Jelena from the CML Association of Serbia).
See our ELN Summary here: http://www.cmladvocates.net/cmlsummary
4 new members: now 96 patient organisations from of 72 countries in the CML Advocates Network
The CML Advocates Network is growing fast. We hereby proudly welcome four new members to our network. These are: APSBES / DILIGENCE GROUP from Togo, LUZ DE ESPERANZA from Peru, BCSG from Bangladesh and Zero Club from South Korea. With this we have now reached the number of 96 organisations from 72 countries across all continents. How exciting! See the list of CML groups in the Network on our world map.
The CML Advocates Network welcomes another new member: now 92 patient organisations from of 70 countries in the CML Advocates Network
We are delighted to welcome another new member to our network: the group "ASSOCIATION DE LUTTE CONTRE LES LEUCEMIES AU NIGER" is our first member organization based in Niger. WELCOME, NIGER! From today, the Network connects 92 organisations from 70 countries across all continents. See the list of CML groups in the Network on our world map.
The CML Advocates Network welcomes two new members: now 91 patient organisations from of 69 countries in the CML Advocates Network
We are delighted to welcome two new members to our network: "Maxvida" from Chile and "Osmijeh Tuzla" from Bosnia and Herzegovina. "Maxvida" is the first Chilean member of the CML Advocates Network. With "Osmijeh Tuzla", there are now two member organizations based in Bosnia and Herzegovina. From today, the Network connects 91 organisations from 69 countries across all continents. See the list of CML groups in the Network on our world map.
ASH 2014 Interviews on newest CML data, adherence and advocacy
At the ASH Meeting in San Francisco, PatientPower, Brandcast Media, The National CML Society USA and the American Journal of Managed Care conducted interviews with Dr. Michael Mauro, Giora Sharf, Greg Stephens and Jan Geissler.
See the the ASH 2014 interviews covering issues around newest CML trial data and quality of life issues, accessing CML treatment, patient advocacy, treatment adherence in CML, the book "Faces of Courage and Hope".
Patient-friendly summary of the ELN CML Treatment Recommendations now available in 15 languages
The CML Advocates Network, advised by medical experts, has developed a lay-friendly summary of the ELN Expert Treatment recommendations for CML.
It is now available in 15 languages: English, Arabic, Bulgarian, Chinese (traditional and simplified), Dutch, French, German, Hebrew, Italian, Polish, Portuguese, Russian, Spanish and Turkish (new: Turkish and Chinese).
See our ELN Summary here: http://www.cmladvocates.net/cmlsummary
Register now for CML Horizons 2015, 1-3 May 2015, Barcelona, Spain!
We are looking forward to the 13th CML Horizons conference, held in Barcelona / Spain on 1-3 May 2015. The CML Horizons Steering Committee has worked hard to ensure that the conference includes topics of importance to the CML patient community, and provides a unique opportunity for participants to share experiences and best practice. We hope that as a result of this meeting, CML patient groups globally will improve their capacity to meet the needs of their patients, and strengthen their advocacy activities.
Registration is now open for leaders of CML patient organisations.
